CMT Unbroken

CMT Unbroken CMT Unbroken — adaptive health coaching, honest conversation, and strength built forward in bodies that refuse to quit.

I’ve had some pretty incredible adventures in this life.Some were planned. Some I probably had no business saying yes to...
09/03/2026

I’ve had some pretty incredible adventures in this life.

Some were planned. Some I probably had no business saying yes to. And some started with absolutely no idea where they would eventually lead.

But adventure has always been a part of my story.

It’s where I’ve challenged myself, found community, learned what I was capable of, and probably learned the most about who I am.

There is something about putting yourself in an uncomfortable place, stripping away all the noise of everyday life, and simply moving forward. Whether that’s on a mountain, a bicycle, covered head to toe in mud, or somewhere in the middle of nowhere with no clue what the next few hours are going to bring.

That’s where I feel most alive.

And maybe more importantly, that’s where I’ve found some of the greatest purpose and meaning in my life.

Which makes this next chapter pretty damn exciting.

Soon, I’ll be stepping into my new role as an Expedition Coordinator with Team Red, White & Blue, helping create opportunities for members of the Military community to have adventures of their own—to challenge themselves, build relationships, get outside their comfort zones, and maybe discover something about themselves along the way.

Looking back, I’m incredibly grateful for every adventure that brought me here.

The mountains. The bikes. The races. The ridiculous ideas. The things that went completely according to plan and especially the ones that didn’t.

They all became part of the story.

Now I get to help create some of those experiences for others.

I have absolutely no idea what adventures are waiting around the corner.

And that might be the part I’m most excited about.

Here’s to the next adventure.

Three PRs. One week. And all of them came in the kind of efforts that hurt.⚡ 2-minute power: 359 watts — PR⚡ 3-minute po...
09/02/2026

Three PRs. One week. And all of them came in the kind of efforts that hurt.

⚡ 2-minute power: 359 watts — PR
⚡ 3-minute power: 349 watts — PR
⚡ 5-minute power: 323 watts — PR

I’ve spent a lot of time training endurance and learning how to keep moving as CMT continues to change the way my body works. But right now, I’m also preparing for something completely different: walking into the U.S. Olympic & Paralympic Training Center and finding out what I’m capable of as an adaptive cyclist.

I can’t stand on the pedals and generate power. I have to produce it seated. My legs don’t always cooperate the way I ask them to. None of that changes what I’m trying to build.

359 W for two minutes.
349 W for three.
323 W for five.

All-time bests. All in the same week.

In 24 days, I head to Colorado Springs for Para-Cycling Talent ID Camp.

Until then, I keep earning my way there.

There’s something pretty cool about seeing CMT Unbroken jerseys out in the wild.Not just because the jerseys look good—b...
09/02/2026

There’s something pretty cool about seeing CMT Unbroken jerseys out in the wild.

Not just because the jerseys look good—but because of what they represent.

For so long, CMT has been something most people have never heard of. Yet there are millions of people around the world living with the weakness, foot drop, balance issues, fatigue, pain, and countless other challenges that can come with this disease.

And now we’re seeing CMT represented in the athletic world.

On bikes. On trails. At starting lines. In gyms. Out in our communities.

Every time someone wears a CMT Unbroken jersey, it puts those three letters in front of people who may have never seen them before. It creates conversations. It builds awareness. And maybe most importantly, it shows another person living with CMT what is still possible.

Seeing these two out there representing CMT Unbroken means more to me than I can probably put into words.

This is how awareness grows.

This is how representation grows.

And this is how we show the world that CMT belongs in the athletic world too.

Keep moving forward. Keep being seen. Keep representing.

CMT Unbroken.

09/01/2026

September is here, and that means it's officially Charcot-Marie-Tooth Disease Awareness Month!

This is our moment, patients, caregivers, family, and friends, to come together and show the world what CMT really looks like.
Today, September 1st, we launched a community campaign and rolling out some exciting new ways to raise funds and awareness. We'd love for you to be part of it.

And that's not all: we're kicking off the month with a brand-new look! Check out our new logo and redesigned website at curecmt.org, built to better connect you with the resources, research, and community you need.

7 Ways to Make This September Count

1. 💙
The goal of is to show the wide spectrum of experiences and perspectives of living with CMT.
We'd love for you to share photos and/or short videos showing what CMT looks like for you today. This can include visible and invisible challenges, adaptations, wins, frustrations, mobility aids, accommodations, funny moments, or everyday realities.

There's no "right" CMT story. That's exactly what we want people to see.

Your story. Your perspective.
Post using , add our donation link to your post, and tag us so we can share it.

2. 🖼️ Add Your Frame
twibbonize.com/thisiscmt
Want a simple way to show your support all month long? Add our frame to your Facebook or Instagram profile photo: twibbonize.com/thisiscmt. It only takes a few seconds, and it helps spread awareness every time someone sees your profile picture.

3. ❤️ Donate in Honor or Memory of a Loved One
https://curecmt.org/donate
Every dollar counts. Your gift supports cutting-edge research, advocacy, and resources for patients and families living with CMT. Donate once or monthly.

4. 💻 Start a Facebook Fundraiser
https://bit.ly/4gylYrC
Spread CMT awareness and urgency with family and friends. In just a few clicks, you can raise critical funds for research and patient programs while rallying your community to take action. Launch your fundraiser here.

5. 🎉 Attend an Upcoming Event
October 24, 2026: Brews & Bingo, Baltimore, MD
https://curecmt.org/events/brews-and-bingo

6. 🧬 Join GRIN: Global Registry for Inherited Neuropathies
https://curecmt.org/our-research/grin-registry
Your story and data are powerful. Signing up and updating ongoing surveys helps accelerate research, guides clinical trial design, and brings us closer to treatments and cures. Enroll and update your surveys.

7. 👗 CMT Gowns That Give
https://curecmt.org/support-the-cure/gowns-that-give
Donate your gently used gowns, cocktail dresses, or formalwear to support HNF's mission and give new life to items while giving back. Post a photo in your gown and tag to spread the word. Our goal: 1,000 gowns donated and $50,000 raised. Visit GownsThatGive.org for step-by-step instructions.
Let's make this September the biggest, most authentic CMT Awareness Month

September is CMT Awareness Month.And awareness is one of the biggest reasons we are doing this.In just over a year, a gr...
09/01/2026

September is CMT Awareness Month.

And awareness is one of the biggest reasons we are doing this.

In just over a year, a group of CMT Warriors will travel to Tanzania and attempt to climb Mount Kilimanjaro—to stand together on the Roof of Africa and show the world what life beyond the diagnosis can look like.

But this expedition is about so much more than reaching a summit.

Over the next year, we’re going to introduce you to the people behind this climb. You’ll hear their stories. You’ll see their struggles, adaptations, victories, setbacks, and training. You’ll get a glimpse of what it takes to prepare for one of the world’s great mountains while living every single day with Charcot-Marie-Tooth disease.

And then, in September 2027, you’ll get to follow these CMT Warriors all the way to Kilimanjaro.

Every step is an opportunity to create awareness.

Every story is an opportunity for someone with CMT to see what might still be possible.

Every Warrior who takes that mountain is helping push CMT further into the light.

This is CMT Unbroken: Beyond the Diagnosis — Kilimanjaro Expedition 2027.

Follow along. Share their stories. Learn about CMT.

And watch what happens when a group of CMT Warriors decides to climb toward something bigger than themselves.

In 25 days, I’ll get in my car and head to the U.S. Olympic & Paralympic Training Center for their Talent ID Camp.That m...
09/01/2026

In 25 days, I’ll get in my car and head to the U.S. Olympic & Paralympic Training Center for their Talent ID Camp.

That means I have 24 days left to prove something—not to the coaches, not to the other athletes, but to myself.

That I earned my spot.

Today: 21.71 miles. 236W average. 22.1 mph. And a new 3-minute power PR at 349W.

Getting invited to camp was an opportunity. What I do with these next 24 days is my responsibility.

There’s still more strength to build. More power to find. More work to put in. And when I finally pull into Colorado Springs, I want to know I used every day I had to arrive ready.

24 days.

Address

Tucson, AZ

Website

Alerts

Be the first to know and let us send you an email when CMT Unbroken posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to CMT Unbroken:

Shortcuts

Share