Keratoconus GB

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Keratoconus GB Keratoconus GB has been set up for the public to help each other share their experiences about treatments and stories regarding KC. Think before you post.

Keratoconus support page for people living with all stages of the eye disease keratoconus, to share stories, help each other with advice, and have a chat with people that really understand what living with KC is like Keratoconus GB is a great place to meet new people in the UK & globally who also live with KC on a day to day basis. OFFICIAL KCGB GUIDELINES

We have never been ones for rules but as KCGB has expanded we have had several incidents brought to our attention, and as the grows we need to lay out some guidelines for members. We want everyone to enjoy their experience here and we want to hear from you and encourage comments, questions, and suggestions. We ask that you simply stay on topic, respect other people’s opinions, avoid profanity, offensive statements, illegal content, and anything else that might otherwise upset our members.

• While debating and healthy discussions are fine, the admin will not tolerate rudeness, Offensive or violent language, insulting and defamatory posts, Hateful or discriminatory comments regarding race, ethnicity, religion, gender, disability, sexual orientation or political beliefs, personal attacks or purposeless inflammatory comments. Everyone is entitled to their opinion, which is why KCGB is here.

• Please do not offer medical advice unless qualified to do so

• We will also not tolerate abusive behaviour via PM to any member from another member and will take behaviour like this very seriously should it be brought to our attention. Attacks on specific groups or any comments meant to harass, threaten or abuse an individual will be deleted and the member banned.

• Spamming is strictly not allowed. Facebook has spam filters for multiple identical posts. You will be deleted and banned. Links or comments containing sexually explicit content material will be deleted. Violations of copyright or intellectual property rights will be deleted. Spam, link baiting or files containing viruses that could damage the operation of other people’s computers or mobile devices will be deleted’

• You are solely responsible for your own prestige and reputation. Think before you reply. Your words determine who you are. Be nice.

• Kindly observe ethical behaviour when posting. Any post that would put the reputation of KCGB at risk will be deleted. The deletion will serve as a warning and violators will be banned the next time.

• Discussions of political nature, political groups, and political activities, religion and religious beliefs that may offend or upset members are not permitted. Let’s keep to the subject matter- keratoconus.

• We ask you to refrain from annoying behaviours such as flaming & trolling & sock puppeting. When you go out of your way to be annoying, you can expect to be warned or banned.

• The admin and all future admins reserve the right to remove a post and to ban anyone who wilfully violates KCGB rules and reserves the right to update and modify these rules as the needs of KCGB dictate so as to ensure friendly group conversation, willingness to learn and help others, and mutual trust and understanding

Thank you- your cooperation is appreciated

EyeWorld Journal Club review: “Long-term outcomes of corneal crosslinking for keratoconus across pediatric, adolescent, ...
20/10/2026

EyeWorld Journal Club review: “Long-term outcomes of corneal crosslinking for keratoconus across pediatric, adolescent, and adult populations in a diverse U.S. population”

The John A. Moran Eye Center ophthalmology residents reviewed “Long-term outcomes of corneal crosslinking for keratoconus across pediatric, adolescent, and adult populations in a diverse U.S. population” from the September issue of the Journal of Cataract & Refractive Surgery.

17/10/2026

Concerns about the use of smart glasses are having an affect on visually-impaired users.

Read more - https://bbc.in/4yoTqq8

11/10/2026

👁️ So, what does cross-linking actually mean for someone with keratoconus?

CXL is generally considered when there is evidence that keratoconus is progressing. Because its main purpose is to stabilise the cornea, identifying progression early can be important – particularly in younger people, where keratoconus may progress more quickly.

During the procedure, riboflavin (vitamin B2) eye drops and ultraviolet A (UVA) light are used to strengthen the bonds within the corneal tissue.

CXL doesn’t necessarily mean saying goodbye to glasses or contact lenses. Many people will still need vision correction afterwards, and prescriptions or lens fittings may need to be reviewed as the cornea settles.

If you’ve recently been diagnosed, regular monitoring allows your eye care team to look for changes in the shape of your cornea and discuss whether CXL may be appropriate for you.

💙 Have you had cross-linking? What do you wish you’d known beforehand?

Look after your eyes by looking after your lenses; get on the right track with some basic tips. Read more at https://hub...
06/10/2026

Look after your eyes by looking after your lenses; get on the right track with some basic tips. Read more at https://hubs.li/Q04ypYTz0
Is Moorfields Eye Hospital NHS Foundation Trust

Vision-Related Quality of Life and Work Productivity in Patients With Keratoconus and Glaucoma: A Comparative Cross-Sect...
25/08/2026

Vision-Related Quality of Life and Work Productivity in Patients With Keratoconus and Glaucoma: A Comparative Cross-Sectional Study

Background: Keratoconus and primary open-angle glaucoma (POAG) are chronic ocular diseases causing visual impairment and affecting quality of life, daily functioning, and work productivity beyond visual acuity loss. Although both cause chronic visual disability, they differ in pathophysiology, with....

23/08/2026
Contact Lens Health Week 2006 takes place from August 17 to August 21, 2026. This annual observance focuses on educating...
09/08/2026

Contact Lens Health Week 2006 takes place from August 17 to August 21, 2026. This annual observance focuses on educating contact lens wearers on proper hygiene, healthy wear habits, and the prevention of serious eye infections.Key Safety Tips- Wash hands: Always wash and dry hands before touching lenses. No water: Keep lenses away from water to avoid harmful microbes. Respect schedules: Stick strictly to prescribed replacement timelines. Never sleep in your contacts unless advised by a doctor. Care for cases: Clean, air-dry, and replace your lens case every three months. Follow us for more tips!

31/07/2026
22/07/2026

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