Vasculitis Foundation

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Vasculitis Foundation Awareness. Support. Research. The foundation also supports and empowers patients through education and awareness.

The Vasculitis Foundation (www.vasculitisfoundation.org) advocates for early diagnosis, leading edge treatment, research, and ultimately a cure for all types of vasculitis. The Vasculitis Foundation is a registered 501(c)(3) non-profit organization. To donate, please visit: https://www.vasculitisfoundation.org/donate/

We need your help fighting vasculitis, a group of rare, orphan diseases that de

serves your attention. A vasculitis diagnosis irreversibly changes the lives of the adults and children who have it. Some patients lose their lives to it before a diagnosis is made. There is no known cause of vasculitis...no known cure. Patients need your support because their lives are irreversibly and dramatically
changed by the disease. Vasculitis wreaks havoc on lives and can cause organ loss, disability, and death. A 2010 survey of vasculitis patients and caregivers, found that 28 percent of patients are on disability due to vasculitis and 26 percent needed to change their work capacity to accommodate their illness. Additionally, 25 percent of family members surveyed reported the death of a loved one due to vasculitis. Vasculitis effects people of all ages, from children to adults. Autoimmune in the nature, a vasculitis patient’s own immune system causes inflammation that damages arteries, veins, or capillaries. This inflammation may narrow blood vessels, cause aneurisms, as well as block vital blood flow to organs and limbs. This blockage can cause serious organ damage and without proper treatment may even result in death. Vasculitis is difficult to diagnose and is often misdiagnosed due to its rarity and scant research, delaying treatment and proper disease management. Oftentimes, it is the resulting damage that finally leads doctors to a proper diagnosis.

10/08/2026

Survey says... the International Vasculitis Symposium had a Family Feud showdown and it did NOT disappoint.

Fatigue isn't laziness. Brain fog isn't carelessness. And a sick day isn't always about a cold.Coworkers, partners, frie...
09/08/2026

Fatigue isn't laziness. Brain fog isn't carelessness. And a sick day isn't always about a cold.

Coworkers, partners, friends… what's one thing you wish you understood sooner? Tell us below.

Finding a doctor who understands vasculitis can be challenging, but this tool makes it easier than ever.With over 1,000 ...
07/08/2026

Finding a doctor who understands vasculitis can be challenging, but this tool makes it easier than ever.

With over 1,000 providers listed (and counting) you can:
✔️ Find doctors who truly understand vasculitis
✔️ Identify providers offering telehealth or clinical trials
✔️ Locate Vasculitis Centers of Excellence near you

Together, we’re breaking down barriers to care and connecting more people with the specialists they deserve.

Explore the directory today: vasculitisfoundation.org/find-a-doctor

It’s not “just being tired.”It’s not “just a rash.”It’s not “just sinus issues.”For many living with vasculitis, the mos...
06/08/2026

It’s not “just being tired.”
It’s not “just a rash.”
It’s not “just sinus issues.”

For many living with vasculitis, the most common symptoms get overlooked. Fatigue that doesn’t go away, constant pain, unexplained rashes, sinus problems, and so many “invisible” symptoms others can’t see.

These symptoms are real, and so are the people living with them. 💜
Learn more at vasculitisfoundation.org/

"Believe." 💛 It's more than a Ted Lasso catchphrase, it's something a lot of our community holds onto every day. P.S. Se...
05/08/2026

"Believe." 💛 It's more than a Ted Lasso catchphrase, it's something a lot of our community holds onto every day.

P.S. Season 4 releases today, so if you need a warm and hopeful show for your next break (or flare-day couch session), we've got a recommendation for you.

Takayasu arteritis (TAK) is a rare form of vasculitis that affects the aorta, the body's largest artery, and its main br...
03/08/2026

Takayasu arteritis (TAK) is a rare form of vasculitis that affects the aorta, the body's largest artery, and its main branches.

It doesn't always announce itself. Early symptoms can be as vague as fatigue, low fever, or just feeling "off," while the real damage to blood vessels may already be underway.

As TAK progresses, it can cause dizziness, headaches, chest pain, or a noticeably weak or absent pulse in the arms or legs, sometimes earning it the nickname "pulseless disease."

If you or someone you love has symptoms like these that just aren't adding up, don't wait.

Find a doctor who specializes in vasculitis here: vasculitisfoundation.org/find-a-doctor/

"Losing my health wasn't the hardest part. Losing my identity was." 💙Gary spent 20+ years as an Emmy-winning TV producer...
02/08/2026

"Losing my health wasn't the hardest part. Losing my identity was." 💙

Gary spent 20+ years as an Emmy-winning TV producer, until Neuro-Behçet's disease changed everything. His story is about loss, yes. But it's also about rebuilding, remission, and finding purpose he never expected.

Read his full story: vasculitisfoundation.org/gary-naccarato-rebuilding-a-life-after-neuro-behcets-disease/

Living with vasculitis affects more than just your body. The emotional weight of chronic pain, uncertainty, and life cha...
31/07/2026

Living with vasculitis affects more than just your body. The emotional weight of chronic pain, uncertainty, and life changes can be just as heavy, and that deserves just as much attention. 💙

We don't talk about mental health enough in the chronic illness community, but we should. Taking care of your mind is just as important as managing your physical symptoms. So today, we just want to remind you: it's okay to not be okay. Lean on your community, ask for help, and give yourself grace on the hard days.

You can also join one of our support groups to talk with others who get what you're going through: vasculitisfoundation.org/living-well/find-support/

29/07/2026

As we reflect on this year's symposium, we want to recognize Novartis for their role as Resilience Sponsor.

Their support helped bring together researchers, clinicians, and patient advocates for three days of meaningful collaboration, and reflects a shared commitment to the resilience of this community.

From Tacoma with love! 💙Some friendships are built on more than miles, they're built on a shared mission. Nina and Olaf ...
29/07/2026

From Tacoma with love! 💙

Some friendships are built on more than miles, they're built on a shared mission.

Nina and Olaf reunited with fellow VF community members Julie, Robert, and Teresa (plus spouses!) for lunch in the Pacific Northwest, and of course, our well-traveled poster made another appearance.

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Monday 08:30 - 17:00
Tuesday 08:30 - 17:00
Wednesday 08:30 - 17:00
Thursday 08:30 - 17:00
Friday 08:30 - 17:00

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+18164368211

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