The DRESS Syndrome Foundation

  • Home
  • The DRESS Syndrome Foundation

The DRESS Syndrome Foundation Helping patients and families facing DRESS Syndrome through support, awareness & research. Every patient’s situation is unique.
(1)

Legal: This page is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this page. In the hope of creating better awareness, we encourage you to share what you learn here with

your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.

This August, DSF stands with our friends StevensJohnsonSyndrome & TEN Canada, Stevens Johnson Syndrome Foundation and SJ...
02/08/2026

This August, DSF stands with our friends StevensJohnsonSyndrome & TEN Canada, Stevens Johnson Syndrome Foundation and SJS Awareness Oregon during SJS/TEN Awareness Month. 💙

Although DRESS syndrome and SJS/TEN are distinct conditions, they are both severe cutaneous adverse reactions (SCARs) that share many important biological similarities. Both can be triggered by many of the same medications, involve delayed T-cell–mediated immune responses, and are associated with genetic risk factors that increase susceptibility. Different presentations, but the same urgent need for greater awareness, earlier recognition, continued research, and safer prescribing.

We’re grateful for the work our colleagues across the SCAR community are doing. 🙏

Have you nominated your DRESS Hero?Our 2026 nominations are open worldwide! DRESS Heroes are medical professionals who e...
30/07/2026

Have you nominated your DRESS Hero?

Our 2026 nominations are open worldwide!

DRESS Heroes are medical professionals who excel at treating and caring for people with DRESS Syndrome.

Patients and loved ones can nominate any medical professional who made a difference in their care — family physician, dermatologist, pharmacist, or another person.

So, who's your DRESS Hero? Nominate them today!

DRESS Heroes excel at treating and caring for patients with DRESS Syndrome. Nominate your DRESS Hero today!

Have you signed our petition? ✍️We’re urging the U.S. Congress, NIH, and FDA to dedicate research funding for better und...
22/07/2026

Have you signed our petition? ✍️

We’re urging the U.S. Congress, NIH, and FDA to dedicate research funding for better understanding of severe cutaneous adverse reactions (SCARs) like DRESS Syndrome.

To date, no dedicated research funding exists …

despite ongoing new cases of SCARs to existing and new medications.

despite the lives of patients and families forever changed as a result of SCARs.

despite a $150 million burden on the medical system each year from people developing these severe drug reactions.

We will not accept these outcomes.

Patients deserve to better understand the disease afflicting them. Families and caregivers deserve to know how to better navigate care for loved ones. Researchers deserve the funding they need to lead scientific understanding.

The time to act is now. Join us!

Sign our petition today: https://www.dresssyndromefoundation.org/petition-all-hands-on-dress

Sign our petition to urge Congress to dedicate a funding stream for researching severe cutaneous adverse reactions (SCARs) like DRESS Syndrome

As we continue sharing the voices behind this year's National DRESS Syndrome Day, we're honored to feature Associate Pro...
18/07/2026

As we continue sharing the voices behind this year's National DRESS Syndrome Day, we're honored to feature Associate Professor Andrew Gibson, who leads the Drug Hypersensitivity Research Laboratory at Murdoch University's Personalised Medicine Centre in Western Australia.

His research combines immunology and genomics to better understand severe drug reactions, identify who may be at risk, and advance safer prescribing and more personalized care.

"DRESS is caused by complex interactions between a person's genes and their immune system, which has traditionally made it difficult to understand and manage. However, we are now entering an exciting new era of research, where advances in genomic testing and data analysis are helping us better understand why DRESS occurs and who may be at risk.

Specifically, we are identifying new genetic markers that could predict risk before a medication is prescribed, developing more personalised approaches to diagnose individual patients, and uncovering the specific immune cells and signals in the skin that drive the disease—insights that are essential for developing better treatments.

Together, these advances are increasing awareness of DRESS and paving the way for earlier diagnosis, safer prescribing, and more targeted, effective treatments tailored to each patient—bringing real hope for reducing the devastating impact of DRESS on patients and their families."

We're grateful to Associate Professor Gibson for lending his voice to All Hands on DRESS and for his commitment to improving drug safety and outcomes for patients and families affected by DRESS.

To everyone who raised their hand today — thank you. 💜To the survivors who shared their stories, the clinicians and rese...
17/07/2026

To everyone who raised their hand today — thank you. 💜

To the survivors who shared their stories, the clinicians and researchers who lend their expertise, and every person who liked, shared, signed the petition, or simply read along: this day is because of you.

DRESS (Drug Reaction with Eosinophilia and Systemic Symptoms) is a life-threatening immune-mediated drug reaction, and it will take all of us — patients, families, providers, and advocates — to change how it's recognized and treated. Today reminded us we're not doing this alone.

Thank you to everyone who's already signed. 💜 135 signatures and counting on our petition for DRESS Syndrome research fu...
17/07/2026

Thank you to everyone who's already signed. 💜 135 signatures and counting on our petition for DRESS Syndrome research funding. If you haven't signed yet, tonight's the night — it takes just a minute. Every voice adds weight.

→ Sign the petition: https://ow.ly/JQWg50Zomvl

→ Write your representatives: https://ow.ly/Y04A50Zomvm

When Anna Marie was diagnosed with DRESS, her family couldn't find a single physician in their state experienced in trea...
16/07/2026

When Anna Marie was diagnosed with DRESS, her family couldn't find a single physician in their state experienced in treating it.

At 18, with no family history of DRESS, a combination of anti-seizure medications sent her into liver failure, kidney damage, and weeks in the ICU — all before doctors landed on a diagnosis. Her mother Elizabeth shares how they found the right care, and what she wants every parent facing a new diagnosis to know.

Stories like Anna's are why we need all hands on DRESS — more trained specialists, more awareness, and no family left searching alone.

Read Anna and Elizabeth's full story:
https://ow.ly/wIFS50Zon8t

16/07/2026

Vo survived DRESS Syndrome. Now 23, she's raising her hand for research, funding, and a future with less pain for patients like her.

Dr. Shaquita Bell is a pediatrician. She's also a DRESS Syndrome survivor. During her own treatment, she stopped an ED d...
16/07/2026

Dr. Shaquita Bell is a pediatrician. She's also a DRESS Syndrome survivor. During her own treatment, she stopped an ED doctor from giving her a medication that could have been fatal, given her liver damage from DRESS.

Even as a doctor, she had to advocate for her own life. That's exactly why we need all hands on DRESS — more awareness, more research, and a system that listens the first time.

Read her full story in our blog: https://ow.ly/L3Nt50ZomPp

16/07/2026

Hear from 2025 DRESS Hero Dr. Brenna A. LaBere, pediatric allergist/immunologist at Phoenix Children's Hospital. 🏆

Address

VA

Alerts

Be the first to know and let us send you an email when The DRESS Syndrome Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

  • Want your organization to be the top-listed Non Profit Organization?

Share