11/06/2025
Some updates on Mylie..
So she had a visit with the ophthalmologist on Friday, who said there's nothing more they can do with her tear ducts. He said the only other thing he can do is to put a Jones tube in, which is essentially a glass like tube that holds the ducts open for the rest of her life and they can get clogged a lot and then she would constantly have to go out to Syracuse to get them flushed out, which neither the doctor nor I want to put her through.
Regarding the MRI, the neurologist said the spinal cord is still lying low, she doesn't see any fatty tissue but still can't tell if it's attached or not because Mylie is still so small. She said as she gets taller and the cord lengthens and stretches, if it is tethered, it will pull and cause numbness in the lower half of her body. She said the fact that Mylie is mobile and can feel when she's being touched, makes her think that it's not, but she wants to continue seeing her yearly to be sure.
We also got word today that she will be getting her cleft repaired for the second time and a second set of ear tubes put in on Monday, December 1st.
She's also been doing so well lately with PT, as she's now crawling 🙌🏼
Thank you all for following along and for your prayers. Please continue praying for our girl🙏🏼
