12/06/2025
My name is Samantha, and this is my journey living with polycystic kidney disease (PKD).
I found out I had PKD when I was 21. It’s hereditary, and I inherited it from my dad. PKD has taken a huge toll on my family ,my dad passed away from it, two of his brothers needed transplants, and another one of his brothers died from the disease. I always knew it was in my genes, but I didn’t expect it to impact my life this early or this aggressively.
About three years ago, my kidneys went into full failure and I had to start dialysis. Since then, I’ve been fighting to stay healthy enough for the transplant list. I’ve continued working through everything, even while going through three PD ports, three chest catheters, and battling a rare microbacterial infection that required an open stomach wound healing from the insude out. On top of that, I went through a rare pregnancy while on dialysis , something most doctors only read about in textbooks. They actual read textbooks for guidence in my case.
After years of waiting, I finally got the call I thought would change my life: a kidney became available. On 11/11, I received a transplant from an anonymous donor. To make room for the new kidney, surgeons removed both of my native kidneys. At first, the new kidney worked it produced urine, and it looked like everything was finally turning around.
But very quickly, things took a devastating turn.
The new kidney suddenly clotted and stopped functioning. I was rushed into emergency surgery, but there was nothing the surgeons could do to save it. They had to remove the transplant. Overnight, I went from having hope for a new life to having no kidneys at all.
I’m now back on hemodialysis and trying to recover, but this recovery has been much harder on my body and my emotions. It feels like starting all over again only this time, with more scars and more weight on my shoulders.
I’m sharing my story because I’m hoping someone out there will read this and consider becoming a living kidney donor. I want nothing more than to finally move forward with my life, to be there for my children (Bella,Mila,Maeve & Meadow) and to have the chance at the future I’ve been fighting for all these years.
Please share my story.