When Tyler was just a few months old, we noticed unusual marks on his body. After a visit to the doctor, we were referred to a children’s hospital—where we first heard the word “Neurofibromatosis.” Tyler was officially diagnosed just before his first birthday, after an MRI revealed an optic glioma. Since then, Tyler has faced multiple rounds of chemotherapy, surgeries, and the discovery of a secon
d tumor on his brainstem. He’s been life-flighted, endured hospital stays, and knows more medical terms than any child should—but through it all, he continues to smile, inspire, and fight with unmatched courage. Today, Tyler is a healthy, spunky 14-year-old with a true passion for cars and trucks. This July, he’ll celebrate 10 years chemo-free—a milestone he’s incredibly proud of. He continues to light up every room with his smile, charm, and sense of humor. Though he still has annual checkups and scans, he is currently symptom-free. Team Tyler was created not only to share his journey but to raise awareness and support others affected by NF. Neurofibromatosis will not define Tyler—Tyler will define Tyler.
