World Eye Cancer Hope

06/26/2026

One Rb World brings the global community together for connection, learning, support, and hope.

From September 12–14, 2026, World Eye Cancer Hope will host 2026 in San Antonio, Texas, welcoming patients, survivors, families, medical professionals, researchers, donors, and partners from around the world: https://givebutter.com/OneRbWorld2026 🌎

For families affected by retinoblastoma, this gathering offers a chance to feel less alone. For survivors, it creates space to share lived experience and be heard. For medical professionals and researchers, it strengthens collaboration across borders. And for donors and sponsors, it is a meaningful way to help make this community experience possible.

Whether you plan to attend, donate, or sponsor, your support helps bring One Rb World 2026 to life.

Register, donate, or sponsor here: https://givebutter.com/OneRbWorld2026 🌟

06/26/2026

Bedtime can be hard after medical trauma. For children who have experienced treatment, procedures, hospital stays, or separation, sleep can bring big feelings to the surface.

Trauma-informed sleep support starts with safety first.

What helps your child feel safe enough to rest? Tonight, that might be one extra check-in, a comfort item nearby, or a simple phrase you repeat each night: “You are safe. I’m close. I’ll check on you soon.”

Cindy Pilchuk, RN and Certified Child Life Specialist, shares practical ways parents and caregivers can support children when traditional sleep strategies are not enough.

Read the blog called Trauma-Informed Sleep Supports here: https://bit.ly/4gGGo1R 👈

06/24/2026

One $20,000 gift can make the entire Child Life Program possible at One Rb World 2026.

Across all three days, this program will support children with , siblings, and attending families through play, connection, and age-appropriate support during a deeply meaningful conference experience.

We are looking for a company, foundation, or individual supporter to underwrite this program and help create something families will carry with them long after the conference ends.

The Child Life Program sponsor will receive conference recognition, a dedicated social media thank-you, website listing for a year, onsite signage, branded photo or video of content from the Child Life Program, and so much more.

Learn more about becoming a One Rb World partner:
https://wechope.org/onerbworld/one-rb-world-2026/partner/ 🤝 ♥️

For questions or to become a sponsor, please contact One Retinoblastoma World Event Chair and World Eye Cancer Hope USA President Marissa D. Gonzalez at [email protected] 📨

06/23/2026

Shared with permission from Denice Lopez, mom to Ayla and Jaylen. 💛

This beautiful, honest video starts with Ayla showing her prosthetic eye and sharing something that is simply part of her world.

Then the conversation opens into something many families know so well: the questions, the explaining, the curiosity from others, and the emotional weight children and siblings can carry as they learn how to respond.

Denice said it thoughtfully: the questions are not always wrong, and children’s curiosity is natural. At the same time, Ayla and Jaylen’s feelings are valid too. This is part of the journey many families navigate quietly, day by day.

At World Eye Cancer Hope, we believe families should not have to navigate that journey alone.

That is one of the reasons exists: to bring families, survivors, children, siblings, doctors, researchers, and care teams together in a space where retinoblastoma is understood without explanation: https://wechope.org/onerbworld/one-rb-world-2026/

This September, One Rb World comes to San Antonio, Texas, with three days of learning, connection, community, and dedicated Child Life programming for children and siblings.

To Denice, Ayla, and Jaylen: thank you for sharing your world with such honesty and heart. We are so grateful to have you in this community!

🌟 Register for One Rb World 2026: https://wechope.org/onerbworld/one-rb-world-2026/

06/23/2026

Are you an ophthalmologist, oncologist, researcher, or care coordinator working with children affected by retinoblastoma?

One Rb World 2026 is your opportunity to connect with global colleagues, share insights on best practices, and collaborate on advancing early diagnosis, treatment, and lifelong care.

The conference takes place September 12–14, 2026 in San Antonio, TX — right before the SIOP World Congress. A concessionary registration fee is available for delegates from lower-income countries.

📋 Register: givebutter.com/OneRbWorld2026

06/19/2026

What’s one question you would ask if you were in a room with retinoblastoma families, survivors, doctors, researchers, and advocates who understand this journey?

THAT’S what makes One Rb World different. It brings the whole Rb community into the same room.

🌟 https://givebutter.com/OneRbWorld2026

One Retinoblastoma World - a global effort to bring quality care to every child with eye cancer, survivor and family. Please join us!

06/17/2026

This one deserves an encore. ✨

After the last One Retinoblastoma World, Rb mom Lori Tucker helped bring a little En Vogue magic to our community with a message that still hits:

“Know the glow, and the rest will follow.”

Now, is coming back, and so is the chance for families, survivors, doctors, researchers, and advocates to gather in one place again.

Join us September 12–14, 2026 in San Antonio, Texas for a weekend of connection, learning, support, and hope: https://givebutter.com/OneRbWorld2026

A huge thank you to En Vogue for lending their voices to the Rb community, to Know The Glow for helping spread awareness, and to Lori Tucker for making this unforgettable moment happen.

Register for One Rb World today: https://givebutter.com/OneRbWorld2026 🌎

06/16/2026

“There is always the medical journey, but there is also the emotional journey.”

For many families affected by , survival is not the end of the story. The impact of childhood eye cancer can continue through adolescence, adulthood, family planning, sibling relationships, grandparent experiences, second cancer risk, and the quiet moments families carry long after treatment ends.

This World Eye Cancer Hope article brings together the voices of survivors, parents, grandparents, and family members who share honestly about life beyond childhood retinoblastoma care. Their experiences remind us why connection, open conversation, peer support, and lifelong care matter so deeply.

If your family has ever felt alone in the long shadow of Rb, we hope this helps you feel seen.

WE C Hope CEO Abby White asked families and survivors about their experiences of life beyond retinoblastoma, after a particularly painful family insight.

06/15/2026

At One Rb World, the Child Life program is so much more than a room full of toys, books, crafts, and games.

It is a place where children can play, ask questions, make friends, explore big feelings, and feel less alone in their retinoblastoma experience.

These photos from our 2024 One Rb World Child Life program in Hawaii capture some of the joy, creativity, laughter, and connection that happen when kids have a space created just for them.

We are thrilled to bring the Child Life program back for One Rb World 2026 in San Antonio, giving children, siblings, young relatives, and children of adult survivors their own place to belong while families and professionals gather, learn, and connect.

Learn more about the 2026 Child Life program and make plans to join us this fall in San Antonio: https://wechope.org/onerbworld/one-rb-world-2026/childlife/

06/11/2026

A little winner update that made our day. 💛

Cindy Hansen, winner of the handmade quilt from our World Retinoblastoma Week giveaway, sent us this beautiful photo with her prize, and we just had to share it.

Thank you again to everyone who entered, donated, shared the giveaway, or helped us spread awareness during World Retinoblastoma Week. Every bit of support helps World Eye Cancer Hope continue providing education, connection, advocacy, and support for families and survivors affected by retinoblastoma.

👀 And yes, we love a good giveaway around here, so stay tuned for the next one!!!

You can continue supporting our work anytime at givebutter.com/wechope.

Congratulations again, Cindy!