Vasculitis Foundation

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Vasculitis Foundation Awareness. Support. Research. The foundation also supports and empowers patients through education and awareness.

The Vasculitis Foundation (www.vasculitisfoundation.org) advocates for early diagnosis, leading edge treatment, research, and ultimately a cure for all types of vasculitis. The Vasculitis Foundation is a registered 501(c)(3) non-profit organization. To donate, please visit: https://www.vasculitisfoundation.org/donate/

We need your help fighting vasculitis, a group of rare, orphan diseases that de

serves your attention. A vasculitis diagnosis irreversibly changes the lives of the adults and children who have it. Some patients lose their lives to it before a diagnosis is made. There is no known cause of vasculitis...no known cure. Patients need your support because their lives are irreversibly and dramatically
changed by the disease. Vasculitis wreaks havoc on lives and can cause organ loss, disability, and death. A 2010 survey of vasculitis patients and caregivers, found that 28 percent of patients are on disability due to vasculitis and 26 percent needed to change their work capacity to accommodate their illness. Additionally, 25 percent of family members surveyed reported the death of a loved one due to vasculitis. Vasculitis effects people of all ages, from children to adults. Autoimmune in the nature, a vasculitis patient’s own immune system causes inflammation that damages arteries, veins, or capillaries. This inflammation may narrow blood vessels, cause aneurisms, as well as block vital blood flow to organs and limbs. This blockage can cause serious organ damage and without proper treatment may even result in death. Vasculitis is difficult to diagnose and is often misdiagnosed due to its rarity and scant research, delaying treatment and proper disease management. Oftentimes, it is the resulting damage that finally leads doctors to a proper diagnosis.

Your friend with vasculitis probably hasn't told you all of this, but they've thought about it.We put together a few thi...
08/06/2026

Your friend with vasculitis probably hasn't told you all of this, but they've thought about it.

We put together a few things that might help you understand what life with vasculitis actually looks like from the inside.

Because the best thing you can do for someone you love who's living with this disease is just... get it a little better. 💜

If Vasculitis Awareness Month brought you here... welcome! We're so glad you found us.We're the Vasculitis Foundation. F...
06/06/2026

If Vasculitis Awareness Month brought you here... welcome! We're so glad you found us.

We're the Vasculitis Foundation. For 40 years, we've existed for one reason, to support patients, caregivers, and families navigating life with vasculitis.

From free webinars and support groups to doctor finders, patient blogs, and the annual International Vasculitis Symposium, we're here for every part of this journey.

Reach out anytime. You are not alone in this. 👇
vasculitisfoundation.org

Vasculitis Foundation is partnering with Sanguine Biosciences, a provider of at-home clinical research services, to shar...
05/06/2026

Vasculitis Foundation is partnering with Sanguine Biosciences, a provider of at-home clinical research services, to share an at-home study opportunity for those interested in advancing Behcet's Disease research.

Learn more at studies.sanguinebio.com/condition/behcetsdisease/?campaign=npovf_bs, or call 855-836-4759 to speak with a research coordinator and see if you qualify.

Most people with vasculitis go years feeling like no one around them truly understands.The doctors who don't have answer...
04/06/2026

Most people with vasculitis go years feeling like no one around them truly understands.

The doctors who don't have answers yet. The friends who mean well but don't get it. The days you just can't explain to anyone.

That's exactly why the International Vasculitis Symposium exists.

July 17–19 in Denver, you'll be in a room full of people who just get it. Patients, caregivers, researchers, and specialists all under one roof.

Learn more and register at vasculitisfoundation.org/connect/symposium

Thank you to our presenting sponsor, Amgen, for making this event possible.

03/06/2026

The Vasculitis Foundation first met the Morrow family in 2012.

Their son Nick had just been diagnosed, and they were figuring out what life with vasculitis was going to look like.

Now, years later, they're back to talk about one of the hardest transitions a vasculitis family can face.

Growing up. Moving from pediatric to adult care. Learning to hand the reins from parent to patient.

This free webinar is an honest and real-world conversation you won't want to miss, especially if you're a parent, caregiver, or young adult navigating this right now.

Wednesday, June 10th at 2:30 PM CT / 3:30 PM ET
Register for free at events.vasculitisfoundation.org

3 hospitals. 3 wrong answers. By the time doctors finally figured it out, Ezra was on life support at 32 years old.He wo...
02/06/2026

3 hospitals. 3 wrong answers. By the time doctors finally figured it out, Ezra was on life support at 32 years old.

He woke up from a medically induced coma with a diagnosis he'd never heard of, a long road ahead, and a new outlook on life.

👉 Read his full story at vasculitisfoundation.org/a-second-chance-at-life/

Vasculitis Awareness Month would not be possible without you 💜To every patient, caregiver, advocate, volunteer, clinicia...
01/06/2026

Vasculitis Awareness Month would not be possible without you 💜

To every patient, caregiver, advocate, volunteer, clinician, and researcher who shared, supported, and helped spread awareness this month, thank you. Your voices and your presence are what bring this community to life.

We also extend our deepest gratitude to Amgen for sponsoring Vasculitis Awareness Month and helping make this important work possible.

Together, we are building awareness, connection, and hope. 💙

As Vasculitis Awareness Month comes to a close, there's still time to make a difference. Your donation funds critical re...
01/06/2026

As Vasculitis Awareness Month comes to a close, there's still time to make a difference. Your donation funds critical research, supports patients, and brings us closer to better treatments.

Don't let this month end in silence. Give today at vasculitisfoundation.org/ways-to-give/make-a-donation/

Hope takes many forms:• Patients turning diagnosis into advocacy• Researchers bridging science and lived experience • Pe...
31/05/2026

Hope takes many forms:
• Patients turning diagnosis into advocacy
• Researchers bridging science and lived experience
• Pediatric specialists advancing care
• Support groups transforming fear into hope
• Donors making it all possible

As Vasculitis Awareness Month comes to a close, help power the next 40 years of progress.

💙 Make your gift today: vasculitisfoundation.org/vasculitis-awareness-month/

Address

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Opening Hours

Monday 08:30 - 17:00
Tuesday 08:30 - 17:00
Wednesday 08:30 - 17:00
Thursday 08:30 - 17:00
Friday 08:30 - 17:00

Telephone

+18164368211

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