Global Allergy & Airways Patient Platform

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Global Allergy & Airways Patient Platform

Our mission is to globally support and empower patients with allergies, airways and atopic diseases
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11/06/2026

The first-ever Global Pulmonary Hypertension Patient Hackathon in Dallas, Texas has officially come to an end! We are coming out of it with concrete global commitments.

Our four working groups pitched their detailed local action plans to an expert feedback panel.

In a powerful public accountability ceremony, group coordinators and physician advisors signed formal Commitment Cards to implement these solutions in their home countries.

We leave Dallas with 4 solution proposals, 4 detailed roadmaps, and 4 signed commitments ready to break down barriers in the global PH community!

Our deepest gratitude goes to all the patient advocates for showing up and pouring such incredible energy into building these roadmaps. And a huge thank you to our co-organizers LHL, collaborators PHA and PVRI, and our generous sponsors MSD, Liquidia, and United Therapeutics for powering this milestone event.

🔗 For future events and advocacy news, subscribe to our newsletter now: https://gaapp.org/sign-up-for-the-newsletter

11/06/2026

GAAPP is heading to Hannover, Germany for the 9th World Bronchiectasis Conference, taking place 24–26 June. 🇩🇪

We’re proud to share that our CSO Ruth Tal-Singer and Senior Director of Education Stephanie Williams will be attending and actively contributing to the program.

GAAPP will also be present with a booth in the Patient Village, where Stephanie will present the “Bronchiectasis Success Program.”

Ruth will deliver three presentations:

🧑‍⚕️ Patient input into Phase III Trial Design
🔬 First International Multicenter Validation of the Chronic Airways Assessment Test (CAAT)™ in Bronchiectasis
🌍 Global Baseline Knowledge of Bronchiectasis: Results from the GAAPP Multilingual Online Interactive Quiz

We look forward to connecting with the global bronchiectasis community and sharing insights to advance patient-centered research and education. 🤝

11/06/2026

Day 1 of the Global Pulmonary Hypertension Patient Hackathon in Dallas, Texas was a massive success! Today we brought together global patient leaders and clinical mentors to turn a global survey data into concrete healthcare solutions.

Our four working groups, each tackling a community priority, analyzed the patient experience from suspicion to follow-up, identifying equity gaps and care barriers. The teams then brainstormed new ideas and began drafting localized implementation roadmaps.

Tomorrow, teams will pitch their final roadmaps to an expert panel and sign formal commitments to bring these projects to life locally. Stay tuned for more!

This initiative is led by GAAPP and Latin Health Leaders, in collaboration with PHA and PVRI, with special thanks to our sponsors MSD, Liquidia, and United Therapeutics.

🔗 For future events and advocacy news, subscribe to our newsletter now: https://gaapp.org/sign-up-for-the-newsletter

05/06/2026

We are officially hosting the inaugural Global Pulmonary Hypertension Patient Hackathon at the Pulmonary Hypertension Association 2026 International PH Conference in Dallas next week!

This is a PH association-exclusive opportunity you won't want to miss. For the very first time, we are selecting 40 patient advocates from 5 continents to team up with clinical mentors. Our goal is to take four priority issues and transform them into 8 tested, functional prototypes.

Our mission: To reduce diagnosis time, improve referrals, and ensure equity for PH patients everywhere.

What you can expect at this historic debut:
✅ Design thinking & rapid prototyping sessions.
✅ User testing and feedback loops.
✅ Concrete implementation roadmaps.

📅 When: NEXT WEEK, June 10–11, 2026
📍 Where: Dallas, Texas

Unable to join us in Dallas? Go virtual. REGISTER NOW.
🔗 https://gaapp.org/global-pulmonary-hypertension-patient-hackathon-2026

This initiative is led by GAAPP and Latin Health Leaders, in collaboration with Pulmonary Hypertension Association and PVRi, thanks to the generous support of MSD Invents, United Therapeutics, and Liquidia Corporation.

05/06/2026

Still not sure what EoE is, or how it's treated? Here is everything you need, in one place.

Eosinophilic Esophagitis is a long-term immune-mediated condition in which the body mounts an inflammatory response to certain foods, triggering a buildup of eosinophils, white blood cells, in the lining of the esophagus. The result is a range of symptoms that can be debilitating: difficulty swallowing, food getting stuck, chest pain, and chronic heartburn that doesn't respond to standard treatment.

Diagnosis requires an endoscopy with biopsies, there is no blood test, no scan that can confirm EoE on its own. This is one of the reasons it is so frequently missed: it requires a clinician who suspects it in the first place.

Treatment is multimodal: dietary elimination to identify and remove trigger foods, acid-suppressing medication (PPIs), topical corticosteroids, and for those who need it, biologic treatments that target the underlying immune response. With the right management plan, many patients achieve good symptom control and a meaningful improvement in quality of life.

Access the full EoE Care Pathway in dedicated versions for healthcare providers and for patients & caregivers:
👉 eoeday.org/resources/

03/06/2026

EoE is not just a condition that makes eating uncomfortable. It is a condition that reshapes daily life, restricting what you eat, where you go, who you eat with, and how freely you move through the world. It narrows, quietly and relentlessly, the moments that most people take for granted: a spontaneous meal, a celebration, a shared plate.

For patients who have waited years for a diagnosis, this is a reflection of something real. For those who have just been diagnosed, it is a reminder that their experience is valid and that support exists. For those who have never heard of EoE, it is an invitation to learn.

Save this image. Share it. Every person who sees it and recognizes something in it could be one step closer to getting the help they need.

Find patient resources and support:
eoeday.org/resources/

02/06/2026

Some q***r people with allergies, respiratory, and skin conditions can face a brutal reality: healthcare that isn't safe, isn't accessible, and isn't trained to serve them.

This issue is aggravated in war zones and displacement settings.

When clinics are bombed, when essential treatment like inhalers and epinephrine disappears, when aid workers don't know how to treat you — your chronic condition becomes a ticking clock. ⏱️

We believe everyone deserves access to allergy, respiratory, and skin care — regardless of who they love, how they identify, or where they're fleeing from.

🏳️‍🌈 We stand with q***r people everywhere — especially those still waiting for care.

📌 Share to amplify.

01/06/2026

For many women living with EoE, the road to diagnosis is shaped by an experience that will be deeply familiar: not being believed.

Symptoms that come and go, pain that is difficult to describe precisely, and difficulty swallowing that worsens under stress. These are all features of EoE but they are also, far too often, the kinds of symptoms that get dismissed, minimized, or attributed to anxiety, hormones, or a sensitive gut. The result is that many women spend years seeking answers and being sent away without them.

EoE does not present the same way in everyone. In women, particularly, the diagnostic journey can be longer and more complicated, made harder by the tendency to underestimate or reframe symptoms that don't fit a neat clinical picture. By the time a diagnosis is made, the condition may have been causing damage for years.

Her story is not unusual. It is the story of countless women with EoE who kept pushing, kept advocating for themselves, and finally got the answers they deserved.

Watch and share, because every story told makes the next person's journey a little shorter.

Find out how to get involved and support the EoE community:
eoeday.org/get-involved/

01/06/2026

Being a teenager is already complicated. Being a teenager with EoE is something else entirely.

You're at an age where everything social revolves around food, the canteen at lunchtime, fast food after school, sleepovers, birthday celebrations, first dates. And while your friends are navigating all of that freely, you are doing mental arithmetic every single time. Can I eat this? What's in it? What happens if I get it wrong? How do I explain this without sounding different?

Teenagers with EoE often describe a profound sense of isolation, not just from the condition itself, but from the effort of hiding it. The constant vigilance. The rehearsed explanations. The decision, made over and over again, about whether to tell someone the truth or just say you're not hungry.

EoE during adolescence can also go undiagnosed for longer than in adults, because the symptoms are attributed to pickiness, anxiety, or a phase. By the time a diagnosis is made, years may have passed — years of unnecessary restriction, discomfort, and missed experiences.

This is the story of thousands of teenagers living with EoE right now. Watch it, share it, and especially with parents, school nurses, and anyone working with young people. 💜

Learn more about EoE and how to get involved:
eoeday.org/get-involved/

31/05/2026

"It took years to get diagnosed."
"My medication is too expensive."

These are the shared barriers to asthma care that make many of us .

But your story can be a tool for change.
When you pin your story on our Asthma Map, you help us map out the exact barriers we need to break down next.

📍 Don't let your story go unheard.
👉 Pin it here: https://gaapp.org/asthmaday2026

Adresse

Altgasse 8-10
Meidling
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Telefon

+436767534200

Webseite

http://www.gaapp.org/

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