Hayden's Hope (Hayden Despenas)

07/11/2023

We are so grateful to Brenda and the amazing team at Boulder Tap House - Mason City ! Thank you for embracing Hayden and supporting him as he continues his journey with Friedreich’s Ataxia and a new heart. We are honored that you have chosen Hayden's Hope (Hayden Despenas) as the recipient of your charitable contribution this quarter! ❤️

22/07/2023

Hayden gave Chelsey roller skates for her birthday. ❤️🥹 I think the gift was actually for us. 🎁💝

03/07/2023

Charlie 2 year old sh*tzu Last seen in Clear Lake, Iowa Corner of South Shore Drive and Bayside Please call if seen or found 641-903-1...

23/06/2023

Happy 1st birthday to Hayden’s Heart! ♥️

10/06/2023

And 365 days later….he’s playing Minecraft. ❤️🙏🏻
What a remarkable journey it has been.

03/03/2023

Dear FA Community,
Your efforts have changed the course of a rare disease. Friedreich’s Ataxia is no longer a condition "without a treatment." Skyclarys (omaveloxolone) is the first-ever approved treatment for FA. This approval was only possible because of your support and participation. You helped make this happen. Thank you!

28/02/2023

Remember that petition y‘all signed back in 2021?? Well…it made a MONUMENTAL difference! Today the FDA approved the very first and ONLY treatment for Friedreich’s Ataxia!! This is what happens when people come together to move mountains!
We are so incredibly grateful for your love and support!!
Now- LET’S CURE THIS THING!!! ❤️

17/10/2022

For many years, the Mason City Fire Department has been a major source of support for Hayden. It is an honor to him to be an Honorary Firefighter, and we are incredibly grateful for everything his FF brothers and sisters do to show him how much they care. The welcome home parade was amazing! Thank you MCFD!!

01/08/2022

Hayden's 19th birthday wasn't exactly what we thought it would be. However, after spending 52 days in the hospital we wanted to make it as memorable as possible! 34 birthday cards, 27 text messages, 19 balloons, 7 presents, 3 visitors (even though we broke COVID protocol...), 2 FaceTime calls, 2 puppies, 1 light show, a game of blackjack and a mango smoothie...best gift of all?? That huge, genuine smile! We're blessed to be celebrating his birthday for another year! Thanks to all of you who reached out in one way or another..and especially Lindsey at Mohawk Groomers for getting the puppies ready for this special visit! ❤️
https://gofund.me/89adf216

29/07/2022

Hayden is slowly progressing in his recovery. However many obstacles have been thrown in his path. After struggling with his respiratory function, we were discouraged to learn that he tested positive for COVID today. His birthday is Monday, and we had some fun surprises to lift his spirits. However, now they will have to wait. He is only allowed to have Dana and I as visitors for the next 20 days while is in isolation protocol.
This is a blow to his morale, as you can imagine! If you'd like to send a card to wish him a happy birthday, they can be mailed to:
Mayo Clinic Hospital, St. Mary's Campus
Mary Brigh 6D Room 708
Rochester, MN 55902
We will also be closing the GoFundMe campaign on Monday, August 1st in honor of his birthday. If you are interested in contributing, the link is included below.
Our appreciation for the love and support you continue to show our family is beyond measure. 💕

Hi, my name is Lisa Scholl. Our dear friends Sarah and Dana Despenas are s… Lisa Scholl needs your support for Keeping Hayden’s family close through recovery