Wisdom's sickle cell journey

Wisdom's sickle cell journey "Welcome to Wisdom's sickle cell journey! This page aims to educate, raise awareness, and support individuals affected by sickle cell disease."

The worst experience I've ever had during cannulation was when I was assigned to a female nurse.There was a time when I ...
24/09/2026

The worst experience I've ever had during cannulation was when I was assigned to a female nurse.

There was a time when I was very unwell, in a very serious painful crisis. I was rushed to the emergency room where the doctor instructed a female nurse to cannulate me. After giving the instructions, the doctor went to check on other patients, leaving me with the nurse.

I don't know if she had no idea how to insert a cannula. She just sat watching me, trying to figure out what to do, and later started running up and down pretending to be busy. I spent almost 4 hours in the emergency room without being cannulated or given a painkiller injection.

I eventually got upset and asked her what she was still doing. She came to me with the wrong IV fluid, and I told her to use Normal Saline because it is a common choice for hydration and flushing cannulas in sickle cell patients and also helps reduce blood viscosity. I then told her to use a short, small gauge cannula, about 20G or 22G, which is less likely to cause phlebitis or blockage.

The biggest problem started during cannulation when she wasted about 5 cannulas on the wrong veins. She was just slapping my arms to find a vein. The veins were visible, but she still failed to insert the cannula. It took about 4 nurses who attempted to cannulate me, and they were just adding more pain to the pain I already had.

I got upset and began to rebuke them. I was very upset seeing my blood being wasted because of the wrong cannulation technique. I was upset about being injected at different angles, which only added more pain without doing the right thing. I was especially shocked seeing someone in a healthcare uniform failing even to flush a cannula.

That day, as a patient, I became the lecturer. I began to teach them how to cannulate. I thought I was teaching only one nurse, but I later realized about 8 nurses were learning from me. I told them which fluid, which type of cannula to use, and I told them to find the cephalic vein (thumb side of the forearm) which is usually the best. It's large, straight, and away from joints. They did as I said and surprisingly, it worked perfectly.

Imagine going to the hospital as a patient who was only at primary school level, lower than those nurses who were ahead of me, but I still had a chance to teach them something I had never formally learned, and it still worked.

After that scenario, that female nurse left the room that same day and never returned to check on me, even though she was the one in charge of me. From that time to date, I have not seen her again. It has now been about 6 years plus.

At that same hospital, there was only one female nurse who could manage me. Even when doctors failed to find my veins for cannulation, she would come and do everything on a single attempt. She was later promoted and transferred to another hospital.

Lessons from this:
1. Patients, especially those with chronic conditions like sickle cell, often become experts on their own care due to experience. This can be a powerful resource for healthcare providers — listening to patients' insights can improve care and outcomes.
2. Clear communication and empathy go a long way in tough situations.
3. It is important to speak up and advocate for yourself, especially in vulnerable situations.

24/09/2026

Happy follow-versary to my awesome followers. Thanks for all your support! Mary Mwandunga, Fanta Kabba

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20/09/2026

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Dear Fellow Sickle Cell Warrior…Have you ever been in such a severe sickle cell crisis at home that you notice your vein...
19/09/2026

Dear Fellow Sickle Cell Warrior…
Have you ever been in such a severe sickle cell crisis at home that you notice your veins becoming unusually prominent, or you feel as though your veins are pulling up and causing intense pain?
Then comes the moment when your family finally gets you to the hospital.
The healthcare worker prepares to insert a cannula…
And suddenly—
THE VEINS ARE NOWHERE TO BE FOUND!
You may even find yourself wondering:
“But I could see these veins at home. Where have they gone now?”
If you've experienced this, you're not alone.
So, why does this happen?
The veins haven't necessarily disappeared.
During severe illness, several things can make veins less visible, less full, or more difficult to access.
1. Dehydration
During a crisis, you may have poor appetite, vomiting, fever, sweating, or simply struggle to drink enough. Dehydration can reduce the amount of blood circulating through the veins, making them less prominent.
2. Repeated cannulas
For warriors who have spent many times in hospital, the same veins may have been accessed repeatedly. Some veins can become scarred, hardened, or damaged, making future IV access more difficult.
3. Cold and blood-vessel constriction
Cold temperatures can cause peripheral blood vessels to constrict, making superficial veins smaller and harder to see.
4. Severe pain and stress
A serious crisis activates the body's stress response. This can affect blood-vessel tone and peripheral circulation, sometimes making veins more difficult to access.
5. Changes in circulation or blood pressure
When someone is seriously unwell, veins may become less prominent because they aren't being filled as strongly.
6. Swelling
Swelling of the hands or arms can make veins much harder to see or feel.
7. Individual anatomy
Some people's veins naturally sit deeper beneath the skin or are simply less visible.
And this is where the frustrating part comes in…
You can arrive at the hospital already exhausted and in terrible pain.
The veins that appeared prominent at home may now be difficult to see or feel.
The healthcare worker tries once…
Twice…
Sometimes several times…
And you're sitting there thinking:
“Please, just find the vein. I'm already in enough pain.”
This doesn't necessarily mean that sickle cell has literally made your veins disappear. Rather, dehydration, repeated venous access, swelling, illness, cold, and changes in peripheral circulation can all contribute to difficult IV access.
Someone who has experienced many hospital admissions may eventually be described by healthcare professionals as having difficult IV access.
In some circumstances, healthcare professionals can use techniques such as ultrasound-guided IV placement to help locate a suitable vein rather than repeatedly attempting blind insertion.
To every sickle cell warrior…
There are things about this disease that are difficult to explain to someone who has never experienced them.
Sometimes the battle isn't only the pain.
It's the needles.
It's the hospital.
It's hearing “we can't find your vein.”
It's having to endure another attempt when you're already exhausted.
And sometimes, it's having a part of your body that looked completely different just hours earlier.
Sickle cell warriors, our experiences matter. Let's keep talking about them, educating one another, and helping people understand what living with this condition can really look like.

The man you see today was built from battles I once thought I would never survive. Every scar carries a lesson, every te...
13/09/2026

The man you see today was built from battles I once thought I would never survive. Every scar carries a lesson, every tear shaped my strength, and every storm brought me closer to the man I was destined to become.

Go well uncle 😭😭😭😭💔💔💔
12/09/2026

Go well uncle 😭😭😭😭💔💔💔

Yellow Eyes in Sickle Cell - Understanding Jaundice1. What is Jaundice?Jaundice is when the whites of the eyes and skin ...
10/09/2026

Yellow Eyes in Sickle Cell - Understanding Jaundice

1. What is Jaundice?
Jaundice is when the whites of the eyes and skin turn yellow because there is too much bilirubin in the blood.

2. What is Bilirubin?
It's a yellow chemical made when old red blood cells break down.

Normal flow: Old blood cells → Liver cleans it → Leaves through p**p and p*e.

3. Why Does it Happen in Sickle Cell Warriors?
In sickle cell, red blood cells break too fast. More bilirubin is made than the liver can clean. So the yellow color stays and shows in the eyes first.

4. Signs to Look For:
- Yellow whites of eyes
- Yellow skin
- Dark brown urine like Coca-Cola
- Pale stool

5. 3 Main Causes of Jaundice:
a) Too many blood cells breaking (sickle cell)
b) Liver is sick
c) Blocked tube by gallstones

6. When is it Normal vs Dangerous?
Normal: Slight yellow tint that comes and goes, especially when tired or dehydrated.

Dangerous - Go to hospital FAST if:
- Deep orange/yellow suddenly
- With fever, severe pain, dark urine, swollen belly, extreme tiredness

7. What Helps:
- Drink plenty water
- Rest well
- Avoid alcohol and fatty foods
- Take folic acid and prescribed drugs
- Regular liver check-ups

When it comes to cold season, I am that one person who always wears the heaviest clothes. Cowboy clothes and those heavy...
07/09/2026

When it comes to cold season, I am that one person who always wears the heaviest clothes. Cowboy clothes and those heavy, duvet-like jackets. When people see me, they admire the outfit. They admire the swag. They admire how hot the outfits are. But they don't know who the man inside that cowboy, duvet outfit really is.

I am that kind of person who is always afraid of even a small breeze of air, because I know cold is one of the biggest triggers for a sickle cell pain crisis. So fashion for me during cold season has to be cute AND protective. I make sure to slay while staying warm.

The cuteness of my fashion during cold season is to make people not condemn me for choosing to wear heavy clothes even when it's just a simple breeze. People get attracted to my outfits and forget that I am a sickle cell warrior.

I have built a name through my outfits. I was once called "that sickle cell guy" and now I am called The Cowboy.

At least I changed the narrative with fashion, because being addressed by a condition feels like being downgraded. Even when meeting new people, they get used to calling me Wisdom The Cowboy - and it is something I love the most.
From a diagnosis to an identity. From "that sickle cell guy" to "Wisdom The Cowboy." That's not just fashion, that's victory.

Today I was filled with grief after hearing someone tell me what I went through, things I myself do not remember. Imagin...
06/09/2026

Today I was filled with grief after hearing someone tell me what I went through, things I myself do not remember. Imagine meeting someone who saw you being born and saw how you grew up struggling with life. You meet them after a long time and you smile at them because it's been long, but she does not smile back. She just looks at you in wonder and disbelief that it's really you.

I asked her why she wasn't smiling back, and she asked me in confusion, "Wisdom, is this really you?" I replied, "Yes, it's me," and asked why she looked confused. That's when she started telling me my own story of how I was born.

How I couldn't walk or talk even at the age of 9 to 12. How I was deaf and dumb, and even if someone shouted near me, I could hardly hear. How I had to be carried when I needed help. And I was even more puzzled when someone added that I had a very big belly, like that of kwashiorkor.

This is so heavy for me to carry. To smile at someone you haven't seen in a long time, expecting joy, and instead they look at you in disbelief... and instead of saying "how are you," they start telling you who you were — things you don't even remember about yourself. That can shake you.

It is weighing on me tonight, even more when I look at the epilepsy situation I am in now. The journey of pain started a very long time ago, but why is it not ending even now?

I hate hearing about my past. When you meet me now, let's talk about the present and the future. My past explains me, but it does not define me. I am not that little boy who was carried anymore. I am who I am NOW.

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