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HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

07/10/2026

💜 What does HAE actually mean?
HAE stands for Hereditary Angioedema, and understanding the name is a great first step towards understanding the condition.

🧬 Hereditary relates to genetics and inheritance. 🩸 Angio refers to blood vessels. 💧 Edema means swelling.

Together, these words describe a rare genetic condition that causes recurring episodes of swelling in different areas of the body.

The more we understand HAE, the better we can recognise the signs, raise awareness and support those living with the condition. 💙💚💜

📌 Save and share this post to help spread HAE awareness.

24/09/2026

🇿🇦💜 Happy Heritage Day, South Africa!
Today, we celebrate the cultures, traditions, stories and people that make our country so beautifully diverse.

At HAE South Africa, we’re proud to be part of a community connected by support and the belief that no one living with HAE should feel alone.

Here’s to celebrating where we come from, embracing what makes us unique and standing together.

💙💚💛💜
Happy Heritage Day! 🇿🇦

08/09/2026

Living with HAE can be unpredictable, but staying informed and prepared can help you feel more confident in managing your condition.

Simple habits like keeping your prescribed medication accessible, knowing your possible triggers, carrying your HAE information and staying connected with your healthcare team can all form part of your personal HAE management plan.

Remember: HAE is different for everyone, and attacks can sometimes happen without an identifiable trigger. Always follow the individual treatment plan developed with your healthcare provider.

💙 Save this post as a reminder
💚 Share it with someone living with HAE
💜 Learn more on our HAE South Africa website

24/08/2026

💜 Women & HAE

Throughout a woman’s life, hormonal changes - particularly changes in estrogen, may influence the frequency and severity of HAE attacks.
From puberty and menstruation to pregnancy and menopause, understanding how your symptoms may change is an important part of managing HAE.

This Women’s Month, we’re encouraging women living with HAE to stay informed, speak openly with their healthcare providers and feel empowered in their care. 💚💙💛💜

Learn more about Women & HAE: www.southafrica.haei.org

09/08/2026

💜 Happy Women’s Day, South Africa! 🇿🇦
Today, we celebrate the strength, resilience and contribution of women across our country, including the incredible women in our HAE community.

To the patients, mothers, caregivers, advocates and supporters: we see you, we celebrate you, and we stand with you. 💚💙💜

30/07/2026

🦷 Dental procedures can trigger HAE swelling
Trauma to the mouth during dental treatment can cause oral swelling and may increase the risk of swelling affecting the throat or airway.

Before any dental procedure:
💙 Inform your dentist that you have HAE 💚 Consult your HAE-treating physician 💙 Make sure your treatment and emergency plan is up to date

Any swelling affecting the throat or airway requires immediate medical attention.

Find out more at the HAE South Africa website https://southafrica.haei.org

24/07/2026

🚨 HAE Emergency Information

If you or someone you know is experiencing an Hereditary Angioedema (HAE) emergency, contact the:

📞 National Angioedema Hotline
082 091 5684

For general life-threatening emergencies, always call 112 immediately.

💜 Save this post so you can access these numbers quickly when they’re needed most, and consider sharing it with your family, caregivers, friends or anyone who may need to assist you during an emergency.

TogetherWeCan

20/07/2026

Did you know? 💚💙💜
HAE SA is a support group for people living with hereditary angioedema in South Africa.

By joining HAE SA, you’ll have access to:

💚Reliable, patient-focused information, resources, and patient meetings.

💚Updates on HAE news, education, and awareness initiatives.

💚Opportunities to connect with other patients and families across South Africa.

Membership is free and open to anyone in South Africa with a confirmed diagnosis of HAE.

If you or a loved one has been diagnosed with HAE, we’d love to welcome you. D.M us to join and become part of our growing community.

Visit https://southafrica.haei.org for more!

HAESouthAfrica

25/06/2026

HAE affects more than physical health! ‼️
it can influence education, careers and everyday opportunities.

Whether it’s missing school due to an attack, worrying about falling behind, or navigating work while managing an unpredictable condition, the impact of HAE reaches far beyond the symptoms.
By raising awareness and fostering understanding, we can help create more supportive schools, workplaces and communities for everyone living with HAE 💜

Learn more about living with HAE by visiting our website:
https://southafrica.haei.org

08/06/2026

💬 Self-Care Tip: Connect with Others

Living with HAE can sometimes feel overwhelming, but support is just a conversation away. Connecting with other patients and families can provide reassurance, practical advice and a sense of community.

💜 Learn from those with lived experience
💙 Stay up to date with the latest developments in HAE
💚 Find support when you need it most

Together, we are stronger.

Visit https://southafrica.haei.org for more information!

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Johannesburg
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Website

http://haei.org/southafrica/

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