VENTure Think Tank

VENTure Think Tank Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from VENTure Think Tank, Nonprofit Organization, Stony Brook, NY.

VENTure Think Tank Develops and Promotes Policy and Technology Solutions for people who use mechanical ventilation or have complex conditions involving the need for continuous skilled nursing to survive GOALS
The goals of VENTure are as follows:
• To improve emergency response and confirm that there is a protocol in place to ensure the safety and security of ventilator users
• To provide policy r

ecommendations to relevant stakeholders that reflect safety concerns of ventilator users
• To make existing technology more available and useful to assist with daily living of ventilator users
• To develop new technology specific to ventilator users with the goal of improving quality of life and ease of daily activities
• To provide policy recommendations regarding medical and sensitivity training to enhance the personal assistance of ventilator users
• To provide policy recommendations to legislative bodies regarding changes to government programs that will improve quality of life for ventilator users
• To develop programs and promote social change to facilitate employment, recreation, transportation, and education for ventilator users

12/27/2018

We honor the memory of Chris Costello, who inspired the creation of the VENTure Think Tank

09/18/2017

www.facebook.com/LittleLobbyists/

Little Lobbyists Action Network 501(c)(4) is the advocacy arm of Little Lobbyists. We build bipartisan support to ensure issues critical to the lives and futures of medically complex & disabled children are given top priority by our elected leaders.

09/09/2017

says CALLING ALL NURSES: FL needs 1,000 volunteer nurses to help at our special needs shelters. Please email [email protected]

09/09/2017

From CALLING ALL NURSES: FL needs 1,000 volunteer nurses to help at our special needs shelters. Please email [email protected]

http://www.npr.org/sections/health-shots/2012/05/21/153202340/katie-beckett-defied-the-odds-helped-other-disabled-kids-l...
06/17/2017

http://www.npr.org/sections/health-shots/2012/05/21/153202340/katie-beckett-defied-the-odds-helped-other-disabled-kids-live-longer?utm_campaign=storyshare&utm_source=facebook.com&utm_medium=social

Katie Beckett, 34, died Friday morning in the same hospital where she once made history. Beckett spent most of the first three years of her life in an Iowa hospital because she needed to breathe on a ventilator much of the day. Medicaid would only pay for the expensive treatment if she stayed in the...

05/02/2017

District 1 folks. If you are invested in disability issues come to Emma Clark Library Board Room 10:00 Wed. We will be discussing our strategy to meet with Lee Zeldin on disability issues.

04/08/2017

Please join us Wed April 19th 1pm at Stony Brook University
Room 464A Level 2 HSC

Julie Maury and Pam Block will be discussing the original Nick's Crusade -- a movement started by Nick Dupree to ensure that young Vent-users in Alabama could live in homes in the community rather than nursing homes or hospitals. We will show Nick Dupree's Art and read from his chapter in Occupying Disability.

Finally we will discuss the new Nick's Crusade -- our quest in collaboration with St. Mary's Children's Hospital to keep young vent-users (and those with other complex conditions) in NYS out of nursing homes and hospitals as they age out of pediatric settings.

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Stony Brook, NY
11794

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