O Warrior

Helping families affected by an omphalocele diagnosis.

08/26/2026

💙 Warrior Wednesday: Meet Carter! 💙

Carter was diagnosed with a large omphalocele at just 12 weeks gestation, containing his liver, intestines, and spleen. His family was given little hope that the pregnancy would make it to 20 weeks but Carter had other plans! 💪

He made it to 39 weeks and spent 56 days in the NICU. Using the Duoderm “chip clip” method, Carter underwent closure surgery at just over a month old. Despite a difficult recovery and another surgery at three months old, Carter continued to show just how strong an O Warrior can be. 💙

✨ Read more about Carter’s journey on our blog: https://www.owarrior.org/blog/carters-story

08/24/2026

💛 Monday Reminder: Your support makes a difference.

When you donate to O Warrior, you’re doing more than making a donation—you’re helping us continue our mission of Omphalocele awareness, education and support for O Families today and in the future.

Your generosity helps make programs like our Car Seat Pass Down Program, O Angel Program, monthly support groups, community outreach, grants and education possible.

Every donation, share and act of support helps us continue showing up for this incredible community. 💛

Thank you for standing with our O Warriors and their families. 🫶

08/21/2026

📚✏️ Back-to-school season is here, O Warrior families! 💛

Whether your O Warrior is heading into a brand-new classroom, returning to familiar faces, or starting another kind of learning journey, we want to celebrate them!

📸 Share your back-to-school pictures in the comments and give us an update! What grade are they starting? How are they doing? What are they most excited about this year?

We can’t wait to see all of our amazing O Warriors taking on another year! 💛🎒

08/19/2026

💛 Warrior Wednesday: Meet Charleigh Rae 💛

Charleigh is a true warrior princess. Born at just 30 weeks with a ruptured omphalocele, she was later diagnosed with Pentalogy of Cantrell and Tetralogy of Fallot.

Her journey has included countless surgeries, a trach and ventilator, ECMO, CRRT, and an incredible 511 days in the hospital. Despite being told she may not survive, Charleigh continued to prove everyone wrong. 💪

Today, she’s home, thriving, walking, and sharing her spunky personality and contagious smile with everyone around her. 💛

✨ Read Charleigh’s full incredible story on the O Warrior blog: https://www.owarrior.org/blog/charleighs-story

08/12/2026

💙 Warrior Wednesday: Meet Sevyn 💙

Diagnosed with a giant omphalocele at just 16 weeks, Sevyn's family faced heartbreaking odds and was even advised to end the pregnancy. Instead, they chose hope.

After a complex NICU journey that included multiple intubations, a tracheostomy, a pulmonary hypertension crisis, 14 days on ECMO, and eight months in the hospital, Sevyn proved just how strong O Warriors can be.

Today, he's home, thriving, his ASD has closed on its own, his pulmonary hypertension has resolved, and he's continuing to make incredible progress.

✨ Read Sevyn's full story on our blog and be inspired by his remarkable journey: https://www.owarrior.org/blog/sevyns-story

08/07/2026

💙 Did You Know?

Some NICUs offer a Primary Nurse and Associate Nurse program, allowing your baby to have familiar faces caring for them throughout their hospital stay. While it isn't always possible due to scheduling, having a consistent nursing team can provide comfort, build trust, and help families feel more supported during their NICU journey.

If you're expecting a NICU stay, ask your care team if this is something your hospital offers. It never hurts to ask!

We'd love to hear from you! 💙 Share a photo of your favorite NICU nurses in the comments and tell us how they made a difference in your family's journey.

08/05/2026

💙 Warrior Wednesday: Meet Luke 💙

At 20 weeks, Luke's family received a devastating diagnosis of a giant omphalocele and uncertain prognosis. Through months of uncertainty, a 94-day NICU stay, multiple surgeries, and an incredible repair at age four, Luke has shown what resilience truly looks like.

Today, he's a thriving eight-year-old who loves reading, hiking, animals, and spending time with friends. His journey is a powerful reminder that hope can grow even in the hardest moments.

✨ Read Luke's full story on our blog and discover the strength behind this amazing O Warrior: https://www.owarrior.org/blog/lukes-story

08/03/2026

Puzzled about what to ask at your next doctor's appointment? You're not alone. 💙

Whether you're navigating a new diagnosis, preparing for surgery, or attending a routine follow-up, knowing what questions to ask can make a big difference.

At O Warrior, we've created resources to help support you every step of your journey, including a list of helpful questions to ask your healthcare team, educational materials, and other tools designed specifically for the omphalocele community.

Take the guesswork out of your appointments and feel more confident advocating for yourself or your child.

📖 Visit our Education section and explore the tools available to support your journey.

07/31/2026

✨ Friday Facts ✨

Did you know that omphaloceles occur in approximately 1 in every 5,000–10,000 live births? 💙

Omphaloceles can vary greatly in size and are often grouped into three categories:
🔹 Small – Typically contains only a portion of the intestines.
🔹 Large/Giant – Contains most of the liver and other abdominal organs.

Every O Warrior's journey is unique, and no matter the size or type, each one is incredibly strong. 💪

💬 We'd love to hear from our community! Which category did your O Warrior fall into? Share in the comments below and help raise awareness for omphalocele.
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6483 W 8170 S
West Jordan, UT
84081

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https://owarrior.org/

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