05/24/2026
Syren's story:
I have hEDS (and all of the commonly associated conditions). I experienced my first full joint dislocation at the age of 2 and then yearly (or more) all the way through my 20s. Much of my childhood was spent at the Shriners Hospital, and I was diagnosed around the age of 8 or 10.
Thankfully, as I've aged and learned how to care for my body, I experience fewer full dislocations. But EDS is so much more than hypermobile joints, and I still have regular subluxations, as well as all of the skin, digestion, sensitivity, and chronic pain and fatigue issues. My muscles are constantly working overtime to hold me together, and decades of injuries have taken their toll. I am in pain every day for a variety of reasons.
Hiking has not cured my EDS. While it has helped me build some muscle, it has also contributed to injuries. I know that I risk an injury on every hike, so I prepare as much as I can. Sometimes, it means prioritizing my mental health over my physical. When I feel consumed by my pain or the ableism of the world, being outdoors gives me a place to lean into and feel like I belong.
Because I do - and so do you. Our disabled bodyminds are natural. We are nature.
ID: Syren, a white nonbinart person, sits on a log bench in the forest. Syren’s dog, a small, long-haired terrier, sits next to them. The trailnis covered in golden larch tree needles.