O Warrior

Helping families affected by an omphalocele diagnosis.

10/10/2026

💚 World Mental Health Day 💚

Behind every Warrior is a journey that can carry so much more than what others see.

The diagnosis. The uncertainty. The NICU days. The surgeries. The appointments. The fear, exhaustion and constant advocating and sometimes, simply trying to hold everything together.

Today, on World Mental Health Day, we want to remind our O Warrior parents and caregivers that your mental health matters, too. 🧡

It’s okay to ask for help. It’s okay to have hard days. And it’s okay to take care of yourself while you’re taking care of your Warrior.

To our O Warrior community: you don’t have to carry it all alone. 💚🧡

10/07/2026

🩻🧡 October is Sonographer Awareness Month! 🧡🩻

For many O Warrior families, a sonographer was there for one of the moments we will never forget the ultrasound when we first learned our baby had an Omphalocele.

Whether it was discovered during an early ultrasound, at the anatomy scan, or later in pregnancy, so many of us can still remember that room, that screen and the moment our journey changed.

This month, we want to recognize the incredible sonographers who play such an important role in prenatal care from helping identify our babies’ Omphaloceles to following their growth and development throughout pregnancy. 🧡

And we want to hear YOUR story!

👇 When did you first find out your baby had an Omphalocele?
How many weeks were you? Was it found during a routine ultrasound? Do you remember anything about the sonographer who was there that day?

Share as much or as little as you feel comfortable sharing in the comments. Your story may help another O Warrior family feel a little less alone. 🧡

10/01/2026

🩺💚 REMINDER: Our October Support Group is coming up!

Have you signed up yet? On Sunday, October 11, we’re welcoming Dr. Stephen Fenton for a special Ask a Pediatric Surgeon O Warrior Support Group!

This is your chance to bring your questions about omphalocele surgery, closure, recovery, ongoing care, or anything else you’ve been wondering about. Whether you’re expecting an O Warrior, currently navigating treatment, or years into the journey, we’d love to have you join us.

📅 Sunday, October 11
⏰ 4:30 PM EST
👨‍⚕️ Dr. Stephen Fenton
💻 Virtual via Zoom

There’s still time to register! 💚

👉 Sign up for the October O Warrior Support Group on our webiste

Start making your list of questions — you don’t want to miss this one!

09/30/2026

💚 September 30 is NICU Awareness Day! 💚

As NICU Awareness Month comes to a close, today we wear green for the babies, families, and incredible teams whose lives have been touched by the NICU. 💚

For so many O Warrior families, the NICU is where their omphalocele journey begins. It’s a place of uncertainty and fear, but also of incredible strength, tiny victories, lifelong friendships, and hope.

Throughout September, we’ve shared NICU stories, celebrated the people who care for our warriors, remembered those who are deeply missed, and recognized the families who know firsthand what it means to live life one day — and sometimes one hour — at a time.

Today, we invite our O Warrior community to wear green and help us turn social media green for NICU Awareness Day! 💚

📸 Share a photo of you or your O Warrior wearing green in the comments — we’d love to see our community showing their NICU pride!

09/29/2026

💚 September 29 is NICU Sibling Support Day! 💚

When a baby is in the NICU, the journey belongs to the whole family — including the brothers and sisters waiting, wondering, adapting, and loving their sibling through it all. 💚

NICU siblings often experience big changes they may not fully understand: parents spending long days at the hospital, routines changing, missed family time, and sometimes having to love their new sibling from a distance.

And through it all, they show us just how special the sibling bond can be. 🥹

Today, on NICU Sibling Support Day, we celebrate the brothers and sisters of our O Warriors — the little (and big!) cheerleaders who are an important part of their warrior’s story.

💚 To all our O Warrior siblings: you’re warriors too.

If your family has experienced the NICU, tell us about your warrior’s siblings and how they navigated the journey together. 💚

09/28/2026

💚 September 28 is NICU Staff Appreciation Day! 💚

It takes an entire team to care for our tiniest warriors. 🏥💚

Behind every NICU journey is an incredible group of people — neonatologists, nurses, respiratory therapists, occupational and physical therapists, dietitians, pharmacists, social workers, child life specialists, surgeons, and so many others working together to care for babies and support their families.

For O Warrior families, these teams often take on an even bigger role. They learn the complexities of our warriors, celebrate the smallest victories alongside us, answer countless questions, advocate for our babies, and help parents find their footing in a world they never expected to enter.

Today, we celebrate every person who makes the NICU what it is. 💚

If your O Warrior spent time in the NICU, give a shoutout to a staff member or team who made a difference in your family’s journey! 👇

09/27/2026

💚 September 27 is NICU Giving Day! 💚

For many O Warrior families, the NICU becomes an unexpected home away from home — a place filled with some of the hardest days, but also incredible care, compassion, hope, and love.

On NICU Giving Day, we’re celebrating the people and programs that make those days a little easier for babies and their families. Whether it’s donating to your local NICU, supporting a NICU family, giving to an organization that serves medically complex children, or simply finding your own way to give back — every act of kindness matters. 💚

This NICU Awareness Month, you can also support O Warrior and help us continue our mission of supporting families affected by omphalocele, building community, raising awareness, and advancing research.

For those of us whose families have experienced the NICU, giving back can be a beautiful way to honour the people who cared for our warriors — and help the families coming behind us. 💚

How has your family given back to the NICU that cared for your warrior? We’d love to hear your ideas in the comments!

09/26/2026

💚 September 26 is NICU Remembrance Day 💚

Today, we hold space for the babies whose NICU journeys ended far too soon, and for the families who carry their memory every single day.

NICU Awareness Month is a time to celebrate incredible milestones and homecomings, but it is also a time to remember. Some families leave the NICU without their baby in their arms, and their stories deserve to be seen, spoken, and honoured too. 💚

To every family remembering a little warrior today: their life mattered. Their story matters. Their memory lives on.

We remember the tiny footprints that left an immeasurable mark on the hearts of those who love them. 🕯️💚

09/25/2026

💚 NICU Awareness Month: NICU Spotlight 💚

Today’s NICU Spotlight brings us back to Levine Children’s Hospital, where O Warrior Grace was surrounded by a medical team who became so much more than her caregivers. 🏥💚

From her neonatologists and respiratory therapists to her therapists and nurses, Grace’s team loved her, advocated for her, and celebrated her every step of the way.

But perhaps most importantly, they saw beyond her medical complexities. They got to know Grace — the baby behind the diagnosis. 💚

For her family, the NICU became a home away from home, and the people caring for Grace became family.

Thank you to the incredible team at Levine Children’s Hospital for loving this little O Warrior alongside her family and making sure she was always seen for exactly who she was. 💚

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6483 W 8170 S
West Jordan, UT
84081

Website

https://owarrior.org/

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