Intestinal Malrotation Research Alliance

10/06/2026

Four members of our IMRA team recently attended the 14th International Pediatric Intestinal Failure and Rehabilitation Symposium in Omaha, Nebraska. PIFRS was an excellent patient-centered conference that brought together patients, caregivers, clinicians, and researchers to share knowledge, foster collaboration, and discuss the latest research and advances in intestinal failure and intestinal rehabilitation.

Our team presented two scientific posters. The first explored chronic gastrointestinal symptoms among patients with co-occurring gastroschisis and malrotation, which provides new insights into long-term outcomes for this unique patient population.

The second examined time to diagnosis based on pre-diagnostic symptom profiles, where we highlighted how symptom presentation may influence diagnostic pathways and delays. Thank you to our Graduate Research Assistant, Betty Tesfaye Eshete who took the lead on our abstracts and posters! Drs. Katie Corcoran, Sydney Martinez, and Darren Bodkin were also able to share our findings and research directions with the intestinal failure research community.

We were honored to contribute to these important conversations and to share our findings as we continue working to improve understanding, diagnosis, and outcomes for patients with malrotation.

We have more exciting trips and presentations planned for October – a whole malro month for our team!

02/28/2026

02/28/2026

Today is Rare Disease Day!

While intestinal malrotation may not be considered ultra-rare, many families still struggle to find providers who have identified or cared for more than a small handful of patients with the condition. That reality creates real challenges.

Malrotation is common enough that we need far greater awareness. Its signs and symptoms can be vague, intermittent, and easily attributed to other conditions. When the diagnosis is missed or delayed, the consequences can be devastating.

At IMRA, our #1 research priority is clear: identify better, faster ways to diagnose malrotation. Earlier recognition means earlier intervention and better outcomes for patients and families.

Check out our news story here:

On Rare Disease Day, observed each year on February 28, the Hudson College of Public Health is proud to highlight one of its leading research centers dedicated to improving the lives of individuals affected by a rare and often misunderstood condition: the Intestinal Malrotation Research Alliance (IM...

02/27/2026

In honor of Rare Disease Day (February 28th), we’re launching a special IMRA online pop-up apparel shop!

Grab your IMRA t-shirts or hoodies, and help raise awareness for intestinal malrotation and show your support for the rare disease community.

Our shop closes March 3 — don’t miss it!

Every purchase helps spark conversations, increase visibility, and strengthen our growing community of patients, families, clinicians, and researchers.

Shop now: https://undergroundshirts.com/groups/imra-apparel-1

01/15/2026

Today is Intestinal Malrotation & Volvulus Awareness Day

Intestinal malrotation is a rare congenital condition that can lead to life-threatening volvulus if not recognized quickly. Symptoms can appear at any age and may include severe abdominal pain, vomiting (especially bilious/green), failure to thrive, feeding difficulties, and ongoing gastrointestinal issues.

Learn more about malrotation and our research efforts at malrotationresearch.org.