The purpose of this page is to establish an online community where people with ALS, family members, caregivers and friends can interact amongst themselves and with our organization in a positive environment. The ALS Association strives to be the best resource for all people who are facing Lou Gehrig’s Disease. We value comments and feedback from everyone and want our presence on Facebook to inspire thoughtful conversations. We want our page to be an open forum and kindly ask that you review our community guidelines, below. Should posts or comments fall into any of these categories, we reserve the right to remove them.
1. Solicitation or advertising of products or services. Please refrain from advertising products, services or other such information on our page, particularly if they refer to non-FDA approved treatments or devices.
2. Offers or solicitations for used or unused durable medical equipment (DME) (hoyer lifts, shower stands, walkers, etc.) or unused prescription medication due to potential liability or sanitation-related issues.
3. External fundraisers not approved or vetted by The Association as we cannot verify whether funds collected will go toward stated charity or cause.
4. Posts containing profanity. Profane or offensive language will be omitted from posts and comments.
5. Posts requesting we endorse a survey. Surveys will remain on our page only if we have officially approved, vetted and confirmed the methodology for a particular survey. We wouldn’t want you to think we have endorsed a survey that we know nothing about.
6. Posts requesting support for a petition. Unless the petition has been officially vetted, we cannot endorse third party requests to endorse a particular cause.
7. Personnel-related issues. If you have concerns regarding staff or volunteers of The ALS Association, please submit information via email to [email protected].
8. Patient privacy issues. We serve thousands of people living with ALS through our chapters, Certified Centers and clinics. Information gathered from these people will not be shared on Facebook and is considered a violation of The Association’s confidentiality policy.
9. Comments that are factually inaccurate, misleading, or defamatory. We will always do our best to respond to and correct factually inaccurate information that is posted to our page and dispel any misinformation. Personal attacks, accusations, or misleading/defamatory content does not create an atmosphere conducive to healthy dialogue.
10. Comments or content that violates The Association or another company’s trademark or intellectual property or legally privileged information. Please post in accordance to Facebook’s “Statement of Rights and Responsibilities,” which states that users may not add content that infringes upon another party’s intellectual property rights. Intellectual property refers to symbols, names, images, and designs used in business. Similarly, a trademark refers to words, symbols or designs (such as a brand name or a logo) that identify and distinguish the products or services offered by one organization from those offered by others. In addition, please do not disclose proprietary, confidential, or legally privileged information. Thank you for reviewing our community guidelines. Please note that we reserve the right to block individuals who repeatedly violate these community guidelines or who continually foster a negative and unproductive environment for our followers. Questions or comments about our page can be sent to [email protected]. We will do our best to follow up with individuals who have specific concerns via email or phone.
