The Kemp Legacy Foundation, Inc.

04/04/2026

03/28/2026

🐾✨ URGENT PLEASE SHARE: Let’s Help Brittni ✨🐾

For 35 years, Brittni Flemming has been a tireless advocate for shelter animals — always fighting for those without a voice.

Now, she needs ours.

Brittni is currently seeking a living kidney donor. After living most of her life with one kidney, it is now failing. She is also the sole support system for her disabled adult son and is determined to be here for him.

She has begun the transplant process at Memorial Transplant Institute in Hollywood, FL and is actively searching for a donor.

If you’ve ever considered becoming a living donor — or know someone who might — please take a moment to learn more:
👉 MHS.donorscreen.org

Sharing this post could save her life. Please help us spread the word.

Let’s show Brittni the same love and dedication she has shown so many others. ❤️🐾

03/27/2026

We had the honor of supporting St. Jude at an unforgettable evening at The Glazer Hall, where music became hope. 💛

Dame Marina’s performance was breathtaking, but the moment that truly stayed with me was when she dedicated “Somewhere Over the Rainbow” and “Bridge Over Troubled Water” to the children of St. Jude. It brought tears to my eyes.

It reminded me why we created The Kemp Foundation—to be a bridge for families facing the unimaginable.

I’ve always loved “Bridge Over Troubled Water,” but last night gave it new meaning. It may just become the heart song of our foundation.

Grateful to attend a cause that gives families hope when they need it most. 💛

03/18/2026

Hi friends,

We have a local who is in need of a kidney. We are asking that you please continue to share this post in hopes a donor will be found.

It just takes a second to share!

03/02/2026

We’re honored and deeply grateful to be featured in the March edition of Abacoa & Alton Neighbors. 🤍

Our family’s journey through rare and chronic illness has shaped every part of who we are — from long nights in hospitals and relentless advocacy for answers, to unforgettable moments like being invited to the White House and John Jr.’s opportunity to vote on the House floor four times.

What began as a personal fight for clarity and care has grown into something bigger than us: The Kemp Legacy Foundation — created to support those navigating rare, chronic and/or serious illness, especially when the system feels overwhelming and isolating.
If our story encourages even one person to keep pushing, keep believing, or reach out for support, it’s worth sharing.

Thank you to everyone who has walked this road with us. This story belongs to all of you, too.

📖 Read the full feature here: https://palmbeachneighbors.com/.../Abac.../HTML/8/index.html

02/26/2026

✨ The Kemp Legacy Foundation is honored to support Mabel Rose and her family with our first major donation!

We are incredibly thankful Stet News share an update on sweet Mabel Rose and included The Kemp Legacy Foundation, Inc. in the article. 💗

Born with a rare and complex heart condition, Mabel Rose is now breathing on her own and is officially on the heart transplant list — a milestone that brings hope and strength to her family every single day. 🙏🏽

Our hearts connected with Mabel Rose’s story instantly. As a family who has walked the long road of rare and chronic medical illness, we knew we had to step in however we could. ❤️

✨ The Kemp Legacy Foundation is honored to support Mabel Rose and her family and we are committed to walking alongside them through every step of this journey.

📌 If you feel led to support Mabel Rose’s family, you can donate directly through our website. On the homepage, just click Donate and note “Mabel Rose” so that 100% of your contribution goes directly to her family.

👉 Read the full Stet News article here:
🔗 https://stetnews.org/2026/02/21/heart-baby-mabel-rose-is-breathing-on-her-own/

Thank you to our community for your continued support as we grow and continue to help families facing rare and complex health challenges. 💛

Lake Worth Beach infant with rare heart condition receives Berlin Heart and is formally approved for transplant.

02/19/2026

02/19/2026

https://www.facebook.com/share/p/188jBUpyXy/

Ahead of , NORD is going to Capitol Hill to highlight how patient advocacy drives innovation for the 30 million Americans living with rare diseases. You can join us!

Fewer than 5% of the 10,000+ known rare diseases have an FDA-approved treatment — but progress happens when patients, researchers, investors, and policymakers work together. We’re going to demonstrate how.

Join our Congressional briefing: “Patient Advocacy Driving Innovation for People Living with Rare Diseases”

📅 February 24, 2026
🕤 9:30–11:30 AM
📍 Capitol Visitor Center
🥪 Box lunch provided | Open to the public

Hear from leading voices in research, policy, investment, and patient advocacy:
• Pamela Gavin, CEO, National Organization for Rare Disorders
• Ada Hamosh, MD, MPH, FACMG, Johns Hopkins Medicine NORD Rare Disease Center of Excellence
• Rohini Kosoglu, Venture Partner, Fusion Fund
• Theresa Strong, PhD, The Foundation for Prader-Willi Research

Innovation starts with advocacy. We hope you’ll join us. RSVP here: https://bit.ly/4rRdaQa

02/19/2026

Chiari Malformation Awareness

02/13/2026

Medical moms are a different kind of creature that many don’t talk about or understand.

We condition ourselves to roll with the punches. No matter how brutal...you roll. Your child’s life depends on it.

Our eyes see the unfathomable; sights that would keep a "normal" person awake at night...but we roll.

We condition ourselves to not feel it; not take life too seriously. We know how fragile and brief it is… we are reminded every second of the day. And yet, every time...we roll.

I hold my child down for continuous labs in reoccurring, almost monthly inpatient stays. He holds out his little arm, knowing pain is coming but also subconsciously knows it’s what needs to happen. I helped him the best way I could...medical necessity had won again.

Holding a child down while they’re screaming is a different type of ringing in your ears that never leaves. It’s a battle wound. It wakes you up in the middle of the night. It doesn’t ever go away. And yet, we continue to get up and keep rolling.

Medical moms become numb. Our hearts don't feel things like the hearts who are protected from this type of consistent and repeated defeat. We cope, and maybe too well.

Maybe we come off as cold and emotionally unavailable. Maybe we aren't approachable.

We come off a little bossy, because we have to be good patient advocates. We have to be the person our child needs, and depends on.

You will never see their world through their eyes. Because if they love you, they wouldn't want you to. They will protect you from it. They will downplay every situation. Sometimes you won’t even know they’re in the midst of a Category 5 medical hurricane. They keep rolling without batting an eye.

Be patient and kind with medical moms. You never know what battlefield they’re walking in, and yet all you’ll see is them rolling. Always. 💙


02/10/2026

Rare disease awareness, because we understand what it means to be a

Awareness starts with TAAF.