Rare Disease Renegades

06/28/2025

I had the pleasure of meeting Tom and Mia today at the WheelsWheels For Wheelshow. Sean was a man in the arena. He set an example we should all aspire to.

11/17/2023

10/27/2023

10/23/2023

Our event sponsors: Sarepta Therapeutics, Hunt Hardwood, Back Bay Mechanical, Quinn Brothers Iron, Hogshead Wine Company, Remnant Brewing, Wilson Farm, This Old House, The Werner-Lester Family.

https://secure.givelively.org/event/rare-disease-renegades/this-new-house-with-this-old-house

10/13/2023

Thank you to Remnant for sponsoring This New House with This Old House. Tickets are selling fast, get yours today!

10/11/2023

Support a great cause and experience some of the ways that AVI can help your home become more accessible!

Purchase tickets here -> https://secure.givelively.org/event/rare-disease-renegades/this-new-house-with-this-old-house

10/06/2023

Who wants to meet Charlie Silva?

Friends & Neighbors: Please join us for a special charitable evening with This Old House for a sneak peek behind the scenes of the show’s latest project being film...

10/06/2023

Friends & Neighbors: Please join us for a special charitable evening with This Old House for a sneak peek behind the scenes of the show’s latest project being film...

10/01/2023

It was cancelled but we ran anyway! Kept it safe and a bit shorter than 10 miles.