St. Louis Rett Syndrome Strollathon

03/10/2026

What an incredible, beautiful day!! 31 families represented today and $92,500+ raised! Thank you for showing up for all of those living with Rett!
The website will stay open until the end of the year!
We will post many more pictures in the coming weeks, but feel free to drop yours below!!

03/10/2026

We'll see you soon!

02/10/2026

Can't wait to see you on Saturday!!

30/09/2026

Join us this Saturday!
1:00 Registration and activities begin (please note the IRSF email incorrectly stated that registration begins at 12:30!)
2:00 Purple carpet introductions and Stroll!
The J - St. Louis. 2 Millstone Campus Dr. Drive back to the large pavilion.

29/09/2026

Who We Stroll For - Lilly!
Lilly, 27, loves spending time with family and friends, going for walks with Harbor, listening to music and watching TV. She loves to travel and spends her time going to the gym, volunteering, doing music class and hanging out!
Join Lilly and her team this Saturday!!
Click here to support Lilly's Friends: https://give.rettsyndrome.org/lilly26

28/09/2026

Who We Stroll For - Thia!
Thia, 6, is a sweet, joyful girl who absolutely loves Gabby’s Dollhouse and anything with music! 🎶 She lights up when she’s surrounded by people, and her contagious smile has a way of putting everyone in a good mood. She has also really enjoyed being part of a soccer team! ⚽️💜
Mom says " This year marks our 5th Rett Syndrome Strollathon, and it means so much to our family. 💜 We go to show my daughter, Thia, that she is surrounded by love and support, while also standing alongside every little one and family affected by Rett syndrome. Every step helps raise awareness, hope, and support for a better future for all of our Rett kiddos. 💜"
Please join Thia and her family on October 3!

27/09/2026

Who We Stroll For - Sophie!
Sophie is 22 and continues to enjoy her music - Taylor Swift, Jonas Bros, P!nk, Madonna, & many more! She likes watching game shows, Scooby Doo & SpongeBob! She has recently joined College for Life through Lewis & Clark College and is enjoying meeting new friends and learning new things!
This is her 19th Stroll!
To make a donation to Team Sophie, please click here: https://give.rettsyndrome.org/team/841860

26/09/2026

25/09/2026

Who We Stroll For - Gio!
Gio, 12, absolutely loves school and has really become interested in science, especially anything ocean related. He enjoys spending time with his family, listening to music, camping, reading books, and watching movies. He’s the best big brother and loves taking care of those around him!
Mom says "Attending the stroll is one of our favorite days of the year, coming together with the Rett syndrome community fighting for awareness and a cure for Rett syndrome!"
To make a donation to Team Gio, please click here: https://give.rettsyndrome.org/event/2026-st-louis-strollathon/e805208/register/13455620/thank-you

24/09/2026

Who We Stroll For - Mila!
Mila is a sweet and sassy 6 year old girl who has an inspiring love for life. She enjoys four wheeler rides, Moana, Encanto, and the great pumpkin Charlie Brown. Her favorite foods are vanilla pudding and funnel cakes. Mila is loved by so many and is a joy to all know her!
Mom says "This is our fourth stroll! We are so thankful for the connection with other families. It’s so refreshing to feel understood. We are so thankful for the Strollathon and those who work so hard to make it happen!"
To make a donation to Mighty Mila's team, please click here: https://give.rettsyndrome.org/team/849740