Lupus Connect

Website Contact the organization

Lupus Connect Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Lupus Connect, Nonprofit Organization, Oak Park, MI.

The Steroid Conversation
10/17/2026

The Steroid Conversation

Lupus Medication Management
10/16/2026

Lupus Medication Management

Manage your lupus by knowing your labsHaving regular lab tests can help not only you, but also your healthcare team moni...
10/16/2026

Manage your lupus by knowing your labs

Having regular lab tests can help not only you, but also your healthcare team monitor lupus activity and understand how your body is doing.

- Know your numbers.
- Track result changes.
- Always ask questions about abnormal results.
- Have a great healthcare team to work with to manage your lupus.

Remember: Your symptoms and how you feel matter just like your lab results!

REMISSION & LOW DISEASE ACTIVITY: WHAT DOES IT MEAN?Living with lupus can be unpredictable. Some days are difficult, whi...
10/14/2026

REMISSION & LOW DISEASE ACTIVITY: WHAT DOES IT MEAN?

Living with lupus can be unpredictable. Some days are difficult, while others bring relief. Did you know that remission and low disease activity are important goals in lupus care?

REMISSION generally means lupus activity is very low or absent based on clinical measures. It does not mean lupus is cured.

🌿 LOW DISEASE ACTIVITY (LLDAS) means lupus is being maintained at a low, controlled level. Both goals may be associated with better long-term outcomes.

🩺 HOW IS LUPUS MANAGED?
Your healthcare team may recommend:
💊 Taking medications as prescribed
🩺 Attending regular appointments
🧪 Monitoring lab results and symptoms
📋 Reporting changes in your health
🎯 Setting realistic treatment goals together
❤️ Managing other health risks

The 2025 American College of Rheumatology guidelines emphasize remission, low disease activity, preventing complications, and shared decision-making.

REMEMBER: Feeling better doesn't always mean lupus is inactive. Regular monitoring helps your healthcare team assess disease activity and adjust treatment when needed.

Your journey is YOUR journey! Ask questions, track changes, and advocate for your health.

👉 SAVE & SHARE this post for your next rheumatology appointment!

💬 LET'S CONNECT: What helps you manage lupus—medication reminders, symptom tracking, appointments, or something else? Share below!

📚 RESOURCES:
• American College of Rheumatology: https://rheumatology.org/press-releases/new-lupus-sle-clinical-practice-guidelines-released
• Lupus Foundation of America: https://www.lupus.org/resources/can-lupus-go-away
• Research: https://pubmed.ncbi.nlm.nih.gov/37798595/

Educational information only; not a substitute for medical advice. Discuss your treatment goals with your healthcare professional.

LUPUS FLARES & MANAGEMENT: KNOW THE SIGNS, KNOW YOUR PLANLiving with lupus means navigating good days, difficult days, a...
10/13/2026

LUPUS FLARES & MANAGEMENT: KNOW THE SIGNS, KNOW YOUR PLAN

Living with lupus means navigating good days, difficult days, and unexpected flares. A flare occurs when symptoms worsen or new symptoms appear. Flares can range from mild to serious.

🔎 WHAT CAN A FLARE LOOK LIKE?
• Extreme fatigue
• Joint pain, swelling, or stiffness
• Skin rashes or sun sensitivity
• Fever not caused by infection
• Mouth or nose sores
• Swelling, headaches, or new symptoms

🌿 MANAGING LUPUS STARTS WITH A PLAN
Work with your healthcare team to:
💊 Take medications as prescribed.
📝 Track symptoms and medications.
🩺 Keep appointments and monitor your health.
☀️ Protect yourself from UV exposure.
😴 Get adequate rest and pace activities.
🧘🏽‍♀️ Manage stress in healthy ways.
💬 Report new or worsening symptoms.

Never stop or change medications without consulting your healthcare professional. Treatment decisions should be made together with your healthcare team.

💜 YOUR FLARE PLAN MATTERS!

Knowing your symptoms, possible triggers, and when to seek medical advice can help you feel more prepared.

📌 CTA: Save this post, share it with another lupus warrior, and visit www.lupusconnect.org for education, support, and community.

💬 LET'S TALK: What helps you manage a lupus flare—rest, symptom tracking, medication reminders, avoiding triggers, or something else? Share below! 👇🏽

📚 LEARN MORE:
• Lupus Foundation of America: https://www.lupus.org/resources/what-is-a-flare
• American College of Rheumatology: https://rheumatology.org/press-releases/new-lupus-sle-clinical-practice-guidelines-released
• Lupus Resources: https://www.lupus.org/resources

Educational information only; not a substitute for medical advice. Contact your healthcare professional about new or concerning symptoms. Seek urgent care for severe or emergency symptoms.*

LUPUS FATIGUE: YOU ARE NOT “JUST TIRED”Ever get a full night’s sleep and still feel exhausted? If you live with lupus, y...
10/12/2026

LUPUS FATIGUE: YOU ARE NOT “JUST TIRED”

Ever get a full night’s sleep and still feel exhausted? If you live with lupus, you’re not alone! Fatigue is a common lupus symptom that can affect your physical health, mental well-being, and daily life. (CDC)

The good news? There are ways to help manage it. Your fatigue deserves attention,not judgment!

🌿 TIPS FOR MANAGING LUPUS FATIGUE

😴 Prioritize rest: Get adequate sleep, take breaks, and remember that resting isn’t laziness.

🥗 Nourish your body: Choose nutritious foods and stay hydrated.

🚶🏾‍♀️ Move gently:** When your health allows, try walking, stretching, swimming, or biking. Start slowly and listen to your body.

🧘🏾‍♀️ Manage stress: Try prayer, deep breathing, meditation, or relaxing activities.

👩🏾‍⚕️ Talk to your healthcare team: Persistent or worsening fatigue may have other causes, including anemia, thyroid problems, medication effects, sleep issues, or increased lupus activity.

🤝🏾 Find support: Connecting with people who understand can make a difference.

💜 REMEMBER: Rest is productive when your body needs it. Your worth is NOT measured by how much you accomplish each day!

💬 LET’S TALK! What helps YOU manage lupus fatigue? Share a tip or encouragement to support another lupus warrior!

📚 Resources: CDC | Lupus Foundation of America (lupus.org)

⚠️ Educational information only; not a substitute for medical advice. Discuss persistent or worsening fatigue with your healthcare provider.

💜☀️ THE SUN & LUPUS: PROTECT YOURSELF, PROTECT YOUR HEALTHDid you know that sunlight can trigger lupus symptoms and flar...
10/11/2026

💜☀️ THE SUN & LUPUS: PROTECT YOURSELF, PROTECT YOUR HEALTH
Did you know that sunlight can trigger lupus symptoms and flares for many people living with lupus? This is called photosensitivity—an increased sensitivity to ultraviolet (UV) light.

UV exposure may cause or worsen skin rashes and lesions, and for some people, it may contribute to symptoms such as fatigue, joint pain, or fever.

The good news? Sun protection can become part of your everyday lupus-management routine. 💜

☀️ 5 WAYS TO PROTECT YOURSELF
🧴 1. Use sunscreen
Choose broad-spectrum sunscreen with SPF 30 or higher and reapply as directed, especially after swimming or sweating.

👒 2. Cover up
Wide-brimmed hats, long sleeves, pants, and UV-protective clothing can provide an additional layer of protection.

🕶️ 3. Protect your eyes
Wear sunglasses that provide UVA/UVB protection.

🌳 4. Seek shade & plan wisely
Limit direct sun exposure, especially when UV levels are high. Consider planning outdoor activities earlier or later in the day.

📝 5. Know YOUR triggers
Everyone with lupus is different. Keep track of when symptoms appear or worsen and discuss patterns with your healthcare team.

💡 Did you know? Some people with lupus can also be sensitive to certain indoor lighting, not just sunlight.

Remember: You don't have to avoid enjoying life—you may just need to enjoy the sunshine differently. 🌞💜

💬 LET'S TALK!
Are you sensitive to the sun? What is your favorite way to protect yourself when you're outside? Share your tips below—you may help another lupus warrior! 👇🏾💜

📣 Help us educate and raise Lupus Awareness. Share this post!

Sources & Resources:
• CDC — Lupus Basics
• CDC — Ultraviolet Radiation
• Lupus Foundation of America — Daily Life with Lupus
• NIAMS — Lupus

💜☀️

💜 LUPUS & THE LUNGS: KNOW THE SIGNS, PROTECT YOUR BREATHDid you know lupus can affect more than your joints and skin? It...
10/10/2026

💜 LUPUS & THE LUNGS: KNOW THE SIGNS, PROTECT YOUR BREATH
Did you know lupus can affect more than your joints and skin? It can also affect the lungs, the lining around the lungs, blood vessels, and the diaphragm.

🫁 Lung complications associated with lupus may include:
• Pleuritis — inflammation around the lungs that can cause sharp chest pain, especially with deep breathing
• Pleural effusion — fluid around the lungs
• Pneumonitis — inflammation of lung tissue
• Interstitial lung disease — inflammation and scarring that may make breathing difficult
• Pulmonary embolism — a blood clot that travels to the lungs

🚨 PAY ATTENTION TO YOUR BODY
Shortness of breath, persistent cough, unexplained chest pain, fever, or difficulty breathing should not automatically be dismissed as “just lupus.” These symptoms can have several causes and deserve proper medical evaluation. (Lupus Foundation of America)

💜 MANAGEMENT MATTERS
✔️ Keep regular appointments with your healthcare team.
✔️ Report new or worsening breathing symptoms.
✔️ Follow your prescribed treatment plan.
✔️ Keep track of symptoms and when they occur.
✔️ Avoid smoking and secondhand smoke.
✔️ Talk with your healthcare provider about vaccinations and infection prevention.
✔️ Seek urgent medical attention for sudden or severe breathing difficulty or chest pain.

Your lungs deserve attention, too. 🫁💜

At Lupus Connect, we believe education, awareness, support, and empowerment can help people living with lupus become stronger advocates for their health.

💬 Have you experienced breathing problems or chest pain related to lupus? Share your experience below.

Help us educate and raise Lupus Awareness. Share this post.

This post is for education and awareness and does not replace medical advice, diagnosis, or treatment from a qualified healthcare professional.

💜🧠 LET’S TALK ABOUT LUPUS & THE BRAIN 🧠💜Lupus is more than joint pain, fatigue, or skin symptoms. Lupus can also affect ...
10/09/2026

💜🧠 LET’S TALK ABOUT LUPUS & THE BRAIN 🧠💜

Lupus is more than joint pain, fatigue, or skin symptoms. Lupus can also affect the brain and nervous system. When lupus affects the central nervous system, it may be referred to as neuropsychiatric lupus (NPSLE).

Some people living with lupus may experience:

🧠 Brain fog — difficulty concentrating, remembering things, or finding the right words
🤕 Headaches
😴 Sleep disturbances
💭 Mood or emotional changes
⚡ Seizures
🧩 Cognitive difficulties
🩸 Stroke or stroke-like symptoms
⚠️ Nerve-related symptoms, such as numbness, tingling, or pain

These symptoms can be invisible, unpredictable, and different from person to person. And importantly, not every neurological symptom in someone with lupus is necessarily caused by lupus. Other medical conditions or medications can produce similar symptoms, so new or worsening symptoms should be discussed with a healthcare professional. (Lupus Foundation of America)

💜 WHAT CAN YOU DO?
✔️ Keep track of new or changing symptoms.
✔️ Tell your healthcare team about brain fog, headaches, mood changes, seizures, or other neurological symptoms.
✔️ Follow your prescribed treatment plan.
✔️ Prioritize rest, stress management, and overall wellness.
✔️ Don't dismiss symptoms simply because they aren't visible.
✔️ Seek urgent medical attention for sudden weakness, difficulty speaking, severe confusion, vision changes, or other possible signs of stroke.

Your brain health matters. Your symptoms matter. YOUR VOICE MATTERS. 💜

Let's continue to SUPPORT • EMPOWER • EDUCATE one another about lupus and the many ways it can affect the body.

This post is for educational and awareness purposes and is not a substitute for medical advice, diagnosis, or treatment.

💜 Help us educate and raise Lupus Awareness. SHARE this post!

💜 **LET’S TALK ABOUT LUPUS & YOUR KIDNEYS** 💜Did you know lupus can affect your kidneys—even when you don’t feel anythin...
10/08/2026

💜 **LET’S TALK ABOUT LUPUS & YOUR KIDNEYS** 💜

Did you know lupus can affect your kidneys—even when you don’t feel anything is wrong?

When lupus causes inflammation in the kidneys, it’s called **lupus nephritis**. One of the reasons kidney health is so important is that kidney problems can sometimes develop quietly. That’s why regular testing matters. 🩷

👀 **WHAT SHOULD YOU WATCH FOR?**

Some possible signs include:

• Foamy or bubbly urine
• Blood in your urine
• Swelling in your feet, ankles, legs, hands, or around your eyes
• High blood pressure
• Changes in how often you urinate
• Unexplained tiredness or feeling unwell

🧪 **HOW CAN YOUR KIDNEYS BE CHECKED?**

Your healthcare provider may monitor your:

✔️ Urine for protein and blood
✔️ Creatinine and eGFR through blood tests
✔️ Blood pressure
✔️ Urine protein levels
✔️ Kidney function over time

A kidney biopsy may also be recommended when clinically appropriate.

💊 **IF YOU HAVE LUPUS NEPHRITIS**

Treatment depends on how much the kidneys are affected. Your healthcare team may recommend medications to control inflammation, corticosteroids, immunosuppressive medicines, or targeted treatments such as **belimumab or voclosporin** when appropriate.

💜 **YOU CAN HELP PROTECT YOUR KIDNEYS**

✔️ Keep your medical appointments.
✔️ Take your medications as prescribed.
✔️ Know and monitor your blood pressure.
✔️ Manage conditions like diabetes and high cholesterol with your healthcare team.
✔️ Follow nutrition recommendations that are right for you.
✔️ Ask your healthcare provider before regularly taking NSAIDs like ibuprofen, especially if you have kidney problems.

💭 **HERE’S A QUESTION TO ASK AT YOUR NEXT APPOINTMENT:**

👉 “How are we monitoring my kidneys?”

Don’t wait until you have symptoms. **Your kidneys deserve attention, too!** 💜

📣 **Help us educate and raise Lupus Awareness. Share this post!**

This post is for education and awareness only and is not a substitute for medical advice, diagnosis, or treatment. Talk with your healthcare professional about your individual health needs.

Address

Oak Park, MI
48237

Website

Alerts

Be the first to know and let us send you an email when Lupus Connect posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Lupus Connect:

Shortcuts

Share

Category