Beat The Odds Sarcoma Fund

09/29/2026

Progress in sarcoma care depends on collaboration.
At ISOLS, orthopedic oncologists, researchers, and other specialists from around the world share evidence, discuss complex cases, and learn from one another’s experience. These conversations help shape better approaches to treatment, reconstruction, and long-term care.
We are grateful for the opportunity to connect with people who share a commitment to improving outcomes for patients with sarcoma. The knowledge exchanged here matters most when it makes its way back to the patients and families we serve. 💪🏼🎗️🎗️🎗️💪🏽

09/28/2026

A sarcoma diagnosis can turn a family’s world upside down. Then comes another question: How do we get to the care we need? The right specialist may be hours away. At Beat The Odds Sarcoma Fund, we help families with the practical costs of reaching specialized care, including travel, lodging, and parking. The road to treatment should not be one they have to navigate alone.

Share this post to help a sarcoma family find us.

09/18/2026

I was so pleased with how quick and easy it was to get in touch with this organization. Anyone battling cancer knows how expensive it can get. Even with donations, it’s still a huge financial burden along with the stress of worrying about treatments and other things. I can’t say enough about how amazing this organization is. They were able to cover my hotel this time FULLY! I was also provided with a digital gas card. I had applied last Thursday and didn’t expect such a quick turn around time. I literally got confirmation for the hotel (which was a super clean and nice facility) and the gas card Saturday afternoon. What I found really nice was the CEO personally messaged me and checked multiple times that I had what I needed. He also shared his own personal cancer journey with me, which was nice. 10/10 would recommend using their service if you are facing any kind of sarcoma.

07/06/2026

The average bone sarcoma is diagnosed about 163 days after symptoms begin, and most of that delay isn’t the patients. If something’s growing and unexplained, push for imaging.

The average bone sarcoma is diagnosed about 163 days after symptoms begin, and most of that delay isn’t the patient’s.

07/02/2026

Sarcoma isn’t one disease, it’s more than 70. And that fragmentation is a big reason it’s so hard to catch and so underfunded. Full breakdown 👇

Why “rare cancer” is really dozens of ultra-rare cancers wearing one name.

07/02/2026

July is Sarcoma Awareness Month. Being overlooked has a real cost - so we’re spending 31 days on what the research actually says, starting with why the “forgotten cancer” stays forgotten. 🎗️

Sarcoma is called the forgotten cancer for a reason. When a disease is this rare, a few early decisions decide everything. Here is what the peer-reviewed evidence shows.

06/25/2026

Happy Birthday to Frehley Wilson, our treasurer and one of the steadiest hands behind Beat The Odds.

Frehley came to this work the way alot of us did, by watching someone she loves fight sarcoma, and refusing to look away. She keeps our books honest and our mission funded so we can get patients to the centers that save lives.

Happy birthday, Frehley!! 🎉