In late 2023, after extensive testing and 18 months of being sick, Ken Moss was diagnosed with alpha-1 antitrypsin (AAT) deficiency, a rare genetic disorder that can cause lung or liver disease. Ken was born with the deficiency but never experienced any symptoms until he got sick in 2022 and couldn’t get better. Since diagnosis Ken and his family has learned not only does he have AAT deficiency, b
ut he also had liver disease – something that happens to only about 15 percent of AAT deficient patients. Ken has gone from learning about AAT deficiency to learning he needs a liver transplant and being approved for the liver transplant list. His only hope for survival is a new liver to correct the deficiency. Meanwhile, a team of his friends are fundraising for COTA in Moss’s honor to assist with transplant-related expenses throughout his lifetime. COTA is a national charity dedicated to organizing and guiding communities in raising funds for transplant-related expenses. COTA’s services are completely free of charge, and 100 percent of funds generated by COTA community fundraising campaigns are available for transplant-related expenses.
