Vasculitis Foundation

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Vasculitis Foundation Awareness. Support. Research. The foundation also supports and empowers patients through education and awareness.
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The Vasculitis Foundation (www.vasculitisfoundation.org) advocates for early diagnosis, leading edge treatment, research, and ultimately a cure for all types of vasculitis. The Vasculitis Foundation is a registered 501(c)(3) non-profit organization. To donate, please visit: https://www.vasculitisfoundation.org/donate/

We need your help fighting vasculitis, a group of rare, orphan diseases that de

serves your attention. A vasculitis diagnosis irreversibly changes the lives of the adults and children who have it. Some patients lose their lives to it before a diagnosis is made. There is no known cause of vasculitis...no known cure. Patients need your support because their lives are irreversibly and dramatically
changed by the disease. Vasculitis wreaks havoc on lives and can cause organ loss, disability, and death. A 2010 survey of vasculitis patients and caregivers, found that 28 percent of patients are on disability due to vasculitis and 26 percent needed to change their work capacity to accommodate their illness. Additionally, 25 percent of family members surveyed reported the death of a loved one due to vasculitis. Vasculitis effects people of all ages, from children to adults. Autoimmune in the nature, a vasculitis patient’s own immune system causes inflammation that damages arteries, veins, or capillaries. This inflammation may narrow blood vessels, cause aneurisms, as well as block vital blood flow to organs and limbs. This blockage can cause serious organ damage and without proper treatment may even result in death. Vasculitis is difficult to diagnose and is often misdiagnosed due to its rarity and scant research, delaying treatment and proper disease management. Oftentimes, it is the resulting damage that finally leads doctors to a proper diagnosis.

To all the motherly figures who give love, hugs, encouragement, and steady support in so many different ways 💜Whether by...
10/05/2026

To all the motherly figures who give love, hugs, encouragement, and steady support in so many different ways 💜

Whether by birth, by choice, or by heart, your care makes a lasting difference every single day.

Today we celebrate you, and we are grateful for you always.

Happy Mother’s Day 💐

09/05/2026

What if you could ask the experts directly?

At the 2026 International Vasculitis Symposium, that is exactly what happens.

This global event brings together patients, caregivers, physicians, researchers, and advocates for a weekend focused on learning, support, and meaningful connection.

Attendees gain access to the latest updates in research and treatment, practical tools for daily life, and the opportunity to engage directly with leading vasculitis specialists and a community that understands this journey.

If you or someone you love is impacted by vasculitis, this is a space to feel informed, supported, and connected.

We are proud to recognize as the presenting sponsor of the 2026 International Vasculitis Symposium. Thank you for your continued partnership and support of the vasculitis community.

👉 Register now and learn more: vasculitisfoundation.org/connect/symposium/

Progress in vasculitis care starts with people.The VCRC-VF Fellowship Program trains the next generation of physician-in...
08/05/2026

Progress in vasculitis care starts with people.

The VCRC-VF Fellowship Program trains the next generation of physician-investigators dedicated to diagnosing, treating, and advancing research in vasculitis.

Through up to two years of mentored, specialized training, fellows work alongside leading experts across North America to improve patient outcomes.

Since 2014, more than 25 physician-researchers have completed the program, with new fellows joining each year.

This Vasculitis Awareness Month, we recognize the importance of investing in expertise and innovation to move care forward.

🔗 Support the future of vasculitis care here: vasculitisfoundation.org/vasculitis-awareness-month/

It's Vasculitis Awareness Month and we want YOU to help spread the word! 🎉We've put together a free VAM26 toolkit packed...
08/05/2026

It's Vasculitis Awareness Month and we want YOU to help spread the word! 🎉

We've put together a free VAM26 toolkit packed with ready-to-use Facebook and Instagram graphics including posts, banners, and profile pictures. All you have to do is download them and share on your own page.

It takes just a few minutes and makes a huge difference for a community that deserves to be seen. As we celebrate 40 years of the Vasculitis Foundation this year, let's make this May our loudest one yet!

Browse the toolkit here 👉 vasculitisfoundation.org/living-well/raise-awareness/fundraise-and-promote-on-social-media/

There is no roadmap for vasculitis but there is support 💜Applications are now open for the summer session of Navigating ...
07/05/2026

There is no roadmap for vasculitis but there is support 💜

Applications are now open for the summer session of Navigating Your Vasculitis Journey.

This six week online program offers practical tools, guided conversations, and a supportive community of people who understand the reality of living with this disease.

You are not expected to do this alone.

🗓️ Space is limited. Apply here: https://www.surveymonkey.com/r/HK5Q796

07/05/2026

For years, Brandi knew something was wrong.

When her diagnosis finally came – GPA, a form of ANCA-associated vasculitis – relief arrived alongside it.

For people like Brandi, getting the right answers can open the door to the right care.

This , the Vasculitis Foundation and Amgen are committed to supporting the ANCA-associated vasculitis community.

📌 Discover the comprehensive ANCA Resource hub for patients, caregivers, and healthcare providers at www.ancaresourcehub.com

06/05/2026

What does life with vasculitis really look like—not just at diagnosis, but years later?

Join us for a free webinar, Living with Vasculitis: Patient Perspectives from Diagnosis to Long-Term Life, where members of the Victory Over Vasculitis (VOV) committee share honest, real-life experiences from different stages of the journey.

From the early days after diagnosis to long-term life, this patient roundtable will explore what changes over time, lessons learned, and what they wish they had known sooner.

Whether you are newly diagnosed or have been living with vasculitis for years, this conversation offers insight, reassurance, and connection.

🗓️ Monday, May 11
🕐 1 PM CT
🔗 Register here: events.vasculitisfoundation.org

Eosinophilic Awareness Month is here!  This May, we’re proud to support  and join the effort to raise awareness of Eosin...
06/05/2026

Eosinophilic Awareness Month is here!

This May, we’re proud to support and join the effort to raise awareness of Eosinophilic Gastrointestinal Type 2 Inflammatory Associated Diseases. These conditions are often missed or misdiagnosed. By spotlighting signs and symptoms, we can help drive earlier diagnosis and better patient care.

The EOS Network releases weekly toolkits throughout May, which are full of resources and ideas to help the medical and patient communities get involved. 💜 Awareness matters.

Together, we can change outcomes.
👉 Learn more and access the toolkit: www.eosnetwork.org/Listing/Category/eosinophilic-awareness-month-2026

05/05/2026

When someone hears the word vasculitis, many feel overwhelmed and alone.

That’s why Community Hero Dana DeMoulin is so important. Dana facilitates more than 20 support groups each month, helping patients connect, feel understood, and find their footing in a new reality.

Support groups are often the first place people realize they are not alone.

💙 Your gift keeps these life-changing connections strong: vasculitisfoundation.org/vasculitis-awareness-month/

Applications are now open for the summer session of Navigating Your Vasculitis Journey 💜Living with vasculitis can feel ...
05/05/2026

Applications are now open for the summer session of Navigating Your Vasculitis Journey 💜

Living with vasculitis can feel overwhelming but you do not have to go through it alone. This six week online program is designed to help you manage daily challenges through practical strategies, group discussions, and supportive guidance.

You will connect with others who understand your experience, gain helpful tools, and find strength in community.

🗓️ Space is limited. Learn more and apply at vasculitisfoundation.org/navigating-your-vasculitis-journey-course.

May the Fourth be with you!💫Throwing it back to 2015 when our galaxy came together for a special Star Wars fundraiser in...
04/05/2026

May the Fourth be with you!💫

Throwing it back to 2015 when our galaxy came together for a special Star Wars fundraiser in Pittsburgh!

Anyone else in a galaxy far, far away today?

Support Vasculitis Awareness Month: vasculitisfoundation.org/vasculitis-awareness-month/

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Opening Hours

Monday 08:30 - 17:00
Tuesday 08:30 - 17:00
Wednesday 08:30 - 17:00
Thursday 08:30 - 17:00
Friday 08:30 - 17:00

Telephone

+18164368211

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