ICPCN - International Children's Palliative Care Network

18/06/2026

Launch of the Close the Gap Campaign

18/06/2026

🌍 Today we launch : Palliative Care for Children Everywhere.

This new global campaign, coordinated through the WHO-convened Palliative Care Working Group, shines a spotlight on the inequities that leave millions of children without access to the palliative care they need.

We’re bringing together partners, advocates, healthcare professionals and policymakers to explore how we can work together to ensure every child and family receives the support they deserve.

Together, we can help close the gap.

17/06/2026

ICPCN is pleased to be attending the 4th Annual Palliative Care Symposium at Lagos University Teaching Hospital (LUTH), Lagos, Nigeria, over the coming days.

This year's theme, "Palliative Care in Practice: Communication, Spirituality, and Teaching for Sustainable Care in Nigeria," brings together professionals committed to strengthening palliative care services and improving outcomes for patients and families.

We are also delighted that our Chief Executive, Julia Downing, will be speaking at the symposium as part of this important programme.

We look forward to engaging in meaningful discussions, sharing knowledge, and learning from colleagues and partners working across the field.

15/06/2026

📍Training on integrating the Children’s Palliative Outcome Scale (C-POS) into routine clinical practice is currently underway at Lagos University Teaching Hospital (LUTH), Nigeria. 💙

Julia Downing, Chief Executive of ICPCN, shared the history and impact of the C-POS project, while Callie Daniels-Howell, Research Manager ICPCN, is co-facilitating the workshops with Dr Eve Namisango of African Palliative Care Association. Participants are also hearing from Prof Tonua Onyeka, President of Hospice and Palliative Care Association of Nigeria (HPCAN), on the importance of outcome measures in advancing children’s palliative care in Nigeria.

Together, participants are exploring how outcome measures can strengthen care for children and families. 📊✨

14/06/2026

Our team have arrived in Lagos for the C-POS workshop tomorrow to be held at Lagos University Teaching Hospital (LUTH) - Julia Downing, Callie Daniels-Howell, Eve Namisango and Juliet with Dr Ann Ogbenna from LUTH

14/06/2026

We are looking forward to Accra 2028 😀

This week the APCA Executive Director, Dr. Eve Namisango together with the Chief Executive of the ICPCN - International Children's Palliative Care Network, Prof Julia Downing were in Ghana and, among several other key activities, they carried out a Train the Trainer programme for the integration of the Children's Palliative Outcome Scale (C-POS) into routine clinical practice.

Of note is that the Ministry of Health, Ghana officially accepted to co-host the 9th International African Palliative Care Conference in Accra in 2028!!
Watch this space for further developments and a save the date

12/06/2026

It's been a fantastic few days in Ghana so far, bringing together healthcare professionals, educators and partners committed to strengthening children's palliative care.

Following the successful Train the Trainer programme, we're now focusing on the integration of the Children's Palliative Outcome Scale (C-POS) into routine clinical practice.

We're delighted that Dr Eve Namisango, Executive Director of the African Palliative Care Association, and Dr Barbara Sekyere are two of today's facilitators, sharing their expertise and experience with participants.

These photos feature some of our local Train the Trainer facilitators; Dr Barbara Sekyere and Dr Joyce Bening, PPC Practitioners, alongside ICPCN's Julia Downing and Alex Daniels; workshop participants and facilitators; and Dr Eve and Dr Barbara presenting during today's session.

It has been inspiring to see so much shared learning and commitment throughout.

11/06/2026

Our very own Alex Daniels is back in action today, delivering training on day two of the children's palliative care Train the Trainer programme in Ghana.

It's great to see colleagues from Ghana, Nigeria and beyond coming together to share knowledge, experiences and ideas, all with the shared goal of improving care for children and families.

10/06/2026

Collaboration in action. Our Chief Executive, Julia Downing, with Ayire Adongo, Regional Coordinator for World Child Cancer, during the CPC Train the Trainer programme in Ghana. Together with partners, we're helping to improve care for children and the families who support them.

10/06/2026

Join us on the 18th June! Together we can !

On 18 June, The International Children's Palliative Care Network (ICPCN) will launch : Palliative Care for Children Everywhere, a new global campaign focused on tackling the inequities that leave millions of children without access to the palliative care they need.
Register to learn more about the campaign, hear why children's palliative care is a global health priority, and explore how you can work together to ensure every child and family receives the support they deserve. This campaign brings together global partners, advocates, healthcare professionals, and policymakers to drive meaningful change and expand access to palliative care worldwide.
📅 18 June 2026
⏰ 1:00–2:30 PM (UK)
🔗 Register here: https://bit.ly/4fdH7XI
Together, we can help close the gap.