Nevada Lifespan Respite Care Coalition

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The Nevada Lifespan Respite Care Coalition strives to support caregivers in our communities by promoting awareness and access to respite services and caregiver supports.

01/07/2025

A Care Reform Bill was enacted by the Scottish Government on June 10 that provides the right to a break (respite care) for unpaid carers. The right to a break has the potential to be transformative and a goal we should be pursuing in the U.S.

As important and groundbreaking as this new policy is, we have a long way to go to make sure that respite is available, affordable and most importantly, designed and offered in ways that family caregivers need and prefer.

In this recent report, Shared Care Scotland found that many carers struggle to access breaks, and when they do, they are often used for domestic chores and errands. Carers said that they would like to use breaks to rest or take time for themselves to do the things they enjoy. https://www.sharedcarescotland.org.uk/policy-practice-development/carers-survey-research-report-2024/

This aligns with research from Rebecca Utz, PhD, and Dale Lund, PhD, University of Utah. Both are long-standing participants in ARCH's Respite Research Initiative. Their research on respite time use found that family caregivers who plan for and spend their respite time in ways that are meaningful to them have more long-lasting beneficial outcomes. Watch a recent ARCH webinar: https://archrespite.org/library/webinar-time-for-living-and-caring-an-approach-to-planning-respite-time-to-maximize-caregiver-benefit/

16/06/2025

Four in five U.S. adults support making long-term care more affordable, with 79% backing reduced facility costs and 75% endorsing expanded home-based services.

18/04/2025

URGENT: Lifesaving Programs Are on the Chopping Block — Take Action Now!

A document from the White House Office of Management and Budget (OMB) has revealed devastating proposed cuts to programs that serve older adults, people with disabilities, and their family caregivers. These proposals target total elimination of essential programs at the U.S. Department of Health and Human Services (HHS) — including the Lifespan Respite Care Program, which funds more than half of the Tennessee Caregiver Coalition’s budget.

This is a draft proposal of the President’s FY 2026 budget — it is NOT FINAL. Congress has the power of the purse. We must act immediately to protect these programs before it’s too late.

Programs on the Chopping Block Include:
• Lifespan Respite Care Program
• Aging and Disability Resource Centers
• Elder Justice/Adult Protective Services
• Head Start
• Low Income Home Energy Assistance Program (LIHEAP)
• Paralysis Resource Center
• Patient-Centered Outcomes Research
• University Centers for Excellence in Developmental Disabilities
• State Councils on Developmental Disabilities
• National Institute on Disability, Independent Living, and Rehabilitation Research
• Billions in Medicaid cuts

Many of these programs have strong bipartisan support. Eliminating them would devastate families across the country.



TAKE ACTION NOW: 3 EASY STEPS
1. Call the Capitol Switchboard at (202) 224-3121
Ask to be connected to your U.S. Representative and both Senators. Leave a message if no one answers.
2. Tell Them: “Do NOT eliminate programs that support older adults, people with disabilities, and caregivers. These cuts are unacceptable.”
Add your personal story about how respite care or other programs have helped you or your family.
3. Post on Social Media
Share your story and tag your House and Senate Members. Use your voice to make this public. Tag us too so we can amplify!



Find Contact Information Here:
• U.S. House Contact Info: https://www.house.gov/representatives
• U.S. Senate Contact Info: https://www.senate.gov/senators/senators-contact.htm



These programs are lifelines. The time to act is right now. Make the call. Share your story. Protect our communities.



18/12/2024

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