Single Ventricle Outcomes NEtwork

14/08/2025

NPC-QIC and FON have become the Single Ventricle Outcomes NEtwork (SV-ONE)! Don't miss our upcoming Fall Learning Session in Indianapolis, Indiana! Check out the post below on the SV-ONE page for details!

Registration is now open for our Fall 2025 Learning Session! We are excited for another learning session packed with opportunities to build a stronger sense of community, hear about the network's latest work, and share learnings. Our Single Ventricle Patient Day committee has planned a special breakout track for the two days of the learning session designed for individuals with SVHD ages 14 and up! Registration is free for individuals with SVHD, family members, and caregivers! Visit https://www.svone.org/events/fall-2025-learning-session for additional details and to register! We cannot wait to see you in Indianapolis!

26/06/2025

The Quality Improvement Workgroup is accepting applications for a few more days! Learn more about the opportunity below and submit your application by June 30 if you are interested in supporting QI work for SV-ONE!

Apply to join the SV-ONE Quality Improvement Workgroup by June 30! The Workgroup is seeking new volunteers to join beginning this summer. Terms are two years-long with opportunity for extension. We welcome multi-disciplinary perspectives, individuals with SVHD, & family members to this team. Details: https://buff.ly/7EWGLok

10/06/2025

Apply to join the SV-ONE Quality Improvement Workgroup by June 30! The Workgroup is seeking new volunteers to join beginning this summer. Terms are two years-long with opportunity for extension. We welcome multi-disciplinary perspectives, individuals with SVHD, & family members to this team. Details: https://buff.ly/7EWGLok

29/05/2025

Last call to join the Single Ventricle Patient Day (SVPD) Planning Committee! Committee members help plan and coordinate SVPD for our Fall Learning Session! All individuals with single ventricle aged 14+ are encourage to apply ASAP at https://buff.ly/Wh9rhHm

21/05/2025

So many exciting updates were shared during our State of the Networks presentation this morning during our Spring 2025 Virtual Learning Session!

21/05/2025

Grab a fresh cup of coffee and get ready to join us for today's Spring Virtual Learning Session! Attendees, please check your email for login details. You can begin joining the Zoom call at 10:55 a.m. ET! Visit https://www.fontanoutcomesnetwork.org/events/spring-2025-virtual-learning-session for additional information!

The FON and NPC-QIC learning sessions serve as valuable opportunities for our learning health network communities – patients, parents, caregivers, clinicians, researchers, and other care center team members – to come together to build a stronger sense of community, learn about both networks' lat...

08/05/2025

We have some exciting Breakout Sessions planned during our Spring 2025 Virtual Learning Session! Clinicians, individuals with single ventricle heart disease, and their family members are welcome to attend on May 21! Registration is free and only takes a few minutes! Visit https://www.npcqic.org/events/spring-2025-virtual-learning-session to view the full agenda and register today!

25/04/2025

Our Spring 2025 Virtual Learning Session is less than a month away on May 21! This year's theme is Transitions. Will you be joining us? Visit https://www.npcqic.org/events/spring-2025-virtual-learning-session for additional details and to register!

25/04/2025

Check out this special webinar opportunity from our partners Sisters by Heart and Fontan Outcomes Network!

14/04/2025

A new Research Explained summary is available on the NPC-QIC website! To learn more about Characteristics and Survival Outcomes of Hepatocellular Carcinoma After the Fontan Operation, or view other summaries, visit www.npcqic.org/research-explained!