Fighting For Preston Scott

I want to use his page to help bring the childhood cancer community 🔄 for familys and Nonprofits. Our precious little Preston, at 5 years old has already been through so much the past year and a half now. (6.5 now) These past few months have been especially hard on us as parents, grandparents, family and friends with the news that no parent wants to ever hear. Preston Relapsed almost immediately a

fter treatments 😢

We finished with Preston's regular protocol of treatments with radiation and chemotherapy just a few days before Christmas 2015. He was diagnosed October 2014 with Regular Medulloblastoma and fell into what they called standard risk, and they say has an 80-85% cure rate. We had every reason to believe that treatments worked given every scan had showed nothing new. But January 20, 2016 his scan showed two new spots. We were devastated. Relapsed Medulloblastoma patients usually don't make it. Maybe 1 out of 20 kids will get through their relapse. WE HAVE NEVER GIVEN UP HOPE. We met with Seattle Childrens after this to look at options and trials that might be available and we continued to do some more natural approach to help our little Preston. We set up a follow up MRI about 6 weeks after his January 20th scan. March 10th we had his next MRI. This one was even more gut crushing and knocked the wind out of us again. It showed quite a bit of progression and a new tumor about a 1/2" in diameter on the right side of the brain. It had spread and grown so fast it seemed almost impossible that this was happening. The day after his scan, Preston has his first seizure ever.... Giving us the biggest scare of our lives as we end up in the ER, a breathing tube down his throat because he was not breathing good on his own. Then hooked up on an EEG for 3 days and get some seizure meds dialed in to prevent anymore. It took 3 seizure mess to get it under control. We got to go home, but we're back in the hospital a couple days later where he just was doing good and we were obviously feeling desperate and panicked beyond anything we could have imagined. We had found a trial method in Houston that was working for kids with relapsed Medulloblastoma and the doctors here went forward to put an Omaya Reservoir (March 18) in his head and we were able to have methotrexate given directly into the ventricle. We did this for 3 rounds. Preston picked up C-Difficile (Gut Infection) and we were able to stay out of the hospital but in this process we ended up getting his next MRI moved up a week to April 22 to make sure some of the problems Preston was experiencing were not related to the disease. We got a call from the doctors that this scan didn't look good either that it shows progression again. We were hoping so much for just a little bit of good news that maybe it was stable and that things hadn't progressed at all. So another punch to the gut for us. Preston's mother and I have researched so much and so many things only to be shut down and told that we don't qualify for the available trials because the disease is too far spread, meaning they don't want to take on the risk is what it comes down to. At this point, the doctors don't feel that the methotrexate directly into the ventricles has helped or slow things down at this point. Which leaves us with what? Not much else, other than they can offer more chemotherapy of different kinds that can maybe help extend Preston's life for another 16-18 months.... And that's not even a guarantee, that's a 50/50 chance at best. This isn't good enough for us or for our Preston. We have NOT GIVEN UP HOPE. And we ask for your hopes and prayers and positive thoughts and energy sent his way! We will be posting updates often! Any donations will go directly to his care. If anyone wanting to help with purchasing some of these supplements, I can give you the link for them to order them directly for him. Thank you! And I will be posting updates throughout this process. https://www.youcaring.com/preston-scott-563606/update/726329