Australian Neurodivergent Parents Association - ANPA

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06/06/2026

NSW Health is advising people to be alert for signs and symptoms of measles after being notified of a confirmed case from Queensland who visited several locations across Sydney CBD while unknowingly infectious.

A full list of locations is available on the NSW Health website (www.health.nsw.gov.au/Infectious/measles/Pages/public-exposure-locations.aspx). Exposure locations and times are updated regularly.

People who attended these locations should watch for symptoms of measles. These locations do not pose an ongoing risk.

There have been 49 cases confirmed in NSW since 1 January 2026.

NSW Health Director of Communicable Diseases, Dr Christine Selvey said people should monitor for symptoms of measles, particularly if they have visited any of the exposure locations at the listed time.

Measles-mumps-rubella (MMR) vaccine is safe and effective and is given free for children at 12 and 18 months of age. It is also free in NSW for anyone born after 1965 who hasn't already had two doses.

Children under the age of 12 months can have an extra, early, dose of MMR from six months of age if they are travelling overseas. Parents should consult their GP.

People who are unsure of whether they have had two doses should get a vaccine, as additional doses are safe. This is particularly important prior to travel. MMR vaccine is available from GPs (all ages) and pharmacies (people over 5 years of age).

For more information on measles, view the measles factsheet (www.health.nsw.gov.au/Infectious/factsheets/Pages/Measles_Factsheet.aspx)

People can also visit the Australian Government Smart Traveller website for (www.smartraveller.gov.au) information on health risks, including measles outbreaks relevant to their travel destination.

If you, or a loved one, is experiencing measles symptoms, or have questions about measles, please call your GP or healthdirect on 1800 022 222.

04/06/2026

Dr Kristyn Sommer is braver than us!

It means the loss of legal rights for us, and our children.We call upon all providers of good conscience to resist, rath...
04/06/2026

It means the loss of legal rights for us, and our children.

We call upon all providers of good conscience to resist, rather than "make the best of" the stripping of rights from Disabled people.

If Australia proposed policy and legislation that would have the effect of converting pubs back to white only and Aboriginal only sections - would you support that regression?

Or would you say no, that's ridiculous, prejudiced and backwards in 2026.

Is it right that Autistic people, and people with psychosocial Disabilities are having their legal right to individualised Disability supports stripped from them - while others are not? Despite their clear and demonstrated need?

Are we less than non Disabled people? Do we deserve fewer rights or recognition before the law?

Jenny McAllister

First-hand insights from industry leaders

Smiling at all the lovely photos of our members and fave humans bumping into each other at the Yellow LadyBugs conferenc...
03/06/2026

Smiling at all the lovely photos of our members and fave humans bumping into each other at the Yellow LadyBugs conference!

Our President gives her apologies for not attending (again) because in her words "I don't like people (in groups)."

Which probably makes a conference pointless really.

However: we all love seeing you together. Like, so much.

[Image: a picture of advocate Kristie Shaw and Michael Coles of The Deep Dive Au podcast]

Yellow Ladybugs 💛

03/06/2026
this is shameful.
03/06/2026

this is shameful.

**EDIT: SEE MY LATEST POST FOR THE UPDATE**

"Cut Off from NDIS"
(28.5.26)

Thursday last week, without warning, our family's world was turned upside down.

As you all know, my name is Leah, and I am the mother of a beautiful 6-year-old boy named Grayson who has complex disabilities, epilepsy, autism, sensory processing difficulties, feeding challenges, and significant support needs.

After years of managing Grayson's NDIS supports, I was informed that his plan has been changed from plan-managed to agency-managed. Overnight, this has left us unable to access many of the therapists and support workers who know Grayson best and have supported him for years.

These are not just service providers. These are people who understand his seizures, know how to keep him safe, understand his communication needs, know how to manage his feeding difficulties, and have worked incredibly hard to help him make progress.

Children like Grayson cannot simply start again with strangers.

The NDIS talks about participant choice and control, yet this decision has removed our ability to choose the supports that are working for our son. We are now facing cancelled services, uncertainty, and the very real risk of regression in areas that have taken years to build.

My biggest fear is that while bureaucratic processes continue, Grayson is the one who pays the price.

No child with complex disabilities should lose access to essential supports overnight because of an administrative decision. We had puree foods in Graysons plans for years! Without being specifically told it wasnt in there, we continued his puree food orders (baring in mind this is Graysons absolute lifeline). Then our plan managers claimed a seizure camera for our son with epilepsy! (How dare we try to keep him alive and safe)!!

I am asking the NDIS to urgently review this decision and restore the flexibility we need to continue accessing the supports that keep Grayson safe, progressing, and thriving.

I've been asking since Thursday, my support coordinator and Wanslea are also disgusted with it. Yesterday I've got our MP involved (currently waiting to hear back). This level of stress and upset has caused sleepless nights, exhaustion, more tears than I can count.

I started the most amazing job 5 months ago supporting a beautiful 3 year old & his family. I absolutely love my job (can barely even call it a job), which I currently cant do due to having no supports myself for Grayson.

I honestly CANNOT wait for this nightmare to end.

9 News Perth
7NEWS Perth
10 News Perth
The West Australian
WAtoday.com.au

♥ The Positive Case for the NDIS: Evidence of Social, Economic and Human BenefitPublic discussion about the National Dis...
01/06/2026

♥ The Positive Case for the NDIS:
Evidence of Social, Economic and Human Benefit

Public discussion about the National Disability Insurance Scheme (NDIS) is increasingly framed around expenditure, sustainability, fraud prevention and cost containment. While fiscal responsibility is important, a complete policy assessment must also consider what the Scheme currently enables.

The relevant question is not simply what the NDIS costs. The relevant question is what Australia gains from adequate disability support, and what may be lost if those supports are reduced, delayed or transferred back onto families and mainstream systems.

The evidence reviewed in our submission to the NDIS Bill inquiry and in our survey work suggests that the NDIS performs important social, developmental, economic and rights-protective functions.

These benefits are reflected in the Productivity Commission's original rationale for the Scheme, NDIA outcomes reporting, the findings of the NDIS Review, peer-reviewed research, and the lived experiences reported by ANPA community members.

Importantly, many of the harms respondents anticipate under the proposed reforms are the direct inverse of benefits they currently experience through individualised supports.

So...how does the NDIS help?

1. Family Sustainability and Reduced Caregiver Burnout

One of the clearest findings emerging from ANPA's survey data is that the NDIS helps families remain sustainable over time.

Across both quantitative and qualitative responses, families repeatedly described disability supports as reducing exhaustion, preserving parental capacity, preventing crisis, and making ordinary family life possible.

This finding is particularly significant given that ANPA's survey found that 94.8% of respondents anticipated increased parent burnout if proposed reforms proceed, while 84.5% anticipated worsening physical health due to care stress and exhaustion. These concerns reflect the importance families already place on the support infrastructure provided through the Scheme.

Respondents described NDIS supports as helping reduce pressures that would otherwise fall entirely upon family members:

> "Communication at home, sibling relationship, lower level of parental burnout."

> "Participants are provided with necessary supports that burnt out parents can't. Increases everyone's capacity to have quality of life and independence."

> "Having a support worker helping manage things has reduced stress and energy drain."

These experiences align with broader evidence demonstrating that disability support affects not only participants but entire households. The NDIA's own outcomes reporting shows increasing rates of workforce participation among families and carers and recognises family outcomes as a distinct area of measurement.

The NDIS therefore functions not merely as an individual support program but as a mechanism that helps preserve family capacity and prevent caregiver collapse.

2. Improved Wellbeing and Mental Health

Respondents consistently described improved emotional wellbeing, reduced distress, and enhanced quality of life resulting from individualised supports.

Families reported that therapies, support workers, allied health services and disability-specific supports helped children and adults better understand themselves, regulate emotions, communicate needs, and participate more fully in daily life.

One parent shared their child's reflection:

> "It helped me regulate my emotions better, understand what's happening in my body and brain, tell people what I need, and feel like my brain isn't bad, it's just different."

Others described reduced anxiety, fewer meltdowns, improved communication and greater confidence.

These experiences align with NDIA outcomes reporting that has documented improvements across wellbeing, confidence, social participation, independence and life satisfaction among participants.

This is particularly important because many disability-related mental health challenges arise not from disability itself, but from exclusion, unmet support needs, chronic overload and inaccessible environments. Appropriate supports can reduce these pressures and improve wellbeing for both participants and their families.

3. Educational Participation and Development

The survey data indicates that many families experience the NDIS as a critical enabler of educational participation and developmental progress.

Respondents repeatedly described supports helping children attend school, engage in learning, communicate effectively, and participate more successfully in educational settings.

Examples included:

> "It allows her to attend school and manage everyday tasks that we would expect for someone her age."

> "Early intervention has led to age-appropriate speech and language outcomes."

> "Without support my child would not be able to access school in a meaningful way."

These accounts are consistent with broader evidence showing that early intervention and individualised supports can improve developmental outcomes, communication, participation and educational engagement.

For many children, disability supports do not simply enhance education. They make participation in education possible.

4. Independence, Capacity Building and Future Participation

A central purpose of the NDIS is to increase independence and social and economic participation.

Survey responses strongly reflected this objective.

Families described children and adults learning practical life skills, improving communication, increasing self-confidence, developing emotional regulation, and becoming more capable of managing everyday activities.

Respondents reported outcomes including improved self-care, improved personal hygiene, better communication, greater confidence navigating the community, and increased autonomy.

Examples included:

> "She now talks, can dress herself, fewer meltdowns and with less intensity."

> "Learning new things from basic hygiene through to advanced interests."

> "Preparing her for life as an adult that contributes to the community."

These outcomes reflect the original vision of the Scheme as an investment in capability rather than dependency.

5. Community Participation and Social Inclusion

Community participation is one of the central objectives of both the NDIS Act and Article 19 of the Convention on the Rights of Persons with Disabilities.

Respondents frequently described supports enabling community access that would otherwise be impossible.

Examples included participation in sport, recreation, community activities, social groups, public spaces, family events and peer relationships.

Families reported:

> "Having a support worker allows him to access community activities."

> "Need for support to do basic activities in the community."

> "Enabling us to connect with friends and family."

These outcomes illustrate that disability support is not solely about personal care or therapy. It is also about ensuring disabled people can participate in ordinary community life on an equal basis with others.

6. Economic Participation and Workforce Capacity

The economic contribution of the NDIS extends beyond participant funding.

The Scheme supports a workforce of hundreds of thousands of disability support workers, allied health professionals, behaviour support practitioners, support coordinators, transport providers, assistive technology suppliers and associated services. The NDIS Review estimated approximately 325,000 workers currently support participants, families and carers, with substantial additional workforce demand projected.

At the household level, disability supports also affect labour force participation.

The NDIA reports that more than half of families and carers participating in outcomes surveys report paid employment. This reflects the reality that adequate support can reduce unpaid care burdens and increase capacity to work, study and participate economically.

Survey respondents repeatedly linked NDIS supports to future employment and independence:

> "Building capacity to enable independence and employment."

> "He is on track to becoming independent and I see he would be able to work and gain meaningful employment."

These observations align with the Productivity Commission's original rationale that disability support should be viewed not solely as expenditure, but as social and economic infrastructure.

7. Crisis Prevention

Perhaps the most important theme emerging from ANPA's survey is that many families experience the NDIS as a protective factor against crisis.

Families described supports helping them maintain stability, sustain caring relationships, navigate complex needs and remain together during periods of significant stress.

This is particularly important for sole-parent households, disabled parents, families experiencing poverty, rural and remote families, and households supporting children with high support needs.

Survey respondents repeatedly described supports as the difference between coping and crisis.

One respondent wrote:

> "Come and spend a day in our home and see what life looks like without support. If support is withdrawn, families like ours end up deep in the psychiatric and emergency healthcare system, with increased risk of su***de and extreme social isolation."

The significance of this statement extends beyond individual experience. It highlights a broader policy reality: where disability-related support needs remain unchanged, reducing supports does not eliminate those needs. Instead, the labour, risk and responsibility are transferred elsewhere, often to families, health services, schools, crisis systems and unpaid carers.

The NDIS is Critical, Essential National Social Infrastructure

Taken together, the evidence suggests that the NDIS performs functions that extend far beyond the provision of funded services.

It supports educational participation, emotional wellbeing, independence, employment, family sustainability, community inclusion, crisis prevention and long-term social participation. It helps families remain together. It allows parents to continue caring. It helps children access education. It enables disabled people to participate in community life and exercise rights Australia has committed to uphold under the Convention on the Rights of Persons with Disabilities.

The anticipated harms identified by respondents closely mirror the inverse of these benefits. Parent burnout is the inverse of family sustainability. Social isolation is the inverse of community participation. Financial stress is the inverse of economic participation. Family breakdown is the inverse of family preservation. Reduced independence is the inverse of capacity building.

This relationship is important because it suggests that the NDIS should not be understood solely through a budgetary lens.

The Scheme represents a form of national social infrastructure. Like schools, hospitals and transport systems, its value cannot be measured solely by annual expenditure. Its value is reflected in the opportunities it creates, the crises it prevents, the participation it enables and the rights it helps make real.

The evidence reviewed in our submission indicated that these functions are substantial, socially valuable and worthy of the protection of all Australians.

And protect it we shall ♥

31/05/2026

We deal with this a lot in The ANPA.

People love to criticise us behind close doors, gossip about us, and generally treat us poorly.

But when there is something they need they will come and ask, every time.

And you know - we will help every time (within reason).

Because how we carry ourselves in the world is a statement about us, as people and as an org. We are here for the community. So even if someone is really unkind, we will always engage in work that will keep our children and ourselves safer.

We do that not because we forgive and forget but because the work is bigger than any of us. And good orgs stay focused on that. Good advocates.

❤️

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