Central Coast Down Syndrome Network

07/31/2026

From Nancy’s Post 👇🏻👇🏻

Hello everyone- We will be ramping up our School Year Kids program starting in September. Meeting once/month on a Saturday 10-1pm on the SLO county central coast. No cost for those served by the Regional Center, private pay $75/session. Contact me to learn more! New email: [email protected]

08/07/2025

https://www.chla.org/blog/research-and-breakthroughs/breakthrough-study-led-chla-neurologists-links-blood-brain-barrier?fbclid=IwQ0xDSwMCCdZleHRuA2FlbQIxMQABHkl4z5Cfse96oNEQLHX2j6Ij5xfH0RCqpoofDUo3YuCttS11HAROiCzoAPRR_aem_5AwENAOD0OIXa5xkLMznew

Investigators led by CHLA’s Jonathan D. Santoro, MD, published a new research study that links Down syndrome Regression Disorder (DSRD) with neuroinflammation and dysfunction of the blood-brain barrier.

06/22/2025

This was sent to us by Melissa Rasmussen please DM her or call for details!

04/09/2025

👏🏻👏🏻👏🏻👏🏻👏🏻

More great news! AB 1076 passed through the Assembly Committee on Revenue and Taxation.

The Qualified ABLE Program: CalABLE accounts: funding expands access to CalABLE accounts, making it easier for people with disabilities to save and use funds for essential needs. It also allows individuals who receive CalKIDS funds but don't plan to attend college to transfer that money into CalABLE accounts, ensuring they can use it for other critical expenses.

02/27/2025

A great blog on labs.

New Blog Post!

Essential Lab Tests for Children with Down Syndrome

Understanding your child’s health starts with the right testing. In this blog post, Dr. Peirson covers both conventional and functional lab tests that can help identify nutrient deficiencies, thyroid imbalances, mitochondrial dysfunction, gut health issues, and more, all common concerns in children with Down syndrome. These labs provide valuable insights that can guide personalized support for growth, development, and overall well-being.

(That's a photo of Dr. Peirson doing a blood draw on her own son, something she's done many times. 🙂)

https://www.peirsoncenter.com/articles/essential-lab-tests-for-children-with-down-syndrome-conventional-and-functional-approaches-to-support-health

01/17/2025

Today is the last day to add your comment.

The Fair Labor Standards Act (FLSA or Act) authorizes the Secretary of Labor to issue certificates allowing employers to pay productivity-based subminimum wages to workers with disabilities, but only where such certificates are necessary to prevent the curtailment of opportunities for employment....

08/15/2024

https://news.cuanschutz.edu/linda-crnic-institute/breakthrough-study-reveals-molecular-subtypes-of-down-syndrome?fbclid=IwZXh0bgNhZW0CMTEAAR2BUC4zD7xBHhZ9kAwLWLlo_AdgpJlAboDtfgKMP21dCpaPfo_eVRlQweA_aem_nGneq7_8X1Pe4FtLICDtYg

*New Research*

A new study by researchers from the Linda Crnic Institute for Down Syndrome reports distinct molecular and immune subtypes across individuals with Down syndrome, offering new insights that could lead to personalized medicine approaches.

10/17/2023

FYI

🔊Attention everyone!

You're in for a treat because we have an exciting event that's FREE and OPEN to the PUBLIC! FREE for ALL!

Yes, you read that right - no strings attached! Non-members can register as guests at www.copaa.org/page/guestaccount and join us on Oct 19th at 1 PM/ET for the COPAA State Complaints event at https://learn.copaa.org/p/statecomplaints1019.

Don't miss this incredible opportunity to expand your knowledge and gain valuable insights. This event is perfect for anyone looking to enhance their skills and stay ahead of the game.

So, what are you waiting for?

Register now and join us for an unforgettable experience!

Hurry, spots are filling up fast, and you don't want to miss this chance to connect with like-minded individuals and learn from the best in the business.

See you there!