This is when the bottom part of the brain, the cerebellum, descends into the spinal column putting pressure on the brain & spinal cord. Tegan Deske is a 7th grader at East Peoria Central Junior High. She is 13, a Taekwondo Black Belt, avid roller blader, vegetarian, animal activist, and Humanitarian. In January, Tegan was diagnosed with a serious neurological disorder, Chiari Malformation. Chiari
causes a wide range of debilitating symptoms. Severe headaches, spinal fluid pockets, vision loss, paralysis and more. Less than 2 weeks after her diagnosis she had brain surgery to remove the pressure. Shortly after, her cerebellum descended even further. Tegan will be having a second surgery soon. We are asking for your support. Her mother has not been able to work much and will continue to be with Tegan for several more months while she heals. You can purchase a shirt / provide a monetary donation with this link: https://www.booster.com/team-tegan
Your purchase of a shirt not only helps ease some financial burden, it helps to raise awareness of these rare conditions Chiari and Syringomyelia, and shows Tegan she is not alone in this fight! You will be invited to a community event later this summer to continue to raise awareness and proudly wear your shirt as a Chiari Warrior! Thank you for your Support!
