Osteopetrosis Awareness Campaign

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Osteopetrosis Awareness Campaign Osteopetrosis - "I fight this fight for YOU

Also known as...
Albers Schonberg Syndrome
Marble Bone Disease
Brittle Bones
(often mis-heard/mis-read as OSTEOPOROSIS)

08/06/2026

Aseefa doesn’t need surgery as the antibiotics have done some good. Thanking you all again for your prayers

Cancelled surgery yet again. Oh well at least another day to eat and get some strength. Bad on the anxiety though
07/06/2026

Cancelled surgery yet again. Oh well at least another day to eat and get some strength. Bad on the anxiety though

Aseefa is well in herself but has a collection in the same place so will be back in theatre tomorrow to drain the infect...
05/06/2026

Aseefa is well in herself but has a collection in the same place so will be back in theatre tomorrow to drain the infection.
Spending time with her no1 nephew- Ma Sha Allah

02/06/2026
Aseefa is awake and is really OK- Thank the Almighty and everyone for their prayers and good vibes
12/05/2026

Aseefa is awake and is really OK- Thank the Almighty and everyone for their prayers and good vibes

With the blessings of the Almighty and your prayers, Aseefa is awake.Intubation tube out but is a lot of pain-to be expe...
11/05/2026

With the blessings of the Almighty and your prayers, Aseefa is awake.
Intubation tube out but is a lot of pain-to be expected- Good to hear her shout again.
Thank you all

Aseefa back in theatre because her intubtion tube is leaking- They will try to replace it but if they can’t because of s...
09/05/2026

Aseefa back in theatre because her intubtion tube is leaking- They will try to replace it but if they can’t because of swelling they will do a tracheotomy. This maybe for life.
She’s a fighter but prayers still needed.

09/05/2026

Update on Aseefa.
After surgery on Thursday, the doctors have kept her sedated and intubated in case any other surgery needs to be done.
They operated on 3 areas of her skull- 2 where she had exposed, dead bone and the forehead where the collection was. Everything went well and we are all hopeful of a full recovery.
Thank you all for your prayers and kind words ❤️

Aseefa is back in hospital with an infection under the skull causing pressure on the brain.Surgery will be tomorrow 7th ...
06/05/2026

Aseefa is back in hospital with an infection under the skull causing pressure on the brain.
Surgery will be tomorrow 7th or Friday 8th May. Please keep her in your prayers as she fights another battle.

Less than 24 hours post op and getting back to “normal”- fighting the pain and thankful for everyone’s prayers and the g...
04/11/2025

Less than 24 hours post op and getting back to “normal”- fighting the pain and thankful for everyone’s prayers and the grace of the Almighty.

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