On the Spectrum Philippines

On the Spectrum Philippines The DREAM is to provide accessible therapeutic solutions, and resources to every family at home. Every child is unique with specific needs.

Centered Around Love:
Our vision is to get the entire family involved in the development of your child. Some kids are more tactile seeking while others are more avoidant. Getting the entire family unit involved is crucial in meeting developmental milestones and meeting your child's sensory needs.

Stem Cell Institute PanamaHilton PanamaUpdate: And we are done.This week was nothing but new experiences. Kiddos both di...
09/05/2025

Stem Cell Institute Panama
Hilton Panama

Update: And we are done.

This week was nothing but new experiences. Kiddos both did really well, considering that they both hate blood draw. What was really helpful for me was front loading my kids especially my 13 year old. For 3 months we have been rehearsing how to do a blood draw, from alcohol prep to tourniquet - I bought a kit from Amazon. It made a significant difference when they got here. I also bought an alcohol pad with numbing solution also from Amazon and they were able to use those here for my kids. Md said they will explore possibly bringing those prep pads here for our kiddos. I also have a buzzy bee to distract kids from pain.

First Day: Blood draw and MD consult. We had the best doctor in Doctor Broce. It was evident that he reviewed the paperwork I shared with them because he knows the case for both my kids (considering they have very similar names). Emily and Melissa were both wonderful. Our nurse (ding it, I forgot to ask her name) was amazing, 1 poke for my kids considering that my son is a hard stick and would historically need 2 or 3 attempts in the US.

Second Day: IV push and intranasal. This is the day I noted hyperactivity in my 6 year old the most. Literally like WORLD WAR Z if you know that movie. Climbing tables, bed boards, etc. and even bit her brother in the arm when excited. We drained her energy in the Multiplaza mall and in the pool area.

Third Day: IV push. Nothing significant to note here. They hosted a Q and A in the meeting room where I got the chance to ask 4 questions. MD speaker was very knowledgeable and I felt like all my questions were answered.

Fourth Day: IV push and intranasal - more hyperactivity for 6 year old. 13 year old took it like a champ. When we see hyperactivity post cells, usually it happens when we do intranasal would last up to 4 hours post infusion.

Fifth Day (today): IV push and post cell consult. Nothing significant yet - we got a copy of their blood draw which was explained to us by the doctor and we got the treatment abstract. We got a fancy give away as well.

Quick thoughts: SCI in Panama is very organized and that is a lot coming from me because I have my fair share of being “OCD”. Now we wait for gains but we are already considering coming back next summer.

Tips:
1. No microwave in our room In Hilton, making my life a little miserable because it makes feeding my children difficult as they only eat certain food.
2. Panamá is not a fan of American Express, bring another card!
3. Breakfast is good. Guy in the omelet station is awesome.
4. It is rainy season now so we couldn’t enjoy the pool as much as we wanted due to thunderstorms.
5. Panama doesn’t have much sidewalks and wheelchair access in their streets making walking difficult. Their ramps are very high. Not the typical 1 inch of rise equals 1 foot of ramp in the US. Bring a good stroller.
6. No Filipino food. Happy that I brought a small rice cooker. No utensils in Hilton too. We bought disposables in the nearby store.
7. Foodie Grocery Store will be your go to for essentials. We went twice for fruit and milk etc.
8. If you are not fluent in Spanish, (we would have struggled with the road signs) don’t drive - UBER. Uber is very safe, accessible and affordable.

Gains:
Too early to see, but…
13 year old: none
6 year old: said a 10 word sentence: “this is the way we dress on a rainy day!” After second infusion. Said ouch and was laughing when she feel off bed lol, said I fell down and was laughing in the pool area (these are new for her) after day 1 of infusion. She seems more present and we may be overthinking it but when you are with your kiddo all the time, you know when there is a change.

What did we do here for fun:
1. Pool area and network with other families. Miss you guys already! Glad that we made new friends, from Chicago, Florida, New York, Texas and from Alberta Canada!
2. Multiplaza mall. They have Chuck E Cheese and play structure.
3. Thanks for the recommendation from this group, we checked in at the Westin Playa Bonita beachfront hotel. It was amazing and would definitely recommend. We booked a hotel room versus doing day pass as it was cheaper that way since there were 6 of us.
4. Albrook Mall.
5. Ate steak at the Gauchos for hubs and I, as a reward to ourselves. Steak and shrimp in garlic sauce is a 5!
6. We plan to do the massage in Hilton Eforea today.

Good luck guys, there’s my blow by blow as promised. Pictures here are our family and my 13 year old leaving the key in the lobby celebrating the last thing he will need to do for this session.

Praying for you guys and gains gains gains for our kiddos. It takes a village.

09/03/2025
We’re excited to share that our family will be going to Panama City for a stem cell transplant for our two kids on the s...
08/27/2025

We’re excited to share that our family will be going to Panama City for a stem cell transplant for our two kids on the spectrum. 🌟

We’ll be documenting and sharing our journey here on this page soon. 🙏💙

Please like, follow, and share so we can spread this information and help others who may benefit.

📍 Stem Cell Research Institute – Panama City

To all the autism parents in the Philippines! Share this page, this is free. Join now! We have heard Temple speak and it...
09/17/2024

To all the autism parents in the Philippines! Share this page, this is free. Join now! We have heard Temple speak and it changed our lives!

REGISTER FOR FREE.

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The ZONES of Regulation.Self-regulation can go by many names, such as self-control, self management, and impulse control...
11/09/2023

The ZONES of Regulation.
Self-regulation can go by many names, such as self-control, self management, and impulse control. It is defined as the best state of alertness of both the body and emotions for the specific situation.
• For example, when your child plays at a playground or in a competitive game, it is beneficial to have a higher state of alertness. However, that same state would not be appropriate at the dinner table.

The lessons and learning activities are designed to help your child recognize when they are in the different Zones as well as learn how to use strategies to change or stay in the Zone they are in.

In addition to addressing self-regulation, your child will gain an increased vocabulary of emotional terms, skills in reading other people’s facial expressions, perspective about how others see and react to their behavior, insight into events that trigger their behavior, calming and alerting strategies, and problem solving skills.

A critical aspect of this curriculum is that all team members know and understand The Zones language. This creates a comfortable and supportive environment for your child to practice his or her self-regulation skills.

It also helps your child learn the skills more quickly and be more likely to apply them in many situations.

You can support your child during this process by doing the following:
• Use the language and talk about the concepts of The Zones as they apply to you in a variety of environments. Make comments aloud so your child understands it is natural that we all experience the different Zones and use strategies to control (or regulate) ourselves. For example, “This is really frustrating me and making me go into the Yellow Zone. I need to use a tool to calm down. I will take some deep breaths.”
• Help the child gain awareness of his or her Zones and feelings by pointing out your observations.
• Validate what Zone your child is in and help them brainstorm expected ways to self-regulate so their behavior is expected for the context.
• Share with your child how his or her behavior is affecting the Zone you are in and how you feel.
• Help your child become comfortable using the language to communicate his or her feelings and needs by encouraging your child to share his or her Zone with you.
• Show interest in learning about your child triggers and Zones tools. Ask your child if he or she wants reminders to use these tools and how you should present these reminders.
• Ask your child to frequently share his or her Zones Folder with you and talk about what he or she has learned.
• Make sure to positively reinforce your child for recognizing their Zone and managing their behaviors while in it, rather than only pointing out when students are demonstrating unexpected behaviors while in a Zone.

It is important to note that everyone experiences all of the Zones—the Red and Yellow Zones are not the “bad” or “naughty” Zones. All of the Zones are expected at one time or another. The Zones of Regulation is intended to be neutral and not communicate judgment.

The ZONES of Regulation™ Glossary

Self-regulation: The ability to achieve the preferred state of alertness for the given situation. This includes regulating one’s body’s needs as well as one’s emotions.

The Zones: A concept used to help students learn how to self-regulate. The Zones of Regulation creates a system to categorize how the body feels and emotions into four colored Zones with which the students can easily identify.

Blue Zone: Used to describe a low state of alertness. The Blue Zone is used to describe when one feels sad, tired, sick, or bored.

Green Zone: Used to describe the ideal state of alertness. Your child may be described as calm, happy, focused, or content when he or she is in the Green Zone. Your child feels a strong sense of internal control when in the Green Zone.

Yellow Zone: Used to describe a heightened state of alertness. Your child may be experiencing stress, frustration, anxiety, excitement, silliness, or fear when in the Yellow Zone. The student’s energy is elevated yet he or she feels some sense of internal control in the Yellow Zone.

Red Zone: Used to describe an extremely heightened state of alertness. A person may be experiencing anger, rage, explosive behavior, panic, extreme grief, terror, or elation when in the Red Zone and feels a loss of control.

Toolbox: A collection of calming and alerting strategies a student can pull from depending on the present need. Tools or strategies: Used interchangeably to refer to a calming or alerting technique that aids the student in self-regulation.

Trigger: An irritant that causes a student to become less regulated and increases the likelihood of going into the Yellow or Red Zone.

Stop, Opt, and Go: A concept used to aid your child in controlling impulses and problem solving better solutions. This phrase is paired with a stoplight to provide additional cues for students.

Expected behaviors: Behaviors that give people around you good or comfortable thoughts about you.

Unexpected behaviors: Behaviors that give people uncomfortable thoughts about you.

Doer: The person or persons doing the expected or unexpected behavior in a situation.

What is the size of the problem? and Is this a Big or Little Problem?: Questions posed to help students measure the size of the problem they are experiencing (Big Problem, Medium Problem, or Little Problem).

Big Problems: Problems that many people share and that have no easy, quick, or pleasant solution.

Medium Problems: Problems some people share that are able to be resolved in an hour to a couple of days.

Little Problems: Problems that only affect one to two people and can be ignored or solved in a matter of minutes.

Inner critic: Used to describe negative, self-defeating thoughts.

Inner coach: Used to describe positive thoughts.

Superflex thinking: A flexible thinking pattern in which a person is able to consider different points of view or ways to do something.

Rock Brain thinking: A rigid thinking pattern in which a person gets stuck on an idea and has difficulty considering other options or ways to do something.

04/05/2023

April is Autism Awareness Month... in the 11+ years I've been "made aware" of Autism. I have learned so much about patience and resilience. Celebrating the minor and major victories, that many families take for granted.. for all of my friends that travel this road with me... you are all ROCK STAR DADS and MOMS!!! I saw this posted on a site and it says sooo much about the Spectrum..I ❤💙💛🧡 you buddy. Keep reaching for your dreams..

Autism is: 😘

Unable to speak, or maybe speaking too much
Hugging everyone, or disliking touch
Escaping outside,
Or trying to hide
Excitedly flapping
Inappropriate clapping
Autism varies so much

Won't wear a coat, or wears one all year round
Fussy eater, or would eat dirt from the ground
Screaming or humming
Annoyingly drumming
Toys in a line
The same way every time
Autism varies so much

Struggling to learn, or has wonderful gifts
Obsessions of numbers, trains, films or lifts
Spinning around
Throws things on the ground
Constantly spitting
Aggressively hitting
Autism varies so much

Alone without friends, or controls every game
Always looks different, always dresses the same
Swinging on doors
Head banging on floors
Freaks at the dryer
Keeps climbing higher
Autism varies so much.

Can't answer questions, won't do as they're told
In their own world or bossy and bold
Over prepared
Anxious and scared
A spectrum so wide
But they all bring us pride
When autism touches our lives.

I support autism awareness always

Copy & Paste If You Do Too! 🥰

❤️🧡💛💚💙💜

Support, don’t stare or ridicule, its genuine, and can’t be helped. Support is welcomed, this could be any child, any parents daily struggle, but understanding and patience is a virtue .
I support autism awareness... always!! 🥰
💜💛💚💙💗💙💚💛💜

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