Devlyn's Hope

03/01/2026

Cantù Syndrome is just one of the thousands of rare diseases that exist world wide.

03/01/2026

02/21/2025

The Washington University in St. Louis School of Medicine has launched the Center for Rare, Undiagnosed and Genetic Diseases, which brings together researchers and patient communities to create a collaborative network to drive innovative research and accelerate drug discovery.

04/21/2024

Happy 6th Birthday in Heaven! We wish we could celebrate your day with you. We love and miss you so much. We hope we are making you proud and leaving you the legacy you deserve.

04/20/2024

“I’ll save you a seat next to me. You’re always at the table. Hope you're proud of what you see, watching with the angels.” 🕊️

Today you are SIX. I’d give anything to see what you’d be like now. Probably a menace just like your momma. It’s still you and me against the world, baby girl, just long distance. You are the light inside me that keeps me going and I wouldn’t change you being mine for anything. I love you with all of my being in every lifetime my beautiful, inspiring Devlyn. 💜

04/01/2024

What was your favorite book a kid? What is your child's favorite book right now?

03/31/2024

We hope everyone has a wonderful Easter!

03/18/2024

May the luck of the Irish be ever in your favor!

02/10/2024

Today we had the honor of celebrating the life of one of our beloved friends and Cantu family members, Della Newsom. You are greatly missed by many. This is not the end, but simply where you rest to grow your wings. 🪽