Vasculitis Foundation

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Vasculitis Foundation Awareness. Support. Research. The foundation also supports and empowers patients through education and awareness.

The Vasculitis Foundation (www.vasculitisfoundation.org) advocates for early diagnosis, leading edge treatment, research, and ultimately a cure for all types of vasculitis. The Vasculitis Foundation is a registered 501(c)(3) non-profit organization. To donate, please visit: https://www.vasculitisfoundation.org/donate/

We need your help fighting vasculitis, a group of rare, orphan diseases that deserves your attention. A vasculitis diagnosis irreversibly changes the lives of the adults and children who have it. Some patients lose their lives to it before a diagnosis is made. There is no known cause of vasculitis...no known cure. Patients need your support because their lives are irreversibly and dramatically
changed by the disease. Vasculitis wreaks havoc on lives and can cause organ loss, disability, and death. A 2010 survey of vasculitis patients and caregivers, found that 28 percent of patients are on disability due to vasculitis and 26 percent needed to change their work capacity to accommodate their illness. Additionally, 25 percent of family members surveyed reported the death of a loved one due to vasculitis. Vasculitis effects people of all ages, from children to adults. Autoimmune in the nature, a vasculitis patient’s own immune system causes inflammation that damages arteries, veins, or capillaries. This inflammation may narrow blood vessels, cause aneurisms, as well as block vital blood flow to organs and limbs. This blockage can cause serious organ damage and without proper treatment may even result in death. Vasculitis is difficult to diagnose and is often misdiagnosed due to its rarity and scant research, delaying treatment and proper disease management. Oftentimes, it is the resulting damage that finally leads doctors to a proper diagnosis.

Receiving a vasculitis diagnosis can be a long and challenging journey. Because vasculitis is rare and symptoms can vary...
14/10/2026

Receiving a vasculitis diagnosis can be a long and challenging journey. Because vasculitis is rare and symptoms can vary widely, recognizing the signs and reaching the right diagnosis can take time.

Through our V-RED Program, we recognize the professionals who help identify vasculitis, provide a diagnosis, and connect patients with care and treatment.

If a doctor, nurse, or other health care professional played an important role in your vasculitis diagnosis, nominate them for recognition at https://bit.ly/4ywpV5S

Nominations are open through Friday, Oct 16.

Fall 🤝 TV MarathonsWhat’s your comfort show or movie?
14/10/2026

Fall 🤝 TV Marathons

What’s your comfort show or movie?

Think vasculitis only happens later in life? Think again. This disease can impact anyone, at any age. Awareness and earl...
12/10/2026

Think vasculitis only happens later in life? Think again.

This disease can impact anyone, at any age. Awareness and early recognition are key to getting the right care when it’s needed most. 💙

Learn more https://bit.ly/4jozGih

At 14 years old, just six months after losing her father, Shelley was diagnosed with granulomatosis with polyangiitis (G...
11/10/2026

At 14 years old, just six months after losing her father, Shelley was diagnosed with granulomatosis with polyangiitis (GPA), a form of vasculitis she'd never even heard of before.

Her symptoms escalated within days, from mild abdominal pain to holes forming in her lungs and her kidneys under attack. Doctors later told her that if she'd waited just three more days to be seen, she likely wouldn't have survived.

Shelley has been in remission since 2011, and today, at 30, she's thriving.

Read the full story at https://vasculitisfoundation.org/carrying-what-did-not-break-her/

Four new webinars have been added! Register for free at https://events.vasculitisfoundation.orgNose-to-Nose: Patient & C...
10/10/2026

Four new webinars have been added! Register for free at https://events.vasculitisfoundation.org

Nose-to-Nose: Patient & Clinician Chat on ANCA-Associated Vasculitis (Thursday, October 22 at 5:00 PM CT)

Newly Diagnosed with PMR: What’s Next? (Wednesday, November 4 at 11:00AM CT)

Understanding Biologics: For EGPA, Severe Asthma, and COPD (Tuesday, November 17 at 11:00AM CT)

Steroids and Vasculitis: Benefits, Side Effects, and Management (Thursday, December 10 at 11:00AM CT)

10/10/2026

Today is World Mental Health Day. Living with a chronic illness like vasculitis affects more than the body, it affects mental health too.

Anxiety, stress, and depression can also impact daily life, relationships, disease management, and overall quality of life.

In this patient-focused webinar, Dana DiRenzo, MD, MHS, of the University of Pennsylvania, explores the connection between mental health and vasculitis and shares strategies for recognizing and managing the emotional challenges of living with a chronic illness.

- Recognizing anxiety, stress, and depression
- How mental health can affect physical health
- Tools used to assess emotional well-being
- Strategies for managing stress, including mindfulness

Watch now at https://bit.ly/4dUmbmU

Receiving a vasculitis diagnosis can be a long and challenging journey. Because vasculitis is rare and symptoms can vary...
09/10/2026

Receiving a vasculitis diagnosis can be a long and challenging journey. Because vasculitis is rare and symptoms can vary widely, recognizing the signs and reaching the right diagnosis can take time.

Through our V-RED Program, we recognize the health care professionals who help identify vasculitis, provide a diagnosis, and connect patients with the vasculitis care and treatment they need.

If a doctor, nurse, or other health care professional played an important role in your vasculitis diagnosis, we invite you to nominate them for recognition.

Submit your nomination today: https://bit.ly/4yD5uoG

Nominations are open through Friday, October 16, 2026.
Nominees and award recipients will be announced in December.

08/10/2026

Being diagnosed with a rare disease as a teen comes with challenges most of their friends will never understand.

Doctor's appointments instead of hangouts, medications and side effects, and the work of figuring out who you are while also managing a chronic illness.

Join the VF Teen Chat at https://bit.ly/4xKigjW

Rock beats scissors…
07/10/2026

Rock beats scissors…

Just diagnosed with vasculitis? It’s normal to feel overwhelmed, scared, or even relieved to finally have answers. The V...
05/10/2026

Just diagnosed with vasculitis? It’s normal to feel overwhelmed, scared, or even relieved to finally have answers.

The Vasculitis Foundation is here to guide you every step of the way with resources on:

💙 Learning about your specific type of vasculitis
💙 Building a personalized treatment plan with your healthcare team
💙 Understanding medications and managing side effects
💙 Protecting yourself while immunocompromised
💙 Finding support from others who understand
💙 Caring for your mind and body with tips for movement, mental health, and self-advocacy.. and more!

Explore videos, resources, and a community that understands what you’re going through. Get started and take control of your vasculitis journey at
vasculitisfoundation.org/newly-diagnosed/

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Opening Hours

Monday 08:30 - 17:00
Tuesday 08:30 - 17:00
Wednesday 08:30 - 17:00
Thursday 08:30 - 17:00
Friday 08:30 - 17:00

Telephone

+18164368211

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