PANS PANDAS UK

  • Home
  • PANS PANDAS UK
Website

PANS PANDAS UK PANS PANDAS UK is a charity created to raise awareness of the neuropsychiatric conditions PANS and PANDAS. Visit www.panspandasuk.org/news

The charity was originally created in order to raise awareness and understanding of these conditions amongst the general public and medical professionals. PANS PANDAS UK are working closely with a Network of Doctors in order to ensure better diagnosis and early effective treatment for those suffering with these little understood but life changing conditions. It is the mission of PANS PANDAS UK to ensure that both conditions are recognised in every GP surgery, every school and every hospital, leading to early diagnosis and effective treatment. Keep up to date with the latest charity news, including how we are engaging parliament, raising local and global awareness and our ongoing campaign for better support for everyone affected by PANS and PANDAS.

If you're finding it tricky to embrace the wintery temperatures (I say this, typing in fingerless gloves), we might have...
29/10/2026

If you're finding it tricky to embrace the wintery temperatures (I say this, typing in fingerless gloves), we might have the perfect solution... We have been given five free places for the BRISCO Gorseinon 10k! Strap on those trainers, begin the warm up and start training now to join us on Sunday 4th April 2027.

Gorseinon is a town within the City and County of Swansea, Wales, near the Loughor estuary. The 10k route takes you through picturesque Gorseinon, Pontarddulais and Grovesend. Alongside the 10K, there is also a 2K event, suitable for the whole family.

If you would like to have one of our free spots, please go to the event website and book using the code 'RUNPANS' to get your free place - let us know when you have, so we can send you a Team PANS PANDAS UK t-shirt!

Simply search Gorseinon 10k, check the fundraising page on our website, or head straight to: https://gorseinon10k.co.uk/

Would you, or your school, like to be part of PANS PANDAS UK's pilot teacher training programme?School staff and educati...
28/10/2026

Would you, or your school, like to be part of PANS PANDAS UK's pilot teacher training programme?

School staff and education providers have told us they want the tools and skills to support children and young people with PANS and PANDAS. To ensure we provide the right training for those working in education, and to meet rising demand, we are piloting a new training programme delivered by highly experienced teachers who have lived experience of PANS and PANDAS.

We have designed a 3 hour, in-depth training session aimed at increasing awareness, providing practical tools for schools and exploring how to reduce barriers to learning for a child or young person with these conditions. We are now looking for test participants who work in educational settings, including teacher, SENCOs, teaching assistants, senior leaders, specialist teachers and school nurses. In return for free training, we'll be asking for honest feedback to help us refine and enhance the new training programme which will launch next year.

The training aims to support education professionals to have clearer understanding of PANS and PANDAS and how the conditions may present in school. We'll discuss the role of SEND and medical-needs frameworks in supporting pupils, and enable you to use practical tools and resources to strengthen partnership working and support effective school practice.

Most importantly, you will learn about lived experiences of children, young people, and families affected by PANS and PANDAS.

Our pilot has two options:

- Twilight training sessions for individual staff members (3 hours, delivered as 2 x 90 minute sessions)
- Group sessions for staff teams, available during the school day (3 hours)

To join our limited pilot, book online or contact [email protected]

27/10/2026

Don't miss out!

Is your child demonstrating a marked change in behaviour, new obsessions or compulsions, or other unexplained changes? T...
24/10/2026

Is your child demonstrating a marked change in behaviour, new obsessions or compulsions, or other unexplained changes? This could indicate PANS or PANDAS.

These neuropsychiatric conditions can affect children and young people following an infection. They are characterised by frightening, significant behavioural and emotional changes; often seemingly overnight.

Read the full diagnostic criteria, and find information and support, on our website: www.panspandasuk.org

This is just some of the amazing and humbling feedback we have received following our international conference. Created ...
23/10/2026

This is just some of the amazing and humbling feedback we have received following our international conference. Created to advance understanding, research, clinical practice, and family support, this historic event was nothing short of extraordinary. For a small charity working towards big change, seeing our vision come to life with such overwhelming support has been deeply moving.

To everyone who attended, supported, or helped shape Perspectives on PANS: thank you. This conference is just the beginning, and we cannot wait to see how the connections made continue to ripple outward, driving lasting change for years to come.

As we look forward to bringing you the recordings from the event, we wanted to share with you our highlights from across the three specialised days, and why this event marks such a powerful turning point for everyone affected by PANS and PANDAS: https://panspandasuk.org/post/looking-back-at-perspectives-on-pans/

Have you ordered your PANS PANDAS UK Christmas cards yet?This year's design features Glitch, a cuddly character created ...
23/10/2026

Have you ordered your PANS PANDAS UK Christmas cards yet?

This year's design features Glitch, a cuddly character created by our Youth Board in collaboration with amazing illustrators and OCD advocates .olivia .

The cards are blank inside, and the back includes an introduction to Glitch and PANS PANDAS UK. It also features a QR code for people to learn more about PANS and PANDAS! Find more cards and gift ideas at www.panspandasuk.org/shop

We are so grateful and proud of our community members for helping ensure PANS PANDAS Awareness Day 2026 was the best yet...
22/10/2026

We are so grateful and proud of our community members for helping ensure PANS PANDAS Awareness Day 2026 was the best yet.

Read our latest news story to learn more about these powerful awareness-raising events, and to see your awareness:
https://panspandasuk.org/post/awareness-day-round-up/

Please keep sending them in so we can celebrate our amazing community!


We know that supporting someone with PANS or PANDAS can sometimes feel very isolating. For two hours, every two weeks, o...
21/10/2026

We know that supporting someone with PANS or PANDAS can sometimes feel very isolating. For two hours, every two weeks, our drop-in support chats are the place for you to ask your questions, share your stories, and feel heard.

Join our friendly host, Kat, anytime between 8.30-10.30pm tonight. You'll meet volunteers, parents and carers. A formal diagnosis of PANS or PANDAS is not required. There is no pressure to contribute or to turn your camera on.

The next chat is tonight, register here: https://tinyurl.com/PPUKsupportchat

Remember, wherever you are on your PANS or PANDAS journey, you are not alone.

Address


Website

Alerts

Be the first to know and let us send you an email when PANS PANDAS UK posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

  • Want your organization to be the top-listed non profit organization?

Share