Metrodora Foundation

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West Valley City, UT
Metrodora Foundation

Catalyzing scientific collaboration & discovery to find cures for complex, gut-brain axis disorders

03/15/2025

Long COVID doesn't end when the infection does. Millions are still battling fatigue, brain fog, and other lasting symptoms. Let's stand with them and spread awareness.

03/12/2025

Hear from Metrodora Foundation Executive Director, Amy Rochlin, expressing the urgency for research funding in our most recent press release, “PrecisionLife and Metrodora Foundation Announce Confirmation of Key Genetic Findings for Long COVID across Diverse Populations”.

"Patients with complex conditions, like long COVID, simply can’t wait. They are suffering daily. They need solutions, and they need them now. We care deeply about getting patients the answers they deserve, and we’re committed to driving progress forward with urgency. By combining PrecisionLife’s powerful AI-driven genetic analysis with diverse patient data, we’re gaining critical insights that may bring us closer to real solutions, with the potential to truly improve patients' lives."

View the full article here: https://www.biospace.com/press-releases/precisionlife-and-metrodora-foundation-announce-confirmation-of-key-genetic-findings-for-long-covid-across-diverse-populations

03/07/2025

“My chronic illnesses may have changed the way I live my life, but they haven't changed who I am. I’m still the same ambitious, outgoing, creative, and kindhearted person l've always been, despite everything.” - Peyton

03/06/2025

Join us on March 11th at 1pm EST to explore self-perception, the impact of chronic conditions on our identity, and what truly defines us.

Three attendees will win a free water bottle!

Our workshops are designed to be a safe, supportive space for patients and caregivers to share experiences, exchange ideas, and explore solutions together. Whether you're navigating a complex chronic condition or supporting a loved one, these workshops foster community, empowerment, and real conversations.

Register here! https://zoom.us/meeting/register/Srx9aNEVTx-fi03GkJzVGw #/registration

03/04/2025

Sign up is now open for the MELO Study on ME/CFS and Long COVID!

Your participation in this Metrodora Foundation funded study could lead to new diagnostic tests, personalized treatments, and improved understanding of these conditions.

Participation is free and voluntary for adults 18 and older in the US, and can be done from the comfort of your home. Self-reporting is accepted. You don’t have to have a clinical diagnosis of ME/CFS or Long COVID.

Spots in the MELO Study are limited, but don’t worry if they fill up! By signing up at the link below you’ll be the first to know about future study opportunities and clinical trials.

https://mydatahelps.org/e/BMDSMX?surveyName=MELO%20Enroll

03/03/2025

A strong sense of identity and self-concept is crucial for navigating chronic, complex conditions. It contributes to resilience, creates a foundation for self-advocacy, fosters healthy relationships, and helps you stay grounded in your personal goals and values.

However, these conditions can be life-altering and may leave you feeling disconnected from who you are. We're here to support you.

Join us and other patients on March 11th at 1PM EST on a journey of self-discovery, where we’ll explore your identity and help you reconnect with the person you truly are.

Register here: https://zoom.us/meeting/register/Srx9aNEVTx-fi03GkJzVGw #/registration

02/28/2025

Today, we honor the strength, resilience, and courage of those living with chronic complex conditions. At the Metrodora Foundation, we’re committed to advancing research, discovering proper treatment, and building a community to ensure no one faces their journey alone. Together, we can create a brighter, healthier future

02/27/2025

When we talk about bringing together innovative, best-in-class science, this is exactly what we mean.

Our recent collaboration with PrecisionLife and Metrodora Institute has led to a groundbreaking study that confirms key genetic associations with Long COVID across diverse populations. By analyzing data from both the UK and the US, we found that 88% of the genes identified in our initial UK study were also present in the US cohort. This remarkable consistency across different populations strengthens our understanding of Long COVID's genetic underpinnings.

Read the Research Preprint Here: https://www.biospace.com/press-releases/precisionlife-and-metrodora-foundation-announce-confirmation-of-key-genetic-findings-for-long-covid-across-diverse-populations

02/26/2025

Excellent opportunity for someone looking to make a difference in .

02/24/2025

"I am no longer on a sports team but l am still a good teammate in other areas of life." -Claire Lapat

02/21/2025

Happy National Caregivers Day! 🤍💜

Today we honor the incredible strength, love, and selflessness of all caregivers. Thank you for your endless dedication and support!

02/20/2025

"My illnesses may take a lot from me and slow me down, but they will never steal my grit, my dreams, or my success. I still create, I still see magic, and I will never stop reaching for more.” -Nelly

02/18/2025

Join us on March 11th at 1pm EST as we explore self-perception, the impact of chronic conditions on our identity, and what truly defines us.

Our workshops are designed to be a safe, supportive space for patients and caregivers to share experiences, exchange ideas, and explore solutions together. Whether you're navigating a complex chronic condition or supporting a loved one, these workshops foster community, empowerment, and real conversations.

Register today! https://zoom.us/meeting/register/Srx9aNEVTx-fi03GkJzVGw

02/15/2025

We’re excited to introduce you to IGive! IGive is an easy, low effort way to support our research efforts during your online shopping. By using IGive, a portion of your purchase will be donated to the Foundation at no additional cost to you.

There is also a $5 New Member Shopping Bonus! When you make your first purchase within 30 days, you’ll receive an extra $5 bonus for the Metrodora Foundation!

Join now! https://www.iGive.com/EVQ7cHj

02/13/2025

It’s important to take a moment to celebrate the strength, identity, and worth that remains in the face of complex conditions. It’s a reminder that our conditions don’t define us- our resilience and who we are at our core remain unchanged. Your voice is powerful in demonstrating to both yourself and the world that, no matter the challenge, we are always .

02/04/2025

Hi everyone! It’s Community Coordinator, Alexandra Cohen. In honor of Feeding Tube Awareness Week, I want to share how these life-saving interventions have kept me alive. It’s been two years since I became dependent on tube feeds.

My chronic conditions include comorbidities that severely impair my Gastrointestinal (GI) system, making it nearly impossible for me to tolerate food. Despite my best efforts, by the end of 2022 my body began to shut down from severe malnutrition, leading to frequent hospitalizations. This led to the placement of a nasogastric (NG) tube, my first feeding tube. What was hoped to be temporary has become an indefinite long-term necessity, leading to my Jejunal Tube (J-Tube)—or as I call it, my second belly button.

Managing my complex GI conditions remains a challenge, but I’m grateful for modern medical interventions. With ongoing research from the Metrodora Foundation, I hold onto hope for a future without enteral nutrition.

To my fellow tubies—you are seen, you are strong.

01/31/2025

Some zebras have stripes you can’t see. Complex chronic conditions are often invisible, misunderstood, and overlooked. But patients deserve real answers, real solutions, and real research.

It’s time for us to change the narrative. Join us for pushing for groundbreaking research and that brings hope and progress.

Text "METX" to 53-555 to donate today.

01/14/2025

Don’t miss out! Join us tomorrow for the first-ever Metrodora Foundation Community Wellbeing Workshop: Battery Life and the New Year!

Let’s come together to talk about managing your energy and making the most of the year ahead. Led by patients, this workshop is a relaxed, supportive space to connect, share experiences, and learn helpful strategies.

Register today! https://hubs.la/Q031HTkQ0

Address

3535 S. Market Street, Suite 900
West Valley City, UT
84119

Telephone

+13854301430

Website

http://www.metrodora.org/

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