National Organization for Albinism and Hypopigmentation - NOAH

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National Organization for Albinism and Hypopigmentation - NOAH

NOAH provides information & support to individuals and families with albinism and related conditions

NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families, in the United States and Canada, can find acceptance, support and fellowship.

25/09/2026

Kristina experienced exclusion as a child growing up with albinism in the UK. Now Chair of the Albinism Fellowship, she speaks about the impact of albinism on mental health, why this is a global issue, why learning self-advocacy at a young age matters, and why good advocacy always starts with listening.

Read Kristina's full story, shared by the Global Albinism Alliance and Albinism Fellowship UK & Ireland: https://www.albinismalliance.org/news/kristina-on-albinism-in-the-uk-i-dont-want-other-children-to-feel-the-way-i-did

24/09/2026

NOAH wishes a Happy Sukkot to all in our community who celebrate.

23/09/2026

Let's talk about sunscreen TOMORROW!

Shade Smarts: Sunscreen 101 + Q&A
Thursday, September 24 at 8pm ET // 5pm PT

Join Joshua Bledsoe, PhD and Jeff Hernandez, PhD for an informational session about the types of sunscreens, including the new one that was recently approved by the FDA!

Register today: https://albinism.org/NOAH-Connections/

22/09/2026

NOAH's Career Corner!
Patrick-Brian Bielawski is a Biophysics PhD student at McGill University who is researching nanoparticles, specifically those crucial to the formation of bones.
Learn more about Patrick-Brian (or submit info about YOUR job or career) at www.albinism.org/career-corner

21/09/2026

Congratulations to Christopher K. and Ernie P. who were awarded this year's NOAH Space Camp Scholarship! Both recipients received a $1,000 tuition scholarship to attend SCIVIS 2026.

We can't wait to hear all about your adventures at SCIVIS next week!
Space Camp
albinism.org/space-camp

20/09/2026

LGBTQ+ PWAs & Allies - we hope you'll join us TOMORROW, Monday, September 21st for our next NOAH Connections call just for you!

New to the group? We love meeting new friends! Register today: www.albinism.org/NOAH-Connections/

19/09/2026

Don't miss our next NOAHCon Replay!

Join us TOMORROW Sunday, September 20th at 1pm ET // 10am PT for an encore presentation of Albinism Mythbusters, featuring Professor Jay Self, BM, FRCOphth, PhD and Kristina Venning Rose

Register today: www.albinism.org/NOAH-Connections/

18/09/2026

FYI: NASA Hosts Virtual Artemis Webinar for Blind, Low-Vision Community
NASA will host a virtual webinar about Artemis for the blind and low-vision community at 2 p.m. EDT on Friday, Oct. 2.

The webinar will last about two hours and include an audio-described video of an RS-25 engine test, a Q&A session with an Artemis engineer, and a panel about accessibility in space and science.

Register by Friday, Sept. 25
https://www.nasa.gov/general/nasa-hosts-virtual-artemis-webinar-for-blind-low-vision-community/

17/09/2026

Save the dates!

Adult Weekend is heading to Louisville, KY, September 24-26, 2027. Planning is underway, so mark your calendars and stay tuned for more information!

While you wait, explore Adult Weekend 2025 and memories from previous gatherings to see what makes this weekend so special!

https://albinism.org/adult-weekend/

16/09/2026

You're Invited to Parent Connections!

NOAH Parents, we hope you'll join us for our next session of Parent Connections! Ashley Maynard and friends can't wait to see you next Wednesday, September 23rd at 8:30pm ET // 5:30pm PT.

New to the group? Sign up today!
www.albinism.org/NOAH-Connections/

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Telephone

+16038872310

Website

http://www.albinism.org/

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