Matthew Rau Vascular Ehlers-Danlos Foundation

  • Home
  • Matthew Rau Vascular Ehlers-Danlos Foundation
Website Contact the organization

Matthew Rau Vascular Ehlers-Danlos Foundation Our mission is to save lives & improve the quality of life of those living with VEDS.

Together, let’s make a difference. ❤️Too often, individuals with Vascular Ehlers-Danlos Syndrome (vEDS) face delayed dia...
09/10/2026

Together, let’s make a difference. ❤️

Too often, individuals with Vascular Ehlers-Danlos Syndrome (vEDS) face delayed diagnoses, dismissed symptoms, & a lack of understanding in medical settings.

We want to hear from YOU.

Have you or a loved one faced challenges with doctors or in the ER? What do you wish medical professionals understood about vEDS?

👇 Share your experience in the comments. Your story can help us identify gaps, raise awareness, & advocate for better care.

Because the V matters. ❤️

October is vEDS Action Month ❤️Vascular Ehlers-Danlos Syndrome (vEDS) is distinct & requires specific & IMMEDIATE attent...
04/10/2026

October is vEDS Action Month ❤️

Vascular Ehlers-Danlos Syndrome (vEDS) is distinct & requires specific & IMMEDIATE attention.

This month, we emphasize the critical differences in understanding, evaluation, & emergency care for this complex condition.

💙 October is vEDS Action Month. 💙This month, we come together to raise awareness, educate, support families, & drive act...
03/10/2026

💙 October is vEDS Action Month. 💙

This month, we come together to raise awareness, educate, support families, & drive action for those affected by Vascular Ehlers-Danlos Syndrome (vEDS).

Too many people still don’t know what vEDS is — & too many families have experienced the devastating impact of this disease.

For our family, this mission is deeply personal. We created the Matthew Rau Vascular Ehlers-Danlos Syndrome Foundation in memory of Matt & to help ensure that his life continues to make a difference.

This October, we ask you to learn, share, talk about vEDS, & help us spread awareness. Every conversation matters. Every share reaches someone new. And every effort brings us one step closer to better understanding, earlier diagnosis, stronger support, & more research.

Help us make vEDS impossible to overlook. 💙

Learn more about our mission and how you can help:
mattraufoundation.com. (Link in Bio)

Save the Date 🤍We’re honored to announce that the Matt Rau VEDS Foundation Memorial Walk will be taking place early spri...
22/08/2026

Save the Date 🤍

We’re honored to announce that the Matt Rau VEDS Foundation Memorial Walk will be taking place early spring 2027.

This special day will bring our family, friends, & VEDS community together to remember Matt, raise awareness for Vascular Ehlers-Danlos Syndrome, & continue his legacy.

📍 More details coming soon — including the date, location, registration, & how you can get involved.

We can’t wait to walk together in Matt’s memory & appreciate your patience & continued love & support. 🤍

03/05/2026

Built on loss. Driven by love. Fighting for every vEDS life 🤍

15/09/2024

Please join us at FIELD #1 (north entrance) at Rockland Lake for a 5k memorial walk to remember Matthew & support raising awareness of Vascular Ehlers-Danlos Syndrome. Follow signs to the parking lot, we will be setup by the pool.

08/03/2024

My name is Dan Sperry. I live in northern New Jersey. I have a beautiful wife named Melissa and an awesome son named DJ. In September of 2019, I brought myself to the hospital with intense pain in the middle of my abdomen, which I assumed was food poisoning.  It turned out that I had a saccular Abd...

Address


Website

Alerts

Be the first to know and let us send you an email when Matthew Rau Vascular Ehlers-Danlos Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Matthew Rau Vascular Ehlers-Danlos Foundation:

Shortcuts

  • Want your organization to be the top-listed non profit organization?

Share