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Team TYLER

Raising NF awareness & building a community of support — inspired by Tyler’s strength and resilience. No one fights alone.

When Tyler was just a few months old, we noticed unusual marks on his body. After a visit to the doctor, we were referred to a children’s hospital—where we first heard the word “Neurofibromatosis.” Tyler was officially diagnosed just before his first birthday, after an MRI revealed an optic glioma. Since then, Tyler has faced multiple rounds of chemotherapy, surgeries, and the discovery of a secon

d tumor on his brainstem. He’s been life-flighted, endured hospital stays, and knows more medical terms than any child should—but through it all, he continues to smile, inspire, and fight with unmatched courage. Today, Tyler is a healthy, spunky 14-year-old with a true passion for cars and trucks. This July, he’ll celebrate 10 years chemo-free—a milestone he’s incredibly proud of. He continues to light up every room with his smile, charm, and sense of humor. Though he still has annual checkups and scans, he is currently symptom-free. Team Tyler was created not only to share his journey but to raise awareness and support others affected by NF. Neurofibromatosis will not define Tyler—Tyler will define Tyler.

05/01/2026

May is Neurofibromatosis Awareness Month 💙

Every day, I watch Tyler face something most people have never even heard of. Neurofibromatosis isn’t just a diagnosis — it’s uncertainty, strength, courage, and a fight that never takes a day off.

As his mom, I will always be his voice when he needs one, his strength when days are hard, and his biggest advocate in the fight for awareness and a cure.

This month, I’m asking you to stand with us.
Learn about NF.
Share Tyler’s story.
Help us spread awareness.

Because my son — and every person living with NF — deserves more answers, more support, and a future without limits.

We fight for Tyler. Always. 💙

10/19/2025

We did it, Team Tyler! 💚 Thank you to everyone who came out and supported Unlock the Door at The Fifth today — what a fun and successful event! Your support helps us keep raising awareness and funds to find the key to a cure for NF! 🗝

Here are just a few pictures of our fun!

Thank you to The Fifth for hosting us!

09/15/2025

Tyler had the honor of presenting Camp Cadet of Somerset County with a donation. 💙

Camp Cadet was a challenging yet rewarding experience for him. While he was pushed both mentally and physically, the staff, directors, and officers encouraged him every step of the way. Through their guidance, Tyler came away with a stronger sense of discipline and a deeper definition of self-esteem.

We are grateful for the positive impact Camp Cadet has had on him and proud that he can give back to a program that made such a difference in his life.

08/27/2025

Earlier this year, Team Tyler had the honor of sending two amazing young ladies—Lennox and Madelyn—to NF Camp at Camp Accomplish thanks to your generosity and support. 💙

They recently shared their smiles and gratitude with us, saying how special it was to feel accepted, supported, and most importantly—normal—while at camp. Seeing the joy this brought them truly touched our hearts.

This is what Team Tyler is all about—bringing happiness, hope, and belonging to those living with NF. None of this would be possible without you. From the bottom of our hearts, thank you.

✨ Join us at our next fundraiser at The 5th, 2:00 PM as we continue to unlock the door to NF together!

08/16/2025

Our NF hero & fighter Tyler attended Camp Cadet of Somerset County 💙 He did an amazing job, was recognized for his hard work, big heart and has been invited back next year as a Senior Cadet. Huge thank you to Camp Cadet for instilling integrity and such a meaningful experience! 👮‍♂️⭐💪

08/13/2025

🔑 LOCKED UP… FOR A GOOD CAUSE! 🔑
Volunteer to be a “jailbird” and help Team Tyler raise awareness for Neurofibromatosis!

📅 Date: October 19
⏰ Time: 2:00 PM
📍 Location: The Fifth

Bring the key to unlock the door — invite friends, family, and your social media squad to join the fun! Don’t forget to grab something to eat at The Fifth while you’re there.

Message this page OR email [email protected] to volunteer and be part of this exciting fundraiser!

07/28/2025

Today is a BIG day. A very special day.
10 years.
✨ 10 years chemo free.
✨ 10 years since his last round.
✨ 10 years symptom free.

It’s hard to put into words what this day means. A full decade of strength, hope, and resilience. We’re beyond grateful—for the science, the care, the prayers, and the love that have carried him through.

We celebrated this beautiful milestone just the way he wanted—dinner out and of course, some ice cream to top it off! 🍦💙

To all of you who have stood by us and continue to cheer on our NF Hero: thank you. Your support has meant everything. Here’s to continued health and hope for all those fighting. 💪💙

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Windber, PA

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