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Endometriosis Awareness & Dignity SA

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Endometriosis Awareness & Dignity SA

Endometriosis Awareness and Support.

20/09/2026

💛 A MESSAGE FROM MY HOSPITAL BED

Good morning, ladies. 🤍

I want to share something important with every woman living with endometriosis, especially those of us who have been navigating this disease for years.
Sometimes, we become so familiar with pain that we automatically attribute every new symptom to endometriosis. We push through. We soldier on. We tell ourselves, "I've been through worse."
But what happens when it's not just endo?

This past Monday, I went to hospital because, besides my worsening pain, I had a strong feeling that something was not right.
When I arrived, my blood pressure was dangerously high. My reading was 185/105.
I underwent an MRI and a kidney sonar. I was subsequently informed that my blood pressure and prolonged use of pain medication may have affected my kidney health. I am now taking five daily medications for high blood pressure.

I am sharing this because this is the second time I have almost lost my life by staying home while my symptoms worsened.
The first time was a ruptured ectopic pregnancy.

This time, I almost convinced myself to keep pushing through.
Ladies, please listen to your bodies. ❤️

🔸 New pain deserves investigation.
🔸 Worsening symptoms deserve attention. 🔸 Symptoms that feel different from your usual endometriosis should not automatically be dismissed as endo.
🔸 Pain medication can help us manage pain, but prolonged use requires medical supervision.

You deserve healthcare that looks at the whole you, not just your endometriosis diagnosis.

Please seek medical attention when something feels wrong. Don't wait until your body forces you to.

From one endo sister to another: Your life matters. Your health matters. YOU matter. 🤍

Blessed week ahead.

With love,
Thembi Kunene
Founder | Endometriosis Awareness & Dignity SA 💛

31/08/2026

🌻 BEYOND THE DIAGNOSIS — AND BEYOND WHAT I IMAGINED 🌻

I’m still trying to process what happened on Saturday. 🥹💛

When I started planning Beyond The Diagnosis, my hope was simple: to create a safe space where women could come together, learn, ask questions, share their experiences and feel seen beyond their diagnoses.

But what happened in that room was so much more.

We had healthcare professionals who didn't simply arrive, speak and leave.

🧠 Louise van Wingerden, Clinical Psychologist, stayed engaged with us and became part of the conversation. She brought such warmth and insight to the emotional side of living with chronic illness.

👩🏾‍⚕️ Dr Phuti Khomotso Ratshabedi, Specialist Obstetrician & Gynaecologist, came in with such a relatable, warm and down-to-earth energy that honestly… sometimes you could forget we were sitting with a specialist! 😂

He had that “nice guy next door” energy, and everyone connected with him so naturally. There was laughter, honesty, questions and genuine conversation.

And both of them stayed for almost the entire event. ❤️

That meant so much to me.

🌼 Corli Bruni, our Women's Health & Pelvic Floor Physiotherapist, didn't just speak to us about the body — she brought equipment and actually took us through breathing exercises.

For a moment, we weren't just sitting and listening.

We were breathing. We were slowing down. We were learning how to reconnect with our bodies. 🫶🏾

We also heard from women with lived experience, including Endometriosis activists reminding us that behind every diagnosis is a real person with a real story.

And then there were the questions.

SO. MANY. QUESTIONS. 😂😭

And that is exactly what I wanted.

Because Beyond The Diagnosis was never meant to be a lecture.

It was meant to be a conversation.

A conversation about the things we don't always talk about:

💛 Mental health
💛 Chronic pain
💛 Pelvic health
💛 Women's health
💛 Relationships
💛 Family
💛 Identity
💛 Being heard
💛 Being believed
💛 Learning to live beyond a diagnosis

I walked into that event feeling incredibly sick, dizzy and completely exhausted.

But I walked away with my heart so full.

To every speaker who gave their time.

To every woman who shared her story.

To everyone who asked a question.

To everyone who listened.

To everyone who donated.

To everyone who helped behind the scenes.

THANK YOU. 🙏🏾💛

And to the women who were sitting in that room wondering if anyone truly understands what they're going through:

We see you.
We hear you.
You are not your diagnosis.
You are so much more.

This was only the beginning. 🌻

BEYOND THE DIAGNOSIS

Educate • Support • Empower

💛 Endometriosis Awareness & Dignity SA

28/08/2026

🚨 1 DAY TO GO! 🚨

The countdown is officially OVER tomorrow! 💃🏾💃🏾💃🏾

We're bringing together women, activists and healthcare professionals for honest conversations around Endometriosis, Adenomyosis and other womb health conditions.

And yes… it's FREE! 🥳💛

📍 Savannah Hills Estate Club House
📅 29 August 2026
⏰ 11AM – 3PM

Beyond The Diagnosis — because there is so much more to our stories.

24/08/2026

Good Morning womb warriors and womb support warriors

The countdown has officially begun 💃🏽💃🏽💃🏽.
We are less than a week from the Beyond The Diagnosis Wellness Event 🤩

If you have any questions you would like the Doctors to address please let me know, they want to cater their presentations to our needs.

We have a Gynaecologist, Psychologist, physiotherapist and leadership coach.

Remember this event is for anyone diagnosed and living with:
🩵 Uterine Fibroids
❤️ Adenomyosis
💛 Endometriosis
🩷 Period Pains /
Dysmenorrhea
💜 Gynecologic Cancers
🧡 PCOS/PMOS or Ovarian
Cysts
💚 Infertility
🤍 Womb warriors
supporters who would
like to better
understand how to
support their loved
ones living with womb
conditions.

♀️This is not a gender specific event therefore come with your spouses, partners, besties, friends...etc ♂️

If you have not rsvp as yet please do. This event is going to be amazing, you don't want to miss out 🤩

See you there 💛💜🤍🩵🧡💚🩷❤️

Thank you.

03/08/2026

✨ Meet Our Expert Speakers ✨

I'm incredibly honoured to introduce the inspiring women who will be joining us at Beyond the Diagnosis – A Women's Wellbeing Event.

💛 Louise van Wingerden
Clinical Psychologist
🧠 Helping women navigate the emotional impact of chronic illness, anxiety, grief, and building resilience.

💛 Corli Bruni
Physiotherapist
🌼 Sharing how pelvic floor physiotherapy can support women living with Endometriosis, Adenomyosis, chronic pelvic pain, and other womb health conditions.

💛 Nozinhle Ntombela
Consultant & Leadership Coach
🌻 An Endometriosis Ambassador who will inspire us to move from surviving to thriving by reclaiming identity, confidence, and purpose.

Together, these incredible women will help us look beyond the diagnosis and remind us that healing involves our minds, bodies, and sense of self.

📅 Saturday, 29 August 2026
🕚 11:00 AM – 3:00 PM
📍 Midrand (Venue details provided upon RSVP)
🎟️ FREE ENTRY

💛 Instead of an entrance fee, we welcome donations of: 🩷 Sanitary pads 🧦 Socks 🫖 Hot water bottles

These donations will go towards supporting women living with Endometriosis and other womb health conditions.

📲 RSVP: 081 236 1616 📧 [email protected]
Let's educate, support, empower—and remind every woman that she is not alone.

26/07/2026

💛 Beyond the Diagnosis – A Women's Wellbeing Event 💛

A diagnosis is only the beginning of the journey.

Join us for a day of education, support, healing, and hope as healthcare professionals discuss the emotional, physical, and mental impact of living with Endometriosis and other womb health conditions.

🧠 Learn about mental wellness and coping with chronic illness.
💛 Discover how pelvic floor physiotherapy can improve quality of life.
👩🏽‍⚕️ Hear from a gynaecologist about Endometriosis, Adenomyosis, Fibroids, PCOS, and other womb health conditions.

📅 Saturday, 29 August 2026
📍 Midrand (Venue details provided upon RSVP)

This event is open to anyone living with Endometriosis, Adenomyosis, Fibroids, PCOS, chronic pelvic pain, infertility, or any other womb health condition.

📲 RSVP: 081 236 1616
📧 Email: [email protected]

Let's move Beyond the Diagnosis—because you are more than your condition, and you don't have to face it alone. 💛🌻

04/07/2026

Something special is coming... 💛

Endometriosis Awareness & Dignity SA is excited to announce our first Women's Wellbeing & Support Event, bringing together healthcare professionals to discuss the emotional, physical, and financial realities of living with Endometriosis and other womb health conditions.

📅 Saturday, 29 August 2026
📍 Johannesburg (venue to be confirmed)

This will be a safe space to learn, ask questions, connect with others, and leave feeling empowered.

More details, including our venue and speaker line-up, will be announced soon.
We can't wait to share this day with you. 💛

21/06/2026

Happy Father’s Day to every kind of dad 💛

✨ Fathers in waiting
✨ Fathers to fur babies
✨ Fathers who choose love every single day

To the partners of women living with Endometriosis, infertility, and chronic pain—thank you for being a safe place to land.

Your love matters. Your presence matters. You matter.

20/06/2026

🥶❄️ Cold weather isn't just uncomfortable for Endo warriors and people living with chronic pain,it can mean more pain, fatigue, stiffness, flares and longer recovery times.

Many of us spend winter fighting battles that can't be seen. We may look fine on the outside, but our bodies are working overtime just to get through the day.

This winter, please choose compassion. Believe us. Validate us. Support us.

💛 To every Endo warrior and chronic pain fighter: needing extra rest and warmth is not weakness,it's self preservation.

18/06/2026

Doctor's appointments can be terrifying when you've spent years fighting to be believed.

For many Endo warriors, medical anxiety isn't irrational—it's a response to years of pain, dismissal, and delayed diagnosis.

Please be kind to yourself:📝 Write down your symptoms.👭 Bring someone you trust.💛 Give yourself grace if you forget what was said.

Living with Endometriosis is hard enough. You shouldn't have to carry the burden of advocating for yourself alone.

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