National Organization for Albinism and Hypopigmentation - NOAH

Home
National Organization for Albinism and Hypopigmentation - NOAH

NOAH provides information & support to individuals and families with albinism and related conditions

NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families, in the United States and Canada, can find acceptance, support and fellowship.

22/08/2026

Aging with Albinism: Low Vision Driving!

We are pleased to welcome guest speaker Chuck Huss, COMS, DRS to both of our Aging with Albinism calls in September to discuss Low Vision Driving.

Interested in joining us? Register today: www.albinism.org/NOAH-Connections/

21/08/2026

10 years ago, Courtney Korb became a Parent Liaison with NOAH's New Parent Program with the goal of being a resource for other families. Since then, countless families have been impacted by her compassion & encouragement. As she moves on from this role, we invite those who were touched by Courtney's support to share their gratitude!

Read a message from NOAH's New Parent Program Coordinator Megan Pitt LMHC-D about Courtney: www.albinism.org/new-parent-program/pl/ -you

20/08/2026

We are pleased to share that Owen Delatte has been selected as the 2026 McGowan Leadership Memorial Scholarship recipient!

Owen has been involved with NOAH since he was just 1 year old, and the lifelong connection and education has enabled him to help others and become a strong self-advocate.

This fall, Owen will pursue a degree in Chemical Engineering with a minor in Chemistry at the University of Louisiana at Lafayette.

Congratulations, Owen!!

www.albinism.org/leadership

19/08/2026

We Want YOU for the Autumn Issue of Albinism InSight!

We invite you to share your knowledge and experiences for our upcoming issue of Albinism InSight magazine. Learn more & submit by September 2nd: www.albinism.org/AI/call-for-content

18/08/2026

Navigating the IEP: A Guide for Parents

Parents & caregivers - join Kathi Garza, M.Ed., TVI; Anne Corn, Ed.D.; and Kayla Hamlin, TVI, COMS next Tuesday, August 25th at 9pm ET // 6pm PT as they share insights on navigating the IEP.

Register today: www.albinism.org/NOAH-Connections/

Have questions for our panelists? Share them in the comments and we'll pass them along ahead of the call!

17/08/2026

Join us this week for NOAH Connections!

TODAY - Newly-Diagnosed Workshop (pre-registration required)
Tuesday - Aging with Albinism
Thursday - Teen Social Connections

Learn more & register today: www.albinism.org/NOAH-Connections

16/08/2026

Last chance for conference feedback!

When you submit a Conference or Session Evaluation, you help inform future NOAH programming! Complete your evaluations by August 19th for the chance to win $50 off a future NOAH event registration.

🔗 survey links are available through the attendee page

15/08/2026

If you've been considering joining our PWA Book Club, now's the perfect time!

Our next meeting is one month away, so grab a copy of "The Correspondent" by Virginia Evans and start reading. We'll meet to discuss on Monday, September 14th at 8pm ET // 5pm PT.

Learn more & register today: www.albinism.org/NOAH-Connections/ -book-club

14/08/2026

Parents & students with albinism - share your back to school tips!

Whether you recommend a particular calculator or have a suggestion for navigating a new school, we want to hear from YOU! Share your best tips and tricks for students with albinism of all ages ⬇️

13/08/2026

Last chance to register!!

Parents of young and newly-diagnosed children with albinism - join Megan Pitt, LMHC-D on Monday, August 17th at 8:30pm ET // 5:30pm PT to gain support from a community of parents while learning actionable tools and strategies for your current stage of parenting.

Register by August 15th: www.albinism.org/NOAH-Connections/

Address

Telephone

+16038872310

Website

http://www.albinism.org/

Alerts

Be the first to know and let us send you an email when National Organization for Albinism and Hypopigmentation - NOAH posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to National Organization for Albinism and Hypopigmentation - NOAH:

Want your organization to be the top-listed Non Profit Organization?

Country:

City: