Founded in 1994 by family members and persons with these diagnoses, SRNA (formerly the Transverse Myelitis Association) was incorporated on November 25, 1996 in the state of Washington and became a 501(c)(3) organization on December 9, 1996. Membership of SRNA includes individuals with these rare disorders, their family members and caregivers, and the medical professionals who treat individuals wi
th these disorders. SRNA currently has approximately 14,000 members from more than 80 different countries and has a large number of support groups across the United States and around the world. Our goal is to advance a comprehensive network dedicated to the care of our members through the development of professionals specializing in these rare disorders, centers of excellence focused on these disorders around the world, and our international community support system. Additionally, we are developing strategic research priorities with our Board of Directors and Scientific Council to further the understanding of the causes of ADEM, AFM, MOGAD, NMOSD, ON and TM, and to develop new acute and regenerative therapies. We offer a support network between persons with these disorders through local support groups located throughout the world. To attract new clinicians and researchers into the rare neuroimmune disorder discipline, we have established the James T. Lubin Fellowship. We publish newsletters to update the community on current research and various community outreach events and opportunities. We support and conduct various educational events through symposia and workshops involving clinicians, scientists, and individuals affected by these disorders for the exchange of information regarding research and treatment strategies, including annual family camps for children with these disorders and their family members.
