HAE South Africa

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HAE South Africa

HAE S.A is a patient support group aiming to raise awareness of Hereditary Angioedema in South Africa

08/06/2026

💬 Self-Care Tip: Connect with Others

Living with HAE can sometimes feel overwhelming, but support is just a conversation away. Connecting with other patients and families can provide reassurance, practical advice and a sense of community.

💜 Learn from those with lived experience
💙 Stay up to date with the latest developments in HAE
💚 Find support when you need it most

Together, we are stronger.

Visit https://southafrica.haei.org for more information!

25/05/2026

Living with HAE is about more than managing attacks. 💜
It can affect daily routines, plans, emotional wellbeing and peace of mind in ways many people may not realise.

Awareness, understanding and support matters!

Learn more 👉
https://southafrica.haei.org

18/05/2026

To celebrate HAE Day, 94 patients and caregivers from across South Africa came together for our patient meeting.

This gathering was made even more special as we hosted the very first in-person meeting for our youngsters community, with 26 young people attending. It was a day filled with connection, support, learning, and shared experiences - reminding us all that no one walks this journey alone.

Thank you to every patient, caregiver, youngster, supporter and industry representative who joined us and helped make the day so meaningful. Together, we continue to build a stronger HAE community in South Africa. 💙

16/05/2026

Happy Hae Day:) 2026 💜

You are seen.
You are supported.
You are not alone.

Hae Day is about awareness, community and standing together in support of everyone affected by this rare condition.

We continue to advocate for earlier recognition, faster diagnosis and better access to care!
Together, we can. 💜

15/05/2026

HAE SA looks forward to welcoming patients, caregivers, and medical professionals to our Patient Meeting 2026 in Cape Town on HAE Day, 16 May 2026.

We are excited to bring the HAE community together for a meaningful day of connection, learning, and shared experiences, and look forward to seeing all attendees there. 💜💙💚💛

11/05/2026

💜 Only 5 days to go until Hae Day! 💜 16 May 2026!

The countdown is on as we come together to raise awareness for Hereditary Angioedema and support the global HAE community. 🌍

Wear purple, get active and help us spread awareness.
One post, step and share at a time. 💪💜

Let’s make every voice count.

23/04/2026

Show us your purple, South Africa! 💜🇿🇦
Hae Day is coming up and we want YOU to be part of it.
Whether you’re walking, stretching, training or simply taking a moment for your wellbeing - do it in purple and tag using 💪💜

📸 Share your photos
💜 Wear your purple
🌍 Be part of the global movement

Let’s raise awareness together, one step at a time.

17/04/2026

💜 HAE Day is coming – 16 May 💜
We’re kicking off the one month countdown to a day dedicated to raising awareness, building community and supporting those living with Hereditary Angioedema.

We’re coming together through movement, connection and a shared purpose. 🌍

Join us by being in purple, so however you move, it counts 💜

Join the challenge 👉 https://haeday.org

Let’s raise awareness.
Let’s show support.
Let’s do it together. 💜

09/04/2026

DID YOU KNOW? 🗣🚨
Up to 25% of people with HAE did not inherit it from a parent, it can occur due to a spontaneous genetic mutation.
💡 This means even without a family history, HAE is still possible.

Learn more about HAE & genetics 👉
https://southafrica.haei.org/hae-for-me/

23/03/2026

HAE South Africa is made up of patients and carers who are in various stages of their HAE journeys. Our peer-to-peer programme allows patients and carers to make contact and support one another by sharing their stories.

💚💙 Want to chat to an HAE Buddy? Visit https://southafrica.haei.org/volunteers/ and fill in your details

Address

•
Johannesburg
•

Website

http://haei.org/southafrica/

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