22q Tampa Bay Families and Friends

18/05/2026

Hey guys!!! One of our moms would like to get a group together for the 22q walk! I’ll tag her here so she can share details!!

20/04/2026

Hey guys!!! Maria here…….So the event is going back to the zoo!!! I handed the event over to the AMAZING Dr.Halsey and 22q clinic at ACH!!! Due to me possibly relocating with the girls over the summer I wanted to ensure that the event kept going. Who better than the clinic that takes care of all of us!!!!

26/09/2025

Hey guys!!! Maria here……:it’s been awhile since we’ve interacted!!! Once the weather starts cooling off I’d love to plan a meetup with you all!!! If you have been to the 22q clinic at All Children’s or plan on it you might see a familiar face on the cover!!!! Anayla was super stoked to see this!!!! We love our Johns Hopkins All Children’s family!!!

29/07/2025

https://www.boggycreek.org/upcoming-camp-sessions/craniofacial-family-retreat-weekend
Check this out guys!!! Anayla was able to speak at the 22q weekend!!! Unfortunately she’s aged out but all of yall with littles should check this out!!!!

Apply Today! Come to Camp and experience the spirit and magic of Boggy Creek. Parents and guardians can relax and find needed support among other families dealing with similar challenges. Siblings can participate in all of the fun, hosted by our volunteers and staff. During Family Retreat Weekend

15/04/2025

One of the key members of the 22q clinic!!! We love Dr.Halsey!!!

08/04/2025

Also, Maria here…….I will be making the official event page for our local 22q day at the zoo event! As many of you know we do ours at a local farm! I was finalizing details. Thankyou all for your patience.

01/03/2025

Just a friend reminder about this amazing event!!!

Camp Boggy Creek is for us too!! Here’s a 22q family
Retreat weekend!

10/02/2025

On this post-Super Bowl Monday, our JHACH Multidisciplinary team wanted to give a shout out to Super Bowl winner Saquon Barkley for his amazing advocacy work for 22q Deletion syndrome. Saquon's niece Amirah was diagnosed with 22q Deletion syndrome in early childhood and he has been a huge supporter of her and her family in addition to raising awareness about 22q Deletion syndrome and support for the 22q community. Congrats Saquon on being a Super Bowl winner and a champion for our amazing patients with !

For more information about the 22q Multidisciplinary Team at John's Hopkins All Children's Hospital, visit https://www.hopkinsmedicine.org/all-childrens-hospital/services/plastic-reconstructive-surgery/conditions-we-treat/22q-deletion-digeorge-syndrome-clinic .

https://youtu.be/AAVs4loph3Y

06/02/2025

Hey guys Maria here! Would anyone be interested and meeting up on a Saturday morning at the Glazer kids Museum? I have a mom
Coming up from Naples that would like to connect with us!

06/02/2025

Camp Boggy Creek is for us too!! Here’s a 22q family
Retreat weekend!