West Michigan Spina Bifida Organization

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West Michigan Spina Bifida Organization Celebrating and supporting individuals with Spina Bifida

02/10/2026
09/09/2026
https://www.spinabifidaassociation.org/participate-in-research/Participate in ResearchCheck out some of the Spina Bifida...
14/08/2026

https://www.spinabifidaassociation.org/participate-in-research/

Participate in Research

Check out some of the Spina Bifida research projects now enrolling participants! Click the button below to explore the current research opportunities and consider participating if you are eligible.

For Adults
Sexual Health Education and Practices in Individuals with Spina Bifida
Develop and Test Home- and Community-Based Services Outcomes Research Outcome Measures
Spina Bifida and Sexual Well-Being
Independence & Self-Management Survey for Adults with Spina Bifida
Quality of Life Outcomes in Young Adults Ages 18–30 with Spina Bifida

For Children
Research Study Trial on Tibial Nerve Stimulation for Neurogenic Bladder (in person in Houston)

For Families & Individuals with Spina Bifida
Exploring Self-Compassion in Caregivers of Youth with Spina Bifida
Management of Myelomeningocele Study Continuation (MOMS 3)
Spina Bifida Sequencing

For Expectant Families
Prenatal Possibilities Prenatal Interview

Explore research opportunities for adults with spina bifida. The Spina Bifida Association connects participants with evidence-based studies.

21/04/2026

We would love to honor you this Mother’s Day.

If you’re a mom of a child with a disability, you know how full life can feel… and how rare it is to sit at a table with people who truly understand.

On May 7th at 6pm, we’re setting a table for you.
We’ll share a meal, do some painting, and spend time with other moms who get it.

That’s it. Just space to show up as you are.

Spots are limited.

We’d love to save you a seat.

https://www.eventbrite.com/e/mothers-day-diner-tickets-1987931010165?aff=oddtdtcreator

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MI

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+16163202356

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