Cystic Fibrosis Foundation - North Central Florida Chapter

06/18/2026

We’re incredibly proud of everyone representing the cystic fibrosis community at the Cystic Fibrosis Foundation's 18th annual Teen Advocacy Day.

Next week our Florida community will be sharing their stories with Lois Frankel & Rep. María Elvira Salazar to highlight the urgent need to increase funding for the National Institutes of Health to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF — and ultimately, a cure.

06/05/2026

This 65 Roses Day (6/5), join the 65 Roses Club: a dedicated group of monthly donors committed to helping cure cystic fibrosis.

As a monthly donor, you can spread your support into smaller gifts that add up to real progress. This steady, reliable stream of revenue helps enable the Foundation to fund innovative research, drug development, and provide high-quality, specialized care so that we can get closer to a cure for cystic fibrosis.

Joining is easy — set up automatic monthly giving through the donation page and know your support is working for people with CF every month, without any extra steps.

https://give.cff.org/65rosesclub/donate?rbref=65RD26ch&donate=35&unitid=Florida%20-%20North%20Central%20-%20Jacksonville

06/04/2026

Join the next CF Circle for a virtual, small-group discussion about the Black CF Experience. On June 23 at 7 p.m. ET, Black adults with CF, as well as parents and caregivers of Black children with CF, are invited to talk openly with peers about shared experiences like misdiagnosis, delays in treatment, self-advocacy in medical settings, and navigating life with CF.

https://on.cff.org/CF-Circles-June-2026

06/02/2026

65 Roses Day (6/5) is around the corner! Are you familiar with the “65 Roses” story?

The “65 Roses” story began in 1965 when a 4-year-old, hearing the name of his disease for the first time, pronounced cystic fibrosis as “65 Roses.” Today, it’s a term many children with CF still use to describe their disease. But making the disease easier to say doesn’t make it easier to live with.

05/26/2026

✨ Thank You, Jacksonville Great Strides Community! ✨

We are incredibly grateful to every walker, volunteer, donor, and supporter who made this year’s Jacksonville Great Strides Walk our best year yet! With over 450 participants, the energy, passion, and commitment were truly inspiring.

Because of YOU, we’re making meaningful progress—and we’re not done yet! Many of you are still fundraising, helping us move closer to our $100,000 goal to support this important cause.

📸 Be sure to check out the event photos and relive all the amazing moments from the day!

Thank you for your dedication, your heart, and your continued efforts to make a difference. Together, we are stronger and creating an impact that truly matters. 💙

05/26/2026

05/25/2026

As we wrap up Cystic Fibrosis Awareness Month, we are grateful for everyone who raised awareness and supported the CF community. Together, we will keep pushing forward until we find a cure for all people with cystic fibrosis. Get involved in an upcoming event or make a donation to help make it possible.

https://give.cff.org/north-central-florida/donate?rbref=homepage

05/22/2026

Our walkers, team leaders, volunteers, and so many more make Great Strides more than just an event — it’s a movement. Alongside our Great Strides sponsors: Vertex, AbbVie, and Nestle Health Science, we can help end cystic fibrosis.

05/21/2026

Thank you Ashley's Angels for hosting Sip for CF, benefiting The Cystic Fibrosis Foundation. We appreciate you gathering your friends and family to raise awareness and fundraise for cystic fibrosis. .a.beyer

We love how passion fundraisers create deeper connections by bringing people together around the interests, hobbies, and experiences they love most — transforming fundraising into a meaningful and memorable community experience!

05/14/2026

This CF Awareness Month, we’re shedding light on the unseen struggles of cystic fibrosis. Bradley Poole navigated life with CF alongside anxiety, OCD, and depression. Through treatment, mental health support, and fitness, he’s learned how to turn struggle into strength.

“I was born with cystic fibrosis, so hospitalizations, treatments, and uncertainty were part of my normal. But what people didn’t see was the mental side of that fight. The anxiety, the depression, and the constant question in the back of my mind: Why me? There was also the fear that came with it — fear of dying young, fear of not having control over my future.”

Read Bradley’s story:

I’ve spent my life navigating cystic fibrosis alongside anxiety, OCD, and depression — struggles that once led me to numb everything with alcohol until a wake‑up call changed everything. Through treatment, mental health support, and fitness, I’ve learned how to turn struggle into strength.