The DRESS Syndrome Foundation

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The DRESS Syndrome Foundation

Helping patients and families facing DRESS Syndrome through support, awareness & research. Every patient’s situation is unique.

Legal: This page is for information purposes only and is not intended to diagnose or treat DRESS or any other type of disease. We are a patient advocacy organization and are not medically trained. Never disregard professional medical advice or delay seeking it because of something you’ve read on this page. In the hope of creating better awareness, we encourage you to share what you learn here with

your medical team and others. If you think you may have a medical emergency, call your doctor or 911 immediately.

27/04/2026

This Wednesday, join us for our next DRESS Support Meetup!

In this month's virtual session, we're exploring "Mindfulness for Recovery," with special guest Sarah Fischer, MA, ERYT 500, Certified Life Coach.

Sarah is a certified life coach and experienced yoga instructor based in Richmond, VA. She uses simple tools and grounded instruction to demystify mindfulness.

Sarah will lead us in a guided mindfulness session and share practical tools for bringing awareness, breath, and presence into your recovery.

You’re welcome to participate in the practice or simply listen. No experience is needed — just come as you are. 💜

Topic: Mindfulness for Recovery
Date: April 29, 2026
Time: 6:30 to 7:45 pm ET

Join us! https://ow.ly/6yQq50YQG42

18/04/2026

Our next DRESS Support Meetup is April 29!

In this session, we're exploring "Mindfulness for Recovery."

Recovering from DRESS can bring physical, emotional, and mental challenges. Mindfulness offers gentle ways to reconnect with your body and find peace in the process.

In this free virtual gathering, we’ll explore mindfulness in recovery with special guest Sarah Fischer, a yoga instructor and life coach.

You're welcome to participate in the practice or simply listen. No experience is needed.

DRESS Support Meetups are free virtual gatherings for people who have DRESS Syndrome, their loved ones, and caregivers.

All are welcome! 💜

Join us: https://ow.ly/q4qO50YLnJo

15/04/2026

The DRESS and SJS/TEN communities are coming together in Nashville this May!

SCAR 2026: Stronger Together is a global meeting hosted by the Center for Drug Safety and Immunology at Vanderbilt University Medical Center, bringing together leading clinicians, researchers, and patient advocates from around the world.

SCARs — Severe Cutaneous Adverse Reactions — refers to serious drug hypersensitivity reactions, with a focus on DRESS (Drug Reaction with Eosinophilia and Systemic Symptoms) and SJS/TEN (Stevens-Johnson Syndrome/Toxic Epidermal Necrolysis).

Sessions will cover earlier diagnosis, safer treatment approaches, and long-term survivorship. Patient voices will be central to the conversation.

We're honored to be part of the Community Panel alongside Stevens Johnson Syndrome & TEN Canada — bringing lived experience directly into conversations that shape research and care.

Join us!
May 18–19, 2026 | Nashville, TN
In-person + virtual options available
🔗 Registration is open: https://medsites.vumc.org/cdsi/scar-2026

01/04/2026

Announcing SCAR 2026: Stronger Together!

The next global meeting on severe cutaneous adverse reactions (SCARs) is May 18 – 19, 2026, in Nashville, TN, USA.

The event is hosted by Vanderbilt University Medical Center (VUMC) and will bring together medical-research and patient communities for discussion on SCARs, including DRESS Syndrome and SJS/TEN.

Attendees can join in-person or virtually.

We’re excited to host a panel along with StevensJohnsonSyndrome & TEN Canada that will feature DRESS and SJS/TEN patients sharing their lived experiences with severe drug reactions.

Interested to learn more? Sign up to receive more information and registration details from VUMC at the link below.

Hope to see you there!

Sign up: https://www.surveymonkey.com/r/SCAR2026

14/03/2026

Big news from a major allergy and immunology conference (AAAAI 2026): researchers have found a genetic marker — HLA-A*32:01 — strongly linked to lamotrigine-induced DRESS.

This could change how we identify patients at risk.

Some of our community members helped make this research possible. Thank you — your contribution is helping build the science that could one day protect future patients.💙

Congratulations to Dr. Matthew Krantz, Dr. Elizabeth Phillips, Dr. Kimberly Blumenthal, and the full research team at Vanderbilt, Mass General Brigham, and their collaborators.

Hear Dr. Matthew Krantz discuss the findings:
https://ow.ly/2hlO50YtZty

10/03/2026

Reminder to register for tomorrow's DRESS Support Meetup!

In this month's meetup, we're focusing on "Big Wins in Small Steps."

Surviving DRESS Syndrome requires careful attention to your recovery and health, and can feel draining, emotionally and physically.

Within this space, small steps in recovery can create big gains in how people feel day to day and the hope they carry into tomorrow.

We invite you to join us in recognizing the small steps that are creating big gains. You’ll have the chance to ask questions, share stories, or simply listen.

All are welcome!
- Topic: Big Wins in Small Steps
- Date: March 11, 2026
- Time: 6:30 pm to 7:45 pm

Save your seat: https://ow.ly/W8xQ50YrZiP

06/03/2026

We made it to Capitol Hill in Washington, D.C.!

Last week, Tasha Tolliver and Deanna Geneva Lorianni participated in Rare Disease Week to advocate for DRESS Syndrome and all severe cutaneous adverse drug reactions (SCARs).

Our goal? Dedicated research funding for SCARs at the NIH and FDA.

We met with staffers for:

- U.S. Senator Tim Kaine
- Senator Mark Warner
- Congresswoman Jennifer McClellan
- Congressman Bobby Scott
- Congressman John McGuire

We were one of many rare diseases represented in the rooms. The patient stories and dedication to rare disease advocacy were so moving.

The week rounded out with a visit to the National Institutes of Health (NIH) for their Rare Disease Day. Our friend and colleague Michelle Martin-Pozo from Vanderbilt University Medical Center also joined us.

This marked the start of important policy work at the Foundation. It's a small step toward our vision of a world where severe drug reactions are identifiable, treatable, and preventable!

03/03/2026

Join us for our next DRESS Support Meetup on March 11!

In this session, we're recognizing "Big Wins in Small Steps."

Surviving DRESS Syndrome requires careful attention to your recovery and health, and can feel draining, emotionally and physically.

Within this space, small steps in recovery can create big gains in how people feel day to day and the hope they carry into tomorrow.

Join us for an open discussion on the small steps that have made an impact in your recovery. Share your stories, ask questions, or simply listen.

This space is yours! 💜

Topic: Big Wins in Small Steps
When: March 11, 2026
Time: 6:30 pm to 7:45 pm ET

Save your seat: https://ow.ly/4rxO50YoHEi

26/02/2026

Here at Capitol Hill for Rare Disease Week 🙌

Advocating for DRESS and all SCARs.

Hoping for progress toward dedicated research funding!

U.S. Senator Tim Kaine
Senator Mark Warner
/TEN

16/02/2026

Congratulations to our 2025 DRESS Heroes! 🌟

DRESS Hero is our annual awards event that celebrates medical professionals who excel at treating and caring for patients with DRESS Syndrome.

Worldwide, patients and their loved ones nominated dermatologists, physicians, pharmacists, and other medical professionals who made a difference in their lives.

We’re incredibly thankful for the thoughtful treatment and dedicated support each of our DRESS Heroes have provided patients.

And we’re honored to recognize each of you as a DRESS Hero! Keep up the wonderful work!

Introducing our 2025 DRESS Heroes:

- Patricia Baidoo, PharmD
- Rosanne St. Bernard, MD
- Alexandria Dulchavsky, MD
- Eric J. Feit, MD, FAAD
- Muhammad Hasan, MBBS, FCPS, MRCP, FRCPath
- Brenna LaBere, MD
- Charles E. Mount, MD, FAAD
- Eliza Notaro, MD
- Yuktanand Singh, MD, FAAP
- Shivam Zaver, MD, PhD
- Mayar Zawawi, MD

Learn more: https://ow.ly/15Kf50Yfi7l

14/02/2026

💜 To everyone navigating DRESS—whether recently diagnosed or years into recovery—you're not alone. This community sees you, supports you, and stands with you.

💌

Address

Telephone

+18043076703

Website

https://www.dresssyndromefoundation.org/

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