SMA Angels Charity, Inc.

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SMA Angels Charity, Inc. 100% Volunteer, 501 (c)(3) non-profit dedicated in the fight against Spinal Muscular Atrophy (SMA) .

Determined that no parent will again hear, “Your child has SMA and will never sit, walk or stand and they will die before the age of two

07/20/2026
04/02/2026

Biogen today announced that it has received approval from the U.S. Food and Drug Administration (FDA) for the High Dose regimen of SPINRAZA to treat people living with SMA. With broad label approval for all those living with SMA, this is an excellent result for the SMA community.

This FDA approval marks another important step forward in the ongoing effort to treat and manage SMA. The High Dose regimen of SPINRAZA has the potential to provide additional benefit for those currently receiving treatment, offering new possibilities for improved outcomes and quality of life. Cure SMA is committed to working closely with Biogen, healthcare providers, and the SMA community to support timely education and access to this new dosing option, in alignment with its approved use.

To learn more, please visit: https://www.curesma.org/biogen-receives-fda-approval-of-high-dose-spinraza-for-the-treatment-of-sma/

03/24/2026

Cure SMA is excited to announce the main events held at this year’s Annual SMA Conference:

Meet & Greet
Family Friendly Researcher Poster Session
PJ Party & Movie Night
…and many more socials and networking events throughout the weekend!

Registration will be closing on Friday, May 8 – If you have not registered yet, be sure to register and book your hotel room today!

Please contact [email protected] with any questions.

https://www.accelevents.com/e/2026-annual-sma-conference

03/24/2026

Get the scoop: https://bit.ly/3MUkprW
Understanding the genetics behind Spinal Muscular Atrophy can help explain why symptoms develop and why the condition can vary from person to person. Mutations in the SMN1 gene reduce the amount of SMN protein needed for healthy motor neurons, while the SMN2 gene can produce small amounts of this protein and influence disease severity.

Accurate, early diagnosis is critical—helping individuals access treatment sooner and supporting better long-term outcomes. 🧬

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Richmond Hill, GA
31324

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