Hope for HIE Foundation - Hypoxic Ischemic Encephalopathy

09/23/2026

Cooling treatment expands in 🇻🇳Vietnam🇻🇳 to help more HIE babies:

Can Tho City Children's Hospital has for the first time implemented controlled hypothermia techniques to treat newborns with cerebral hypoxia and ischemia.

09/23/2026

Another reason we love partnering with Cerebral Palsy Research Network - CPRN! 🧠☀️

09/22/2026

Save the date for Hope for HIE’s October virtual support group sessions!

➡️ All of Hope for HIE's support groups are led by our Certified Social Worker, Jennifer, and aim to engage families in a space of healing and hope, no matter where their journey may take them, talking with others to build connections and support. The Navigating More Severe Outcomes group will be peer-led.

➡️ All sessions take place on a closed Zoom meeting experience and are designated for parents and legal guardians of children with HIE, unless otherwise specified.

➡️ Registration Links:
🔗 Newly Diagnosed Families: Tinyurl.com/NewtoHIE2026
🔗 Navigating HIE with Children 17+: Tinyurl.com/HIE17AndUpOct26
🔗 Loss Families: Tinyurl.com/HIELossSupport2026
🔗 Extended Family Support: Tinyurl.com/ExtendedFamilyOct26
🔗 Navigating More Severe Outcomes: Tinyurl.com/MoreSevereOutcomesOct26
🔗 Work/Life Balance: Tinyurl.com/WorkLifeBalanceOct26
🔗 HIE and Mild Outcomes: Tinyurl.com/MildOutcomesOct26
🔗 Navigating Puberty (Girls): Tinyurl.com/NavigatingGirlsPubertyOct26
🔗 HIE Loss Within the Last Year: Tinyurl.com/LossWithinLastYearOct26

09/22/2026

In this Medical Advisory Board Education Series, Melissa Akinwalon, Hope for HIE board member and HIE parent, hosts a Q&A with Dr. Mohamed El-Dib, Director of Neonatal Neurocritical Care at Mass General Brigham for Children. Dr. El-Dib also serves on Hope for HIE’s Medical Advisory Board.

09/22/2026

It's Toolbox Tuesday!
🎨💉🫧🩺💫

This week’s resource is a comprehensive G-tube resource guide from a partner, Child Life On Call. Whether your family is new to a G-tube, navigating changes, or looking for additional support along the way, this guide brings together a variety of helpful resources all in one place.

You’ll find books for children and families, podcasts, blogs, videos for parents and kids, teaching resources, G-tube accessories, organizations, and other helpful information. We hope this collection gives you a few new tools to add to your family’s toolbox and helps make the G-tube journey feel a little more manageable.

Check it out! ⬇️
🔗 Tinyurl.com/GTubeResourcesCLOC

09/21/2026

Join Hope for HIE on Monday, September 28, at 8:00 PM ET for a virtual support group focused on HIE and Mild Outcomes—open to parents and legal guardians seeking additional support and guidance.

➡️ This closed Zoom session will offer a supportive space to connect, share experiences, and explore the emotional complexities that can come with a mild HIE outcome.

Together, we’ll create space to talk about:

❖ Survivor’s guilt & comparison
❖ Trauma despite a mild outcome
❖ Living with uncertainty
❖ Ambiguous grief
❖ Permission to struggle and take up space

🔗 Register: Tinyurl.com/MildOutcomesSep26

09/21/2026

Hope for HIE connects and supports over 15,000 families worldwide, providing comprehensive peer support programs and services administered by trained professional staff and volunteers.

🔹 Hope for HIE's peer support programs connect families with others who truly understand life after an HIE diagnosis. From trained peer mentors to in-person meetups and monthly peer-led discussions, there are so many ways to feel seen, supported, and not alone.

🔹 Connect in at HIE.Support - fill out the support request, and sign up for the specific support you need in your journey.

09/20/2026

Milwaukee area families — meet up for a Picnic in the Park at Malone Park!

Kacie Miller, HIE mom and Hospital Ambassador at Children's Wisconsin, is hosting a meet-up for local HIE families. Families will meet right outside the inclusive playground. Bring a blanket and a snack and Kacie will provide apple c***r, coffee, and apple juice for kids.

🗓️ Sunday, September 27th
🕚 2:00PM CT
📍 Malone Park, 16400 W Al Stigler Pkwy, New Berlin, WI 53151

➡️ Register: Tinyurl.com/MilwaukeeSept2026

09/18/2026

Hope for HIE is proud to partner with for ! 💚

Over 50% of NICU babies are full-term, and many families impacted by HIE are often left out of advocacy and support conversations.

💚 Inclusion matters.
Families of full-term NICU babies should be represented on advocacy panels, speaking opportunities, and programs—helping to ensure everyone has access to the information, support, and resources they need.

💚 Name the diagnosis.
Recognizing HIE allows families to get the guidance and tools to best support their child.

💚 More treatments and prevention are needed.
Advancements in care, prenatal interventions, and quality improvement around birth can improve outcomes and reduce the incidence of HIE.