South African Haemophilia Foundation

22/06/2026

In an emergency, every second matters.

A medical alert bracelet, necklace, or card can provide critical information to healthcare professionals when a person is unable to communicate. For people living with haemophilia and other inherited bleeding disorders, this information can help ensure appropriate care is provided as quickly as possible.

A medical alert should include:
• Your bleeding disorder diagnosis
• Any inhibitors (if applicable)
• Emergency contact details
• Your treatment centre information

Do you have a medical alert?

If not, the South African Haemophilia Foundation may be able to assist. Contact SAHF to find out more about obtaining a medical alert.

Because in an emergency, the right information can make all the difference.

16/06/2026

On Youth Day 2026, we honour the courage of the young people of 1976 and we recommit to a future worth building for the young people of today.

For children and young people living with bleeding disorders in South Africa, that future includes:
• Earlier diagnosis, so they do not lose years waiting for answers
• Access to treatment, so a bleed does not become a complication
• Education, so they understand their condition and can advocate for themselves
• Community, so they know they are not alone

SAHF continues to work toward a South Africa where a child's access to care does not depend on where they were born, which school they attend, or which hospital is closest.

Happy Youth Day. The work continues.

10/06/2026

World Blood Donor Day falls on 14 June every year.

For most people, donating blood is an act of generosity for a stranger. For people living with bleeding disorders, access to safe blood and plasma-derived products can be the difference between a manageable condition and a life-threatening crisis.

Blood donation matters, not just in emergencies, but as a consistent part of care.

04/06/2026

01/06/2026

Save the date!

We're excited to invite Healthcare Professionals to the SAHF MASAC Educational Symposium 2026.

This year's theme is Thinking Outside the Box, two days of learning, sharing and connecting around better care for people with bleeding disorders.

Date: 13–14 November 2026
Venue: Premier Hotel O.R. Tambo, Johannesburg

Whether you're a healthcare professional, a researcher or payer, funder, manufacturer , there's a place for you here.

The full programme and registration details are coming soon, for now, pop the dates in your diary and keep an eye on this page.

Read more about the SAHF MASAC Educational Symposium:
https://haemophilia.org.za/save-the-date-the-sahf-masac-educational-symposium-returns-this-november/

01/06/2026

Learn more: https://haemophilia.org.za/save-the-date-the-sahf-masac-educational-symposium-returns-this-november/

30/05/2026

Strong healthcare systems are built through preventative care, education, and community collaboration.

According to the World Federation of Hemophilia, an estimated 1.1 million males worldwide live with haemophilia, and the majority remain undiagnosed.

Without diagnosis, access to treatment, education, and proper care remains out of reach.

This is why awareness matters.
This is why education matters.
And this is why strong healthcare communities matter.

Earlier diagnosis and better support systems can help reduce complications, improve quality of life, and strengthen long-term patient outcomes.

Improving bleeding disorder care requires all of us working together, patients, caregivers, healthcare professionals, treatment centres, and advocates.

20/05/2026

Home therapy and self-infusion training can change daily life for people living with bleeding disorders.

With the right training and support, patients and caregivers can respond to bleeds earlier, reducing delays in treatment and unnecessary hospital visits.

This can also mean:
• fewer missed school days
• less time away from work
• lower travel costs
• greater independence and confidence
• reduced pressure on families and caregivers

For many families, access to home therapy is not only about healthcare.
It is about stability, dignity, and quality of life.

Home therapy and self-infusion training must always be guided by the appropriate healthcare team.

12/05/2026

Thank you to everyone who attended the SAHF Biennial General Meeting today. Your participation and continued support are deeply appreciated.

Please take note of the following important dates:

• SAHF Elections/Voting: 6 June 2026
• Nominations Close: 15 May 2026

Nomination Form:
https://docs.google.com/forms/d/e/1FAIpQLSe2KY7jtUHDqUvWqh4PywoK72_OajC8SGMNmFPPf6-iff4etw/viewform?usp=dialog

We also kindly request all community members, patients, caregivers, and healthcare professionals to update their contact information using the link below so that we can improve communication and community outreach:

Update Your Information Form:
https://docs.google.com/forms/d/e/1FAIpQLScgLtIqijUdf4g60ofeY7EyHcqmFDN07SFchKSKc1yZyMwR3w/viewform?usp=dialog

Please also encourage other patients and families within the bleeding disorders community to complete the form.

Thank you for helping us strengthen and grow the SAHF community.

06/05/2026

Join us for the SAHF Biennial General Meeting happening online on May 9, 2026!

We invite patients, caregivers, healthcare professionals, and partners to engage in impactful discussions that will shape the future of our organization and the community we are dedicated to serving.

Date: 9 May 2026
Time: 09:30 - 11:30
Meeting Link:
https://meet.google.com/cqh-ogrc-ruo

Don't miss this opportunity to make your voice heard!