Fam177a1 Research Fund

24/05/2026

ONE WEEK OUT.

The countdown is officially on. If you’ve been meaning to grab your ticket, this is your sign.

🎟 https://fam177a1.ejoinme.org/famjam2026

22/05/2026

Let's GOOOOO!

21/05/2026

Utah Medicine recently featured our family's partnership with Dr. Clement Chow's genetics lab at the University of Utah — and what patient-driven research can actually look like in practice.

It's a meaningful read, especially with FAM JAM coming up May 29.

21/05/2026

FAM JAM only happens because this community shows up. Huge thank you to our sponsors and partners helping make this night possible. 💙💫

20/05/2026

From the lab to the vineyard—and straight to FAM JAM! 🧬➡️🍷

We are beyond excited to welcome Mosier, OR’s own Double Strand Winery as our Premier Wine Sponsor!

Founded by a retired genetic physician/scientist and is run by his neuroscientist-turned-winemaker son, Double Strand shares our deep interest in research that makes a difference.

What started as a friendship rooted in the rare disease community has blossomed into an incredible partnership.

They blew us away by donating a full lineup of their red, white, and rose, freshly decorated from the Newport Wine Festival! 🥇

Thank you, Double Strand, for proving that community and science are the perfect blend.

Get your tastebuds ready, FAM JAM—you’re in for a treat! 🍷✨

19/05/2026

Our Story 💙

Every ticket to the FAM JAM helps create real impact. That’s what makes this night different. Thank you to everyone already coming with open hearts and big energy.

Tickets available at https://fam177a1.ejoinme.org/famjam2026

32 likes. "FAM177A1 Research Fund Founder's Story"

17/05/2026

At this year's FAM JAM on May 29th, we'll be raffling off an overnight package at The Somm Hotel & Spa in Woodinville — one night's stay, couples massages, and dinner for two at this beautiful new spot in Washington wine country.

Come for the community, maybe leave with a little something extra. 🍷✨

15/05/2026

FAM JAM has never just been an event. It’s a room full of people showing up for something bigger than themselves. And we’re almost there. ✨

There are a just a few seats left. Get your ticket TODAY!

14/05/2026

The Mercer Island Reporter recently featured our story — five years of fundraising, research partnerships across six institutions, and a community that has shown up for our family in ways we never could have imagined.

"The generosity and the caring of this community — it keeps us buoyed. It just keeps us going." — Jill Hawkins

FAM JAM is May 29 at S**o Park. Read the full article and consider joining us there:

Two of the Hawkins children have the FAM177A1 genetic disorder.

30/04/2026

This year will be even bigger.

Don’t miss it.