Noah's fight against fanconi anemia

Noah's fight against fanconi anemia Noah is fighting his toughest battle, Fanconi Anemia� This page is about awareness and hope.

Today, Noah has reached his 100-day milestone post-transplant, and my heart is overflowing with gratitude.One hundred da...
19/06/2026

Today, Noah has reached his 100-day milestone post-transplant, and my heart is overflowing with gratitude.
One hundred days ago, we stepped into the unknown, holding tightly to faith and trusting God to carry us through. There were moments of fear, uncertainty, tears, and countless prayers. Yet through every challenge, God's hand never left Noah's side.
Today is more than just a number. It is 100 days of grace, 100 days of strength, 100 days of miracles, and 100 days of seeing God's faithfulness unfold before our eyes.
To everyone who prayed, supported, encouraged, and walked this journey with us, thank you. Every prayer mattered. Every message brought hope. Every act of kindness reminded us that we were never alone.
Most importantly, we give all glory to God. He has been our refuge in the storm, our strength when we were weak, and our hope when the road seemed impossible. Noah's journey is a testament to His goodness, mercy, and unfailing love.
As we celebrate this milestone, we continue to trust God for complete healing, continued health, and many beautiful days ahead. Noah's story is proof that miracles still happen and that God is faithful through every season.
100 days down, and by God's grace, many more blessed days to come.
"Give thanks to the Lord, for He is good; His love endures forever." – Psalm 107:1 ❤️

After transplant💙The days that felt like centuries leading up to engraftement day. The fears I still get at every check ...
19/06/2026

After transplant💙

The days that felt like centuries leading up to engraftement day.
The fears I still get at every check up. The constant worry still that I don't think will ever go away. The new normal.

But then I look at you now and a small piece of my heart heals because not only did you fight the hardest battle of your life. You fought it with absolute strength and courage! I look at you now and even thou our fight is far from over I'll continue looking at you with amazement because I've never seen someone so small yet so strong.
I can't wait for what the future holds for you because I know no matter what we've got this! You've got this! Ive got you! Always !

During transplant💙Seeing your baby get sick while fighting for their life and all you can do is sit, pray, hope and enco...
19/06/2026

During transplant💙

Seeing your baby get sick while fighting for their life and all you can do is sit, pray, hope and encourage him to keep fighting while inside you battling your own demons! Wondering if this was the right decision wondering if better days are actually coming and if they are .... when?
Then comes the side affects seeing your boy battle diarrhea, vomiting, hair falling out, battling to eat, oxygen level going low, temperatures,shaking and all you can do is try and comfort them and pray that the cells grow soon because you need him to be better.
Trying to answer his questions when am I going to feel better ? Is it going to get better? Why did we have to do this? Then the worst sentence Ive ever heard! MOM I DONT WANT TO DO THIS ANYMORE how do you stay strong while your baby is at this point.

Before transplant. 💙 The days that led up to transplant were filled with prayers, tears, fear and so much hope.There's s...
19/06/2026

Before transplant. 💙
The days that led up to transplant were filled with prayers, tears, fear and so much hope.

There's something about signing papers to let your child have a transplant to save them but could possibly make them worse that altered my brains forever.
Knowing that this is the way for him to have a healthy life but so afraid of the unknown.
Walking into a hospital with what I thought was a healthy child only for him to become sick in order to get better broke something in me I don't think will ever heal.

Officially discharged from Red Cross Hospital ❤️
02/06/2026

Officially discharged from Red Cross Hospital ❤️

💙 Wings and Wishes thank you so much for your massive part of our journey! For our flight up, for funding our family to ...
02/06/2026

💙 Wings and Wishes thank you so much for your massive part of our journey!
For our flight up, for funding our family to visit, for our flight back home.
Your work is exceptional and i truly appreciate so much 💙
Wings and Wishes

Day 69.Had our check up today, our Dr here said that he did some more research on Fanconi Anemia and with it Noah will h...
19/05/2026

Day 69.
Had our check up today, our Dr here said that he did some more research on Fanconi Anemia and with it Noah will have to be on all medications for atleast 9 months up to a year, not 100 days like normal transplants.

He's going to contact our Dr at home closer to the time to see if she's willing to carry on the treatment but via him where he'll adjust the medications if needed.

Praying that she'll be willing to carry on our treatment 💙

Please all prayer warriors pray that she does, if not we'll have to stay in Cape Town till treatment is done 💔😥

19/05/2026



A mother’s instinct changed everything.

This past Mother’s Day, we reflected on the strength of mothers who carry their children through fear, uncertainty, treatment and hope.

When Noah’s mom noticed something was not right, she trusted her instinct and sought help. That decision led to a diagnosis no parent is ever prepared for, a rare genetic blood disorder called Fanconi Anaemia.

From hospital stays and biopsies to a stem cell transplant journey, Noah and his family have faced each challenge with courage and resilience.

Through it all, one message remains clear: no family should walk the childhood cancer journey alone.

We continue to honour every person who steps into a mothering role with love, care and strength, even on the hardest days.

Nurses that make a diffrence 💙 She was the one that helped me through the night with Noah when he had the ATG side effec...
19/05/2026

Nurses that make a diffrence 💙

She was the one that helped me through the night with Noah when he had the ATG side effects of shaking and vomiting not all nurses will stay helping until early hours of the morning. She was the one that told the doctor Noah doesn't need a feeding tube and walked out when they put 1 in( which he pulled out twice😶)

This nurse honestly saw me at my absolute lowest! Truly broken.

It was absolutely amazing to bump into her.💙

A nurse ill never forget!

Day 30 💙We had another consultation with the professor today.Noah’s urine test results came back clear, and he said we c...
10/04/2026

Day 30 💙

We had another consultation with the professor today.
Noah’s urine test results came back clear, and he said we can finally relax a little.
His blood results are still looking good! We’ll get a call if there’s any need to adjust his cyclosporine levels.

And the best news — there’s no CMV virus detected 🙌🙌

If you would like to support Noah’s journey, you can do so here:
https://www.backabuddy.co.za/campaign/noahs-fight-against-fanconi-anemia

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