Raghav’s Journey with GPX4

Raghav’s Journey with GPX4 This is a page to share Raghav’s journey to becoming a kind, generous and healthy kid.

This is a forum to share his little wins, progress, find researchers/pharmaceutical companies to find a cure for Raghav.

Musings on international day of persons with disabilitiesI have come a long way in changing the narrative of how people ...
12/04/2021

Musings on international day of persons with disabilities

I have come a long way in changing the narrative of how people address Raghav kutty's disability. Over the last 3 years, I saw people model my language, behavior and attitude when addressing Raghav. I consider it an honor to learn vigorously to support and craft a supportive environment for Raghav and several others in the disability community.

On this day, I want to thank all the allies who have supported us so far. They are the ones who remind us to keep fighting the good fight when we are exhausted. Take a moment to think how you can be an ally to someone who has a visible or invisible disability.

We all will experience a form of disability in our lives at some point. And when you do, you will be surprised to spot more similarities than differences.

Super excited about The.Iyerwaltz.Officiall presents " " coming up in 3 days. It is Tamil music fundraiser FB Live show ...
03/24/2021

Super excited about The.Iyerwaltz.Officiall presents " " coming up in 3 days. It is Tamil music fundraiser FB Live show to raise funds for Raghav's medical research.

Please update your facebook profile pic with the frame to help us reach more people. You should be able to find the frame under the name " "

Mark yourself "Going" to the FB Live show. I can't wait to see you all there cheer for Raghav. http://bit.ly/RSVPforBayAreaSupportsRaghavMusicalFundraiser

Ways to make an impact on Raghav's life:

👉 Sponsor-A-Waltzer (sponsor a song from your kid or yourself to Baby Raghav) : https://forms.gle/HHtvTudJuwM9PC429

👉 FB fundraiser link: http://bit.ly/DonateforBayAreaSupportsRaghav

👉 India fundraiser link: http://bit.ly/DonateIndiaforBayAreaSupportsRaghav

A million EEG leads on his head and not a difference in his smile. I adore adore this little guy for the smile and cheer...
02/02/2021

A million EEG leads on his head and not a difference in his smile. I adore adore this little guy for the smile and cheer he brings to the world

01/30/2021
COMBINEDBrain - Outcome Measures and Biomarkers for Neurodevelopmental started the new year celebrating Raghav and other...
01/26/2021

COMBINEDBrain - Outcome Measures and Biomarkers for Neurodevelopmental started the new year celebrating Raghav and other kids fighting rare diseases. I had happy tears putting this puzzle together! Raghav's 2 day old picture on top left 😍

01/20/2021

Sahana and Sidd made Rare greetings to show their support for Raghav and other kids affected with this condition. Hear the little ones talk about it

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San Diego, CA

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