Running4stevienick

Running4stevienick visit https.//www.pmdfoundation.org PMD Leukodystrophy
(Pelizaeus Merzbacher Disease) is a horrible-cruel disease with no cure, no treatment.

started with a simple mission, run for those that can’t.My nephew was born with PMD-Leukodystopphy (Pelizaeus-Merzbacher) which is a genetic disease of the central nervous system and spinal cord. Running4stevienick was created in honor of my nephew Steven Nick, diagnosed with PMD at an early age, advised his life expectancy would be short this December we will celebrate his 30t

h. Steven has never had the gift to walk but has the gift of the best smile and heart. He’s non-verbal however, with his smile and the gleaming from his eyes he shares the greatest story of the greatest man ever. I run for him because I know if he could he would for me.

12/19/2020

Help me wish a happy birthday to the one and only Steven Nick - love you

Holiday cheers are being mailed today !! Thank you PMD Family Support for all you do in supporting families all over the...
12/09/2020

Holiday cheers are being mailed today !! Thank you PMD Family Support for all you do in supporting families all over the world. Check out this cool word cloud representing locations of those being supported

11/23/2020
09/17/2020

Leukodystrophy Awareness month will hold a live drawing for the original new Running Bag 11:00AM PST 2:00PM EST. You still have time go like Running4stevienick check out the bag

During Luekodystrophy Awareness month wants 1 lucky individual to own 1 of 3 race day running bags. Personal embroid...
09/07/2020

During Luekodystrophy Awareness month wants 1 lucky individual to own 1 of 3 race day running bags. Personal embroidery included. This awesome backpack has a separate compartment for shoes, glasses and cloths.
To win simply post:
“I support “
Remember, we run 4 those that can’t.

It’s week 2 of Luekodystrophy Awareness month !! Don’t forgot the awesome chance to win a new pair of Apple AirPods AirP...
09/07/2020

It’s week 2 of Luekodystrophy Awareness month !! Don’t forgot the awesome chance to win a new pair of Apple AirPods AirPod Pros !! That right PROS.
HOW:
1. Simply make a minimum $5.00 donation to www.PMDFAMILYSUPPORT.COM each additional $5.00 is an additional entry.
2. Like page comment done and share - that simple
Happy Labor Day - lets share some love for Stevie Nick !!

We strive to provide support for families whose child/children have been diagnosed with Pelizaeus-Merzbacher Disease. We do this by offering an internet support group as well as hosting an annual family support conference for these families.

Address

Portland, OR
97209

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