The IBC Network Foundation

The IBC Network Foundation No Lump - STILL Cancer
IBC = inflammatory breast cancer
Fueled by Hope
Funding Research Don't know what IBC is? We have a groups, medical support and resources.

Inflammatory Breast Cancer (IBC) is a rare and highly fatal form of breast cancer that is not typically discovered by mammogram and often occurs prior to standard breast cancer screening age recommendations. The IBC Network Foundation is a 501c3 # is 38-3850833

The IBC Network Foundation. The purpose of IBC Network is simple:

To fund research regarding Inflammatory Breast Cancer. To provide an

avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer. Don't feel bad, most people are very uneducated about IBC. Our goal is to bring this "orphaned disease" into the limelight and encourage education and funding of research for this highly fatal 200 year old form of breast cancer. Now that you are here, take a few minutes and learn! We need to be educated on this cancer if we are going to save life's. Here is a quick check list of symptoms of IBC

Inflammatory breast cancer symptoms may include:

• Breast swelling, which one breast is suddenly larger than the other
• Breast that feels warm to touch and may look infected
• Itching or shooting pain
• A dimpling of the breast skin that looks like an orange peel (peau d’orange)
• Thickening of the skin
• Flattened or discolored ni**le
• Swelling in underarm or only on one side of neck
• Might feel lump, however lumps are not common in IBC. Also see our app:

Download is free

The links are:
Apple - https://apple.co/4dtXr24
Android = https://bit.ly/3TT0lGm


Our mailing address is:

The IBC Network Foundation
PO Box 908
Sealy, TX 77474

Have an IBC dx? Please check our website, www.theibcnetwork.org and support group, https://community.theibcnetwork.org/


have a question? message us! Terry Lynn Arnold, founder, The IBC Network-Inflammatory Breast Cancer Network
dx Triple Negative Inflammatory Breast Cancer, summer 2007

Your donation to the IBC Network Foundation isn’t just a gift—it’s a lifeline.Every dollar supports critical research, e...
06/05/2026

Your donation to the IBC Network Foundation isn’t just a gift—it’s a lifeline.

Every dollar supports critical research, empowers patients with vital education, and ensures no one faces this aggressive disease alone. Together, we are creating real change and saving lives.

Make an impact today. Visit theibcnetwork.org/donate to help fund hope and healing.

06/03/2026

From a front porch in the US to a patient in Ukraine, the need for accurate information on inflammatory breast cancer is global. This work happens one conversation at a time, and it matters more than you can see. Your support helps make these connections possible every day. Donate or join the IBC Network at theibcnetwork.org and be part of this global impact.

The conversation around Signatera is growing within the IBC community, but many patients still have questions about what...
06/03/2026

The conversation around Signatera is growing within the IBC community, but many patients still have questions about what the test can—and cannot—tell us.
As Dr. Wendy Woodward and Dr. Azadeh Nasrazadani explained during a recent Talk IBC discussion, circulating tumor DNA testing holds tremendous promise, but researchers are still working to understand how best to use the information it provides.
One takeaway stood out:
"The test may provide data. But data and answers are not always the same thing."
Read our latest blog post to learn what IBC patients need to know about Signatera, why doctors may approach it differently, and why there is still so much reason for hope.

The conversation around Signatera is growing within the IBC community, but many patients still have questions about what the test can—and cannot—tell us. Researchers are still working to understand how best to use the information it provides.

In this video, Terry Arnold begins a series exploring the pros and cons of choosing a double mastectomy. Drawing from co...
06/03/2026

In this video, Terry Arnold begins a series exploring the pros and cons of choosing a double mastectomy. Drawing from conversations with women in support groups, she addresses common misconceptions about surgical outcomes and body symmetry. Using a simple visual example, she demonstrates how many people assume both sides of the body will have the same footprint after surgery, and why that expectation may not match reality. This discussion aims to help patients better understand the physical changes that can occur and make more informed decisions about their treatment options.

In this video, Terry Arnold begins a series exploring the pros and ...

06/02/2026

Have you heard the news? We are growing!

You do not have to understand everything today. An IBC diagnosis can bring questions faster than answers.Start with one ...
06/02/2026

You do not have to understand everything today. An IBC diagnosis can bring questions faster than answers.

Start with one trusted resource. Start with one clear next step. Start with support that understands IBC specifically.

IBC Network provides education, patient support, advocacy, research funding, and community for people impacted by inflammatory breast cancer.

Visit theibcnetwork.org to find resources and support.

The June issue of Walking On Quicksand is now live! Inside you'll find patient perspectives, research updates, expert in...
06/02/2026

The June issue of Walking On Quicksand is now live!
Inside you'll find patient perspectives, research updates, expert insights, and resources for those impacted by inflammatory breast cancer.
Read the latest issue at walkingonquicksand.org and share it with your network to help connect more people with valuable information and support.

06/01/2026

A donation is never just a donation.

It helps fund education.
It helps doctors recognize IBC sooner.
It helps save time, answers, and lives.

Every contribution helps move awareness into action.
Be part of what changes outcomes.

Hope Always.
theibcnetwork.org

Join Terry Arnold and Alisa Shorago on 𝐉𝐮𝐧𝐞 𝟒𝐭𝐡 for an open conversation about inflammatory breast cancer and the issues...
06/01/2026

Join Terry Arnold and Alisa Shorago on 𝐉𝐮𝐧𝐞 𝟒𝐭𝐡 for an open conversation about inflammatory breast cancer and the issues that matter most to the IBC community.

If you or someone you love has been impacted by IBC, this is a space to listen, learn, ask questions, and connect with others who understand.

Zoom IBC takes place the first Thursday of every month from 6 to 8 PM Central.

RSVP as early as today: theibcnetwork.org/zoom-ibc-chats

Address

Sealy, TX

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